UK Keratoconus Self-Help and Support Association

Hello a year ago, I was diagnosed with Keratoconus in Phase 1 and I got a prescription for glasses. With the new glasses I still saw 80%. I see everything and I can read things even from a distance, but when it is dark background and light font, I see it double. Yes, I know it is ghosting, but I left it and tried to get used to it.
Unfortunately, even after a year I did not get used to this and I do not know exactly what it is. I think keratoconus in the first stage can not make such patterns? Is it astigatism? Or how do I solve it?
I've never tried any hard lenses, just glasses. Right now I'm waiting for my first soft toric lens and see. Do you think they can help me?

Here you can see how I see the cursor on the monitor, for example:

Hello and welcome. Yes, what you're seeing is typical of keratoconus and is down to the irregular astigmatism which is very difficult to correct with glasses. Your new toric lenses should make a difference. Let us know how you get on with them.

Anne Klepacz wrote:Hello and welcome. Yes, what you're seeing is typical of keratoconus and is down to the irregular astigmatism which is very difficult to correct with glasses. Your new toric lenses should make a difference. Let us know how you get on with them.

Hello, thank you for information! Do you think will work normal toric soft lenses? Because I am waiting for it. I have also heard of hard lenses, but I think they are not needed for the first stage of keratoconus..
What you think?

Thanks!

We're all different, so lenses that work well for one person don't always suit another. So you'll just have to wait until you get your torics and see what difference they make. At least you know there are other options if they don't do the trick for you. But hopefully they will! Good luck.

So unfortunately. Today I got my soft lenses and the vision is a little bit sharper, but the ghosts are still and even more with lenses. I'm really depressed. Even though my keratoconus is a mild, ghosts are very restrictive because I make my living as a graphic designer ....

Now I will live in England for half a year. Can you recommend the best keratoconus optometrist for hard lenses? I hope hard lenses will help me and recude ghost..

I don't know where in the country you're living, but have a look at this list to see if there's an optometrist near you. https://www.keratoconus-group.org.uk/optoms/

Hi just wondering if you have sorted out your ghosting issues and with what lenses ?