*New Member* - CXL in Good Eye

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Sonic_Ross
Newbie
Newbie
Posts: 3
Joined: Sun 16 Jun 2019 6:29 pm
Keratoconus: Yes, I have KC
Vision: On the waiting list for a graft

*New Member* - CXL in Good Eye

Postby Sonic_Ross » Sun 16 Jun 2019 6:59 pm

Hi Everyone,

I'm a new member (32/M) and relieved to have found this community online. I'm very anxious about procedures on both of my eyes and keen to hear about the experiences of others.

Right Eye
Keratonconus: Recently diagnosed, some ghosting when tired
Visual Acuity: Better than 20/20
Medical Procedure
Booked to undergo CXL on this eye on 4th July.

Left Eye
Keratonconus: Severe, with lots of blurring/ghosting and scarring in centre of eye
Visual Acuity: Worse than 20/200, can't see anything on Snellen Chart.
Medical Procedure
Provisionally booked to undergo an attempted DALK (if scarring allows) or a full PK in mid-October.

Questions/Help
1. My left eye is extremely bad and so with CXL on my right eye I'm nervous about how long I will be unable to see for - can anyone share their experiences?
2. I'm due to go on holiday on 9th August - am I likely to be able to see properly by then?
3. Has anyone had CXL and had their vision get permanently worse? If so, can you quantify that in any way?

Thanks for taking the time to read my post and the very best wishes to everyone on the forum with their condition.

Cheers,
Ross

RedOnion
Contributor
Contributor
Posts: 16
Joined: Thu 17 Aug 2017 8:05 am
Keratoconus: Yes, I have KC
Vision: Other

Re: *New Member* - CXL in Good Eye

Postby RedOnion » Mon 17 Jun 2019 9:01 pm

Hi Ross,

I can relate a wee bit, I have a fair difference between my left and right though not as extreme a difference as yours.

When I had my good eye done, it was six weeks after my bad one. Recovery rate was pretty quick, I was able to see well after a day and about three for full vision, where the light sensitivity had dulled.

Unfortunately everyone’s experience is different, there is sadly no textbook for this but staying positive is a good start. I’m sure you will manage to see well come August.

Anyway, I was fortunate and it worked well so fingers are crossed for you!

Sonic_Ross
Newbie
Newbie
Posts: 3
Joined: Sun 16 Jun 2019 6:29 pm
Keratoconus: Yes, I have KC
Vision: On the waiting list for a graft

Re: *New Member* - CXL in Good Eye

Postby Sonic_Ross » Tue 18 Jun 2019 5:13 am

RedOnion,

Thanks for your reply. I'm delighted that it went well for you. Honestly I am terrified because I have no vision at all out of my left eye. I feel that CXL is a bit of a gamble but in theory it means I shouldn't need to worry about my good eye anymore!

I had an RGP on my bad eye which was very difficult to out in.

I'm trying to see if a hybrid or scleral lens will work better - does anyone have any experience with those on eyes with severe keratoconus?

Ross


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