UK Keratoconus Self-Help and Support Association

New here from the U.S. I found this forum and I must say I am scared too death. I was diagnosed with KC in my early 20s but I didn't think much of it at the time and the doc did not really give me much info. I have always had not the best eye sight but I got by, usually squinting or sitting right in front of the tv. In my late 20s my right eye has become so blurred o can't see out of it. I think they said I am 20/400 in it. My left eye has been what's getting me by. I have gotten to the point in the last year or so where it has become very hard to even drive at night. I went to get glasses last march and that's when I learned a lot more about this. I have taken topography and had a million doc apts over the summer and I have been putting everything off. I have some ghosting going on now in my good eye and I have another apt with a cornea specialist in 2 weeks and it will be the second one I have seen and I'm then going to take action. I am terrified. This has really been a downer for me lately. My bad eye gets sore and has some scarring and is in severe stages but I am hoping a contact will still work if scarring is too bad. I have never tried hard contacts but I hope it works. Thanks for listening and I have read so many of your stories also.

Hi Pauly and welcome,
It is scary when vision deteriorates, but most people with KC see a big improvement in their vision with contact lenses. It's only by trying different contact lenses that you'll find out what they can do for you. And there are other options too, as you've found out. This is primarily a UK site (though we welcome forum users wherever they're from) so it's unlikely you'll find anyone here who's flown over to the States for CXL. In the UK, most CXL is done epi-off though there might be one or two people who've had epi-on here and could tell you about their experience. It's good that you're grasping the nettle and finding out what can be done to improve things for you - good luck!
Anne

Thanks a lot for the reply. I really hope everything gets taken care off. I am very blessed to have a family who can help me out with all of this. 😊

Hi,
Check below links
Www.bostonsight.org
Www.laserfitlens.com

I am using Boston lenses. Very comfortable and getting near perfect vision.

Kishore
Singapore