Re-graft pain

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Green
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Re-graft pain

Postby Green » Sun 10 Feb 2019 4:29 pm

Has anyone experienced re-graft extreme post operative pain, then settling but a sneeze or cough really hurting?

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Re: Re-graft pain

Postby space_cadet » Sun 10 Feb 2019 10:00 pm

yup had this when my graft was repatched its frustrating but I got used to it over time x sorry you are struggling x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Re: Re-graft pain

Postby Green » Sun 10 Feb 2019 11:45 pm

Did it continue for you? I'm asthmatic, hard asthma cough would have me screaming with pain I can't even take the other eye flinching with the RGP the pain goes into the re-grafted eye. Even a slight knock on the head hurts the re-grafted eye.
How can that ever tolerate a lens?

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Re: Re-graft pain

Postby space_cadet » Mon 11 Feb 2019 7:40 am

Iv not been able to tolerate lenses for years so can't comment on lens tolerance.x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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Re: Re-graft pain

Postby Green » Mon 11 Feb 2019 8:58 am

But your pain never went..how do you manage sneezing/coughing?

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Re: Re-graft pain

Postby space_cadet » Mon 11 Feb 2019 12:35 pm

flinch n hope for the best if honest. x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

Green
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Re: Re-graft pain

Postby Green » Thu 14 Feb 2019 9:42 am

The pain sensitivity in this eye is extreme

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Re: Re-graft pain

Postby space_cadet » Thu 14 Feb 2019 10:06 am

I have a small supply of numbing drops which they dont like to give out cos "they sometimes cause corneas to thin" um duh no **** but the pain is horrific il take that risk. x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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Re: Re-graft pain

Postby John Smith » Thu 14 Feb 2019 4:19 pm

I had a re-graft 4 weeks ago, and I agree that sneezing (and coughing to a lesser extent) caused pain. But that pain has reduced considerably and is barely noticeable now.

If your pain continues, I'd strongly suggest going back to your consultant, as things may need to be looked at.
John

Green
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Re: Re-graft pain

Postby Green » Fri 15 Feb 2019 12:49 am

Normal stuff like your hand on your forehead accidently going over the eyelid - I was curled up for 8 hrs in searing pain. I just want to tape the eye shield onto me permanently at the moment not just at night. The level of sensitivity and pain is scaring me. They could offer no explanation to me for it. I hope it eases because it's impacting on inserting the RGP in my other eye because it's hard to open wide & stare and I know that any sharp lid movement in that eye will immediately hurt in the re-grafted eye. I'm glad to hear yours subsided John, I will hold onto that!!


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