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"So what do you see then?"
Posted: Mon 11 May 2015 10:38 am
by Grant
If your experience is anything like mine this is pretty much the first question asked after telling someone you have KC. The widely shared New York Time Square image doesn't really reflect my reality but this was posted on Twitter last week and it pretty much nails it me. I'd be interested to know if it also matches others experiences.
https://instagram.com/p/2ZK40QIu7x/
Re: "So what do you see then?"
Posted: Mon 11 May 2015 8:32 pm
by CrippsCorner
Yeah I'd say that was pretty accurate! That kind of effect seems to be escalated when I'm watching people on TV compared to real life though.
Re: "So what do you see then?"
Posted: Mon 11 May 2015 9:37 pm
by Lia Williams
Interesting picture - but it's not what I see.
I have a high minus prescription so unaided everything beyond three or four inches is blurred and distorted
With glasses my right eye sees more like the classic examples of KC vision.
One oddity of my vision is in the dark I can sometimes read the time on digital clock on the other side of the room The three inch display appears as a red blurry circle of multiple blurred images about nine inches across but somewhere in the middle one of them will be in focus. So I can't see the clock but I can read the time!
Lia
Re: "So what do you see then?"
Posted: Tue 12 May 2015 6:45 am
by CrippsCorner
That's kind of how I'm seeing from my hazed eye at the moment. It's blurry as hell and I struggle with most things, but usually in the middle somewhere there is actually a 'fine' image which means I can read things to a certain extent! Just wish I could get rid of the other c**p

When people have asked me previously what I see, I use this image, which perfectly sums up my vision unaided...

Re: "So what do you see then?"
Posted: Sun 17 May 2015 2:18 pm
by MattD87
Mine's definitely more like what Cripps posted, for my worse eye. But even then the writing is blurry so I can't really see the writing on signs until I'm close enough that the ghost image doesn't cover up the letters.