UK Keratoconus Self-Help and Support Association

HI
MADE BY http://www.cantor-nissel.co.uk/
ANY ONE TRIED THEM????
TKS

Both of my full grafts were done over 25 years ago.

Probably a couple of years ago now I moved from wearing spectacles to hybrid contact lenses although not from the same manufacturer you mention.

Some months later my left graft started to reject having been fine previously for over 20 years.

Cnslt at the time would not admit the lenses were at fault but my contact lens practioner blamed the hybrid lenses as he had four other kerataconus patients at the time who developed similar problems to me ie problems with the same hybrid lenses.

Once the rejection problem was sorted out I tried a small to medium size scleral lens in my left eye only as my right could not cope with any type of lens for long due to a particulat problem with that graft.

I had no rejection problems with the scleral lens but found if I was not strict in limiting my wearing period then I would have to let my eye recover then start from scratch building up my wearing time in 30 min increments per day.

Luckily for me I have reasonable vision in my left eye with spectacles, I got fed up with lenses and have not worn lenses for about a year and half even though my vision with them was much better than with spectacles.

Obviously not everyone can do that.

My advice from several decades of experience of Keraoconus and contact lenses is to try if possible to stick to a strict wearing routine with the lenses and limit your wearing time and try not to wear them for at least one day a week, I know from experience this is hard to do.

In addition there are various eye drops which improve wearing time and comfort try some of these but 1st take advice from yout optician or cnslt.

Hope this has been of some help.

Graham222 wrote:Both of my full grafts were done over 25 years ago.

Probably a couple of years ago now I moved from wearing spectacles to hybrid contact lenses although not from the same manufacturer you mention.

Some months later my left graft started to reject having been fine previously for over 20 years.

Cnslt at the time would not admit the lenses were at fault but my contact lens practioner blamed the hybrid lenses as he had four other kerataconus patients at the time who developed similar problems to me ie problems with the same hybrid lenses.

My first graft will be 25 in july and it was 16 years post graft that I went from glasses to contact lenses. For me it was RGP lenses but after four years I became intolkerant of the RGP lenses and if I had persisted with them I think I too would of been in Grahams position of having rejection issues. So far (touch wood) no rejection occurances here and I put that down to the Kerasoft lenses that I am now using. Kerasoft II were no good with the oxygen transfer to the graft but after the manufacturer invited me to their offices to see the problem they invited me on to their R&D program which lead to the Kerasoft II which were a really good lens and then the Kerasoft IC which was an even better lens. I am back on their R&D program as they now having me trying another lens design of theirs which I must say is even better still.

I am firmly of the opinion that a hard corneal contact lens for KC is the worst thing you can put on a damaged cornea and in my personal opinion that goes for a hybrid lens because the centre is hard and will still rub the cornea more than a soft lens. A hard scleral lens is made from similar (if not the same) material as a corneal RGP lens but doesn't touch the cornea so in my view an acceptable treatment option.