Vision after CXL

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McIzzerson
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Keratoconus: Yes, I have KC
Vision: I have Intacs implanted

Vision after CXL

Postby McIzzerson » Tue 30 Nov 2021 2:56 pm

Hi all

I had CXL on Monday 22nd (last week). First few days were some of the worst pain I’ve ever experienced! :cry:

However, now on the other side of things pain wise, but my vision is still extremely blurry and I am very light sensitive.

I am nervous as I was told I would need a max 2 weeks off work but am concerned I won’t be able to go back next week.

I was wondering if anyone could tell me about their experiences with poor vision after CXL? How long did it take until you were able to go back to work?

Thanks all - feel quite miserable and frustrated.

RedOnion
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Posts: 66
Joined: Thu 17 Aug 2017 8:05 am
Keratoconus: Yes, I have KC
Vision: Other

Re: Vision after CXL

Postby RedOnion » Tue 30 Nov 2021 3:31 pm

It’s a scary time post CXL! It took a couple of weeks before it was more normal for me. It was a very gradual return for me but not pleasant waiting!

I trust it will come back for you soon :)

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gsward
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Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: Vision after CXL

Postby gsward » Tue 30 Nov 2021 3:42 pm

Practically, you could get your GP to sign you off work if necessary. When is your next review at the hospital?

McIzzerson
Newbie
Newbie
Posts: 6
Joined: Thu 21 Oct 2021 1:28 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted

Re: Vision after CXL

Postby McIzzerson » Wed 01 Dec 2021 2:42 pm

Thank you for your response RedOnion, definitely a scary time but that’s reassuring. Thank you!

GSward, thank you! work are actually being very supportive but am more concerned from a financial perspective as this time off thus far has been covered but if I were to take any longer, I’d probably end up on SSP! Eek.

kieran19685
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Joined: Mon 03 Sep 2012 11:50 am
Vision: Contact lenses

Re: Vision after CXL

Postby kieran19685 » Fri 10 Dec 2021 7:18 pm

hows the vision? any improvement?

McIzzerson
Newbie
Newbie
Posts: 6
Joined: Thu 21 Oct 2021 1:28 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted

Re: Vision after CXL

Postby McIzzerson » Tue 14 Dec 2021 5:51 pm

Hi Kieran, thanks for the message. Vision still not amazing. However, definitely improving day on day. It’s just a slow and frustrating process!

Have you also had CXL?

kieran19685
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Posts: 146
Joined: Mon 03 Sep 2012 11:50 am
Vision: Contact lenses

Re: Vision after CXL

Postby kieran19685 » Wed 15 Dec 2021 6:40 pm

Not yet - they mentioned it last time I was there but want to wait and see on the next scan if there’s progression - I feel there has been a little

It’s on my better eye so not sure if I want the risk

Is vision worst than before ?

McIzzerson
Newbie
Newbie
Posts: 6
Joined: Thu 21 Oct 2021 1:28 pm
Keratoconus: Yes, I have KC
Vision: I have Intacs implanted

Re: Vision after CXL

Postby McIzzerson » Wed 05 Jan 2022 7:51 pm

Hi Kieran, my vision was worse right after the CXL but I’m now 6 weeks post CXL and it has stabilised in one eye and dramatically improved in the other, which I’m overjoyed about.

kieran19685
Regular contributor
Regular contributor
Posts: 146
Joined: Mon 03 Sep 2012 11:50 am
Vision: Contact lenses

Re: Vision after CXL

Postby kieran19685 » Tue 11 Jan 2022 9:32 am

thats great news - the eye that had cross linking - is that the eye that has dramtically improved?


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