There appears to be only one active regional group - West Midlands not even one in London.
Why is that? No KC community spirit?
KC regional community groups
Moderators: Anne Klepacz, John Smith, Sweet
- space_cadet
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- Keratoconus: Yes, I have KC
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Re: KC regional community groups
A couple of years ago (about 6 from memory) myself n another forum user attempted to and sadly didnt succeed with setting up something in Leeds.
Good luck tho if you choose to put in time to set something up x
Good luck tho if you choose to put in time to set something up x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
- Bulls Eye
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- Keratoconus: Yes, I have KC
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Re: KC regional community groups
Thanks for the response Space Cadet. It would be interesting to know why both your efforts never succeeded in Leeds. Was there no demand for it?
No point in creating Groups if there is no demand or support for them from the KC community.
No details of any Leeds group on the forum just the following five groups -
Manchester
Scotland
Wales
East Midlands
West Midlands
http://www.keratoconus-group.org.uk/aims2.html
“We organise regular meetings for members often with guest speakers”
No point in creating Groups if there is no demand or support for them from the KC community.
No details of any Leeds group on the forum just the following five groups -
Manchester
Scotland
Wales
East Midlands
West Midlands
http://www.keratoconus-group.org.uk/aims2.html
“We organise regular meetings for members often with guest speakers”
- space_cadet
- Champion
- Posts: 955
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: KC regional community groups
we tried we reached out to a lot of people but not one got back to us, was rather sad especially as their are 2 consultants based at St James' who deal with KC
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
- Bulls Eye
- Contributor
- Posts: 45
- Joined: Sat 29 Apr 2017 5:35 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: KC regional community groups
Thats sad but well done for trying. I cannot find anything on the site here about it did you not get any support from the charity as its one of their aims and objectives.
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