UK Keratoconus Self-Help and Support Association

Hi, I have just been referred to Moorfields in September. Can anyone give advice on transport. Is it easy to park or would the train be a more viable option. We are travelling from Staffs.

Eamonn is going to Liverpool:

Good luck in the Pool of Life, Eamonn. I'm en ex-pat Scouser in exile, so can confirm you're going to the right place!

Actually, I come from over the water, on the Wirral. I went to
St Paul's Eye Hospital in Liverpool once, during a university
vacation, due to a piece of confusion by the person I saw while
away at college referring me back to the wrong place. So I know they have - or had - a good reputation, but never experienced
them much.

I used to go to hospital appointments at Clatterbridge Hospital
in Bebington (near J4 of M53) but I think they've reorganised
the hospitals round there and that department is now in Arrowe
Park Hospital in Birkenhead. They seemed OK apart from the
usual hospital long waits (!!!) but once they'd finally decided
what the problem was, I didn't see much of them, as they'd
contracted out the contact lens fitting to Keith Nelson, who
worked through an opticians called Render Layfield in Hamilton
Square (very near the underground station of that name). I used to get on fine with him, and indeed it took Moorfields many
years of "reinventing the wheel" to my immense frustration to
get anywhere near as good results as he'd got (in fact, I'm
still wearing one of Keith Nelson's lenses, which must be over
20 years old now). Email me if you want his contact details and I'll try to dig them out.

But all this was quite a few years ago now, and I haven't seen
them for ages.... In fact, I'm not sure St Paul's hasn't been
reorganised in our wonderful new NHS (not!).

Rosemary

--
Rosemary F. Johnson

Jan said:
"Hi, I have just been referred to Moorfields in September. Can anyone give advice on transport. Is it easy to park or would
the train be a more viable option. We are travelling from
Staffs."

Park? In central London????!

I'd come by train. You arrive at Euston, I think? Go down to
the underground (big escalators, centre front of the main
concourse). Take the Northern Line *Bank Branch* southbound
(Careful: not Charing Cross branch) to Old Street (3 stops). The exit for Moorfields is well signposted from the station, and then you follow the green line on the pavement to the hospital front
door.

Time: about 30 minutes Euston-Moorfields... maybe allow 40 if
you don't know the way. Tip: have coins for the ticket machines
to save queueing. If you want to go and visit some of London
while you're here, get a *One-Day Travelcard* (ask if you can get this included in the price of your train tickets).

Good luck at Moorfields! Be warned that Moorfields'
appointments system is pretty terrible and you can wait for
ages, so bring plenty to do (books, knitting, radio, walkman,
etc) and don't book return seats too early.

Rosemary

--
Rosemary F. Johnson

I am out of the office until Monday 18th August. If you need urgent assistance please contact Graham Carlton on 3019. If you don't need urgent assistance, I will read your message sometime next year along with the other 500 that I will come back to.
Regards,

Dave.

________________________________________________________________________ This email has been scanned for all viruses by the MessageLabs service.

Hi Rosemary,
going to pool hope to do a pcge in ict for sec children. A bit worried about placements. You know getting up dead early in the morning, i don't know how my eyes are going to take it plus the long study. i don't want to put my eyes under any undue stress. I asked my optometrist here if it would be wise to have a private word with my course director about my eyesight (getting up early, eyes need time to adjust to the contacts) he said no don't bother. The thing with keratoconus is that you can't hide it. Does anybody have any ideas

just incase anyone might be interested i have found some sunglasses which might help block the sunlight out more than normal sunglasses.
they are called eliminator sunglasses they are £8.99.
*sunglasses are worn over normal glasses
*wraparound design gives 40% more protection
*eliminates harsh sunlight from any angle
*gives 100% protections.
the website i have ordered them from is http://www.easylifeonline.com
hope this may be of interest to some of you.
i have ordered a pair so i will let you know how i get on with them.
thanx sarah

Hi Rosemary,

Thanks for the directions for Moorfield. My other half has decided that the train is the only option for going down there, but as we do not know London at all you have been a great help.

The appointment system at Moorfield sounds the same as Wolverhampton Eye Inf., ta for the warning.

Jan

I am about to have a full Corneal graft in a months time and am slight nervous, can people give me some idea of what to expect post operation.

Yours

LEon

to Eamonn
Hello !
I think you should establish yourself with your new people a little first - bring up the KC later as it arises.
I'm a special ed teacher - one excellent tutor taught me to remember that people with sp. needs are 98% OK and always look for the 98% first , come to the 2% problem later!! let 'em see what you can do - like selling a car, don't say "here's a car that needs new suspension " !!!
Go for it - and enjoy
KateF

Hello to Jan Fisher
Thanx for the memory ! I went to Wolverhampton Eye Inf when I was five - came home with pink-rimmed specs with one eye plastered over -
my brother said "there's a ghost at the door!"

Are you seeing Ken Pullum at Moorfields -?
KateF