Re-graft pain

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Green
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Re: Re-graft pain

Postby Green » Sat 16 Feb 2019 3:10 pm

Is it possible for sutures to 'catch' or rub the upper eyelid?

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space_cadet
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Re: Re-graft pain

Postby space_cadet » Sun 17 Feb 2019 8:12 pm

yup it is possible x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Re: Re-graft pain

Postby Green » Tue 19 Feb 2019 12:56 pm

I think this the problem. It's causing me difficulties with the other eye with lens insertion because when one eye is in pain and not wanting to open as wide and is very reactive to anything it impacts on the other eye. Hence the lens endlessly going into the corner because I can't control my reflexes on insertion. I wish we could 'disconnect' eyes so switch one off whilst dealing with the other.
If it is the sutures causing discomfort (I'm still holding hope it isnt), then it means a year of discomfort. Could they not tell if it's the sutures?

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Re: Re-graft pain

Postby space_cadet » Tue 19 Feb 2019 6:07 pm

if it is sutches rubbing they can remove n redo, prob best to go eye casualty n speak to a eye specialist n flag your concerns n explain the impact on day to day living and how that is impairing what you can do and the lack of quality of life it is giving you x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Keratoconus: Yes, I have KC
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Re: Re-graft pain

Postby Green » Fri 01 Mar 2019 7:12 pm

I'm very releived to report that the pain has eased up significantly, I can sneeze without feeling like there's a screwdriver in my socket. This is of some relief because it really scared me because I had no expectation of it. I do think though it's not right to discharge a patient in that much pain and blind (as I could not open the other eye) and where the taxi home hurt a lot. Ok, we don't need 3 days like we had in previous decades but I do think overnight is not unreasonable especially if you're in a lot of pain. Also because taking off the pad and removing any mucus relies on having enough sight in the other eye to do so which I didn't have without thr lens in and I just couldn't get the lens in initially. It's thrown my reflexes with that eye, it will take time to regain better control so it's still a bit screamy in the bathroom

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Re: Re-graft pain

Postby space_cadet » Sun 03 Mar 2019 11:11 pm

so glad to hear its improving :D this has made me smile n say squee rather loud n had Mr Space Cadet look at me like wait whwat!
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Keratoconus: Yes, I have KC
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Re: Re-graft pain

Postby Green » Tue 05 Mar 2019 5:14 pm

And today it's back to uncomfortable bah! This is snakes & ladders. It's really uncomfortable again like grit but no hint of redness or decrease in visual acuity

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Re: Re-graft pain

Postby vijyes » Sun 28 Apr 2019 7:53 am

How is the pain now? Please tell as I am planning for a graft too. If the pain is so extreme, then I will have to rethink.

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Re: Re-graft pain

Postby Green » Thu 02 May 2019 7:35 pm

I'm relieved to say that it has subsided, took a few weeks

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Re: Re-graft pain

Postby space_cadet » Wed 08 May 2019 2:34 pm

glad tohear it has subsided x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world


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