UK Keratoconus Self-Help and Support Association

hi all
I had a pentacam scan in November (2 years after crosslinking on my left eye) which showed that KC progression had stopped. this was good news, however it also showed that there was still progression in my right eye, but not very much to be worried about.

I have 2 questions:

1. how long should i wait until my next scan to see if there has been any changes? should i wait a year or would now be enough time?
2. what is the average age that KC stops progressing? Im 31 now, so after the next scan im going to consider whether i need cxl in my right eye. The vision is currently good, but obviously I dont want it to get worse,

thanks
Dan

Hi Dan, your situation sounds similar to mine (as you may have read in my own thread) although you're a little ahead of me!

As I understand it then, you only had CXL in one eye? 6 months should be sufficient to see any progression. On average it seems that progression stops around 40 years old.

I'm booked in for CXL on my worst eye this Friday, and my better eye is leagues ahead... however CT scans show it is still getting worse though (albeit not as quickly) but I, like you, need to decide if it's worthwhile trying to preserve that better eyesight. Personally, I think it is.

yes mate, just one eye (my left which is the worst)

good luck