Re-graft failure

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Re-graft failure

Postby Green » Wed 29 May 2019 3:03 pm

Anyone got experience of re-grafts failing or of DMEK for PK rejection?

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Re: Re-graft failure

Postby space_cadet » Thu 30 May 2019 4:06 am

yup ample experience sadly, which is not what you want to hear x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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Re: Re-graft failure

Postby Green » Fri 31 May 2019 9:33 pm

What treatments did you have for re-graft rejection after hourly drops?

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Re: Re-graft failure

Postby space_cadet » Tue 04 Jun 2019 1:22 pm

IV had regrafts, patch ups, more drops, tablets,
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Re: Re-graft failure

Postby Green » Fri 14 Jun 2019 1:02 pm

It's rejecting at descemets membrane/endothelial layer (without stomal tissue), there are 'folds' not sure what that means yet.
I wonder if anyone has had a DMEK for PK endothelial rejection?

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Re: Re-graft failure

Postby Green » Tue 18 Jun 2019 1:34 pm

At what point is graft rejection unresponsive to topical steroids pronounced as failed?
Weeks, months, 1 yr, 2 yrs?

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Re: Re-graft failure

Postby space_cadet » Wed 19 Jun 2019 7:36 am

depends on specialist, as Ivhad conflicting opinions, but have vowed on no futher surgery as have adapted to being blind n its a heck of a lot less stressful and easier to navigate the world, sorry that your experiencing this hell though x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Re: Re-graft failure

Postby Green » Wed 19 Jun 2019 11:53 am

It's like trying to get blood out of a stone to get information Space Cadet. I respect your position.

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Re: Re-graft failure

Postby space_cadet » Wed 19 Jun 2019 12:23 pm

I feel for you as have been where you are, x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Re: Re-graft failure

Postby Green » Wed 19 Jun 2019 2:12 pm

It does feel like our graft failures makes us failures unless we skip around chin up shit x


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