Intacs & cross link
Moderators: Anne Klepacz, John Smith, Sweet
-
DavidGable
- Committee
- Posts: 32
- Joined: Mon 10 Sep 2012 7:37 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
Re: Intacs & cross link
Just listened to the testimonial on the Boxer Wachler Web Site. Sounds very good. I just wonder if any one from the UK has been to see him and how did they get on?
-
Anne Klepacz
- Committee
- Posts: 2266
- Joined: Sat 20 Mar 2004 5:46 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: Intacs & cross link
Hi and welcome back,
I think there have been only a few forum users who have had Intacs and CXL combined and they may have stopped looking at the forum, which is why you haven't had any replies. I've copied below an extract from a talk we had at one of our recent meetings from the Corneal Fellow at Moorfields about Intacs (ICRS).
"Corneal ring implants (ICRS) are designed to flatten the cornea. The rings are made of PMMA and made in different diameters and different lengths.
Ring insertion can be combined with CXL or as a stand-alone procedure. If combined with CXL, should this be done pre or post CXL? A randomised trial showed that inserting rings first and performing CXL later produced better results with patients gaining more lines on the eye chart and greater reduction in astigmatism. ICRS is available at Moorfields Eye Hospital; the results of corneal rings, however, are unpredictable."
As for CXL, if you look at the latest guidance from NICE (the body that approves treatments for use in the NHS) http://www.nice.org.uk/IPG466 you'll see that they have now approved epi off CXL for general use, but felt there was still not enough evidence from trials about epi on CXL. Moorfields were hoping to do an epi on trial, but so far haven't managed to get the funding for it.
So it's hard for people with KC to make informed decisions and different surgeons will have different views. And of course, everyone's KC is a bit different, so what works well for one person won't necessarily work as well for someone else!
Good luck, whatever you decide.
Anne
I think there have been only a few forum users who have had Intacs and CXL combined and they may have stopped looking at the forum, which is why you haven't had any replies. I've copied below an extract from a talk we had at one of our recent meetings from the Corneal Fellow at Moorfields about Intacs (ICRS).
"Corneal ring implants (ICRS) are designed to flatten the cornea. The rings are made of PMMA and made in different diameters and different lengths.
Ring insertion can be combined with CXL or as a stand-alone procedure. If combined with CXL, should this be done pre or post CXL? A randomised trial showed that inserting rings first and performing CXL later produced better results with patients gaining more lines on the eye chart and greater reduction in astigmatism. ICRS is available at Moorfields Eye Hospital; the results of corneal rings, however, are unpredictable."
As for CXL, if you look at the latest guidance from NICE (the body that approves treatments for use in the NHS) http://www.nice.org.uk/IPG466 you'll see that they have now approved epi off CXL for general use, but felt there was still not enough evidence from trials about epi on CXL. Moorfields were hoping to do an epi on trial, but so far haven't managed to get the funding for it.
So it's hard for people with KC to make informed decisions and different surgeons will have different views. And of course, everyone's KC is a bit different, so what works well for one person won't necessarily work as well for someone else!
Good luck, whatever you decide.
Anne
-
Anne Klepacz
- Committee
- Posts: 2266
- Joined: Sat 20 Mar 2004 5:46 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: Intacs & cross link
Hi
Then you may know that Moorfields has now started doing CXL on the NHS for some patients. I've e-mailed you the newsletter with the full article from which I quoted which gives more details about that. Meant to say before that if you'd like to receive regular info from us (newsletters and other updates) do e-mail me your postal address anne@keratoconus-group.org.uk
All the best
Anne
Then you may know that Moorfields has now started doing CXL on the NHS for some patients. I've e-mailed you the newsletter with the full article from which I quoted which gives more details about that. Meant to say before that if you'd like to receive regular info from us (newsletters and other updates) do e-mail me your postal address anne@keratoconus-group.org.uk
All the best
Anne
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 22 guests