First appointment at Moorfields

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taylan
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Keratoconus: Yes, I have KC
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First appointment at Moorfields

Postby taylan » Mon 30 Aug 2021 12:37 pm

Finally, I have got an appointment for KC tomorrow at Moorfields. As I said in my previous message, I'm new in the UK and it's going to be my first time at the hospital (I was diagnosed with KC 3 years ago(when I was 25) in my left eye but not in the UK).

I'm quite nervous about it. If you have any advice for me, I'd be really happy. What should I ask the hospital for further monitoring or if you have any recommend questions/important points during visiting?

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Lia Williams
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Re: First appointment at Moorfields

Postby Lia Williams » Tue 31 Aug 2021 6:23 am

https://www.keratoconus-group.org.uk/in ... pointment/

The above link explains how to get the most out of an appointment

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space_cadet
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Re: First appointment at Moorfields

Postby space_cadet » Sat 04 Sep 2021 5:51 pm

how did your appointment go?>
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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taylan
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Keratoconus: Yes, I have KC
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Re: First appointment at Moorfields

Postby taylan » Mon 06 Sep 2021 7:56 pm

I'm not satisfied. I had taken all previous scans to show during the appointment. They scanned my eyes but didn't compare my previous topographs. It took 15 minutes all scanning and checking, no any information. They also said they booked a scan and monitor appointment for 6 months later and a contact lens appointment but I've not received any letter yet.
I went to a private optician in January to monitor my eyes in London, they looked at my previous scans and they said that I needed CLX on my right eye (my right is a better one). I'll probably go private again.

Green
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Re: First appointment at Moorfields

Postby Green » Thu 16 Sep 2021 10:42 am

I'm sorry it wasn't good for you.
I've had mixed experiences with Moorfields, from truly wonderful to traumatically awful, I'm sure the same is true of any hospital.
Did you ask them about CLX?
Maybe still keep the next round of appts before you junk them and go in with prepared questions

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gsward
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Re: First appointment at Moorfields

Postby gsward » Thu 16 Sep 2021 11:23 am

If your next appointment has not arrived a week after your visit you can phone the appointments booking centre on 020 7566 2357. Always best to quote your hospital number. If you have trouble getting through on the phone email can be a better option moorfields.outpatientbookingsbc@nhs.net


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