UK Keratoconus Self-Help and Support Association

Hey,

I saw my doctor yesterday after being told I had a problem with my eyes back in October and they diagnosed me with keratoconus the doctor was very unhelpful and told me I was put on a waiting list for an operation crosslinking? But didn't go into detail he was a little all over the place and I left feeling scared and upset I've done a little researched but fins myself getting too upset and I haven't really got anyone to talk to who understands. I'm back in work tomorrow and dreading having tell them as they just say I'm always moaning about my eyes to get out of tills which I'm not I actually struggle to stand there looking at a screen for any more than 2 hours tops. How can I make them understand when I barely know what is going off myself.

Sorry for the long post I just really need some advice :'(

hello Emma Jayne and welcome!
You've come to the right place where there are lots of us who'll understand why you'd find staring at the till screens difficult. On our home page at http://www.keratoconus-group.org.uk/sit ... tions.html you'll find a couple of leaflets about keratoconus at work which you can download. Do show the 'keratoconus at work' leaflet to your supervisor and your colleagues so that they can understand how KC can affect you. And reassure them as well that there's a lot that can be done for KC these days. Crosslinking will stop your KC progressing any further and glasses or contact lenses will correct your vision. If you e-mail your postal address to anne@keratoconus-group.org.uk there's an information booklet about KC I can send you. It's always scary to be told you have an eye condition most people have never heard of, but people here will be able to answer your questions - you're not on your own!
All the best
Anne

Hi Emma Jayne,
That's good advice above. Welcome to the forum, hope you get the answers you are looking for. Crosslinking sounds very effective in most cases. It can stabilise your condition and then you have options from there to get back to normal. It can all be very daunting at first but once you know where you are it gets easier to deal with. Good luck and fire away with any questions!