National KC awareness week

General forum for the UK Keratoconus and self-help group members.

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Andrew MacLean
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Keratoconus: Yes, I have KC
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National KC awareness week

Postby Andrew MacLean » Sat 27 Mar 2004 12:30 pm

To be honest, Anna, that's why I think this site is such a wonderful place.

If we have nudged along imagining that we were alone, or at least part of a small and probably insignificant section of the population, then how can we expect the general public, GP's or even opticians to have any idea of the particular circumstances with which we live?

When we had our recent Scottish group meeting, some folk who had lived with this condition for over twenty years were meeting for the first time other people with the same condition.

I have visited the RNIB site on a number of occasions and they have nothing on Kertoconus. Maybe the first step is to get them to recognize that KC is a not uncommon condition that leads to serious loss of sight and in some cases leaves people legally blind in one or both eyes.

Andrew
Andrew MacLean

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