Quicktopic posts: May 2003

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

TJStim2299@aol.com

Postby TJStim2299@aol.com » Thu 15 May 2003 9:23 am

Aimee, thats ok, let me know how its going, my email: TJStim2299@aol.com

Andrew MacLean

Postby Andrew MacLean » Thu 15 May 2003 10:48 am

Aimee

Nothing sounds stupid on this bulletin bord. Every one of us has agonized over these issues.

Let me know how you get on.

Yours aye

Andrew MacLean

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>From: QT - aimee.wilkes@bt.com <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
>To: QT topic subscribers <qtopic+subs@quicktopic.com>
>Subject: Keratoconus
>Date: Thu, May 15, 2003, 2:20 pm
>

< replied-to message removed by QT >

umbilica@umbilical.demon.

Postby umbilica@umbilical.demon. » Thu 15 May 2003 7:34 pm

Aimee said:
I worry about leaving my lenses out as i haven't had them long, I have it in my head that i must always put them in because if i leave them out for too long my tolerance will
drop, this probably sounds stupid

No, it's not stupid! - if you don't wear your lenses for a long
time, then you will lose the tolerance. But it doesn't vanish
overnight, and if it hurts, please do take the lens out - the
pain could be something simple, like a bit of dust or an eyelash trapped under the lens, which will be cured by taking the lens
out and washing it.

Tolerance to lenses does vary a bit - well, I and I think lots
of other people find it does! Some days one can wear a lens for hours, other days, the eyes start to feel sore much sooner than
that - for example, tiredness, getting a cold, being a bit run
down, that time of the month, can all make eyes less tolerant of lenses and then you get sore more easily. Or if you've been out in the wind, or in a draught in the office, and got dust in the
lens, or it's just dried out a bit, or you've been working with
computer screens a lot today, or it's very bright and sunny.... lots of things can make for pain in the eye, and lots of times,
the pain (redness, swelling, etc) do get better if you take the
lens out and rest.

One sure-fire sign of an infection is lots of sticky discharge
(not just plain tears) that tends to glue your eyelids
together. Be aware that there are lots of GPs who are not eye
specialists who will treat any red, sore-looking eyes as if they have such an infection and try to give you the antibiotic
eyedrops for it, and it may not necessarily be so.


Oh, and if you want to avoid getting really, really sore eyes:
never, never rub your eyes just after you've been cutting up
chilli peppers. Ooooh, oooooh, aaarrghhh!!! I remember it well.

Rosemary

--
Rosemary F. Johnson

Dave Hamblett

Postby Dave Hamblett » Fri 16 May 2003 5:21 am

Hi Aimee
just a quickie
i have managed to get dirt in my lenses twice and scratched the cornea. Its not as serious as it sounds! but i had to go with out lens for a couple of days. The only thing is to watch for any infection for obvious reasons! I have a very good optician who also sees me at the hospital as he is incharge of the contact lens clinic. I am lucky enough to be able to pop in when i need to and he's makes five mins for me. Don't know if you have a good contact lens optician near by but it may be worth popping in a and asking someone to have a look who knows what they are doing!
hope it goes well
we've all been there! ouch
Dave
>


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Version: 6.0.459 / Virus Database: 258 - Release Date: 25/02/2003 < replied-to message removed by QT >

aimee.wilkes@bt.com

Postby aimee.wilkes@bt.com » Mon 19 May 2003 5:53 am

Thanks Dave and Rosemary,

This web site is so useful, I mean i do air my concerns to my boyfriend but he doesn't really understand what it feels like, and i can't expect him to really as he has brilliant vision. I really appreciate the advice and tips, i have put my lens in this morning and so far it seems to be ok, i tried them over the weekend but didn't last very long. Today they seem to be better, i have got an appointment with my optician soon so i will see what she says. I just want to get to the point where i have my lenses in and they don't bother me all the time, maybe that will never happen, it's just accepting that and getting on with it ! I'm sure i'll get there one way or another.

Aimee

< replied-to message removed by QT >

Susan M

Postby Susan M » Fri 23 May 2003 7:47 pm

Still having a few air-bubble traumas with my newly acquired sclerals - bubbles tend 2 b pinhead sized, sometimes in clusters or can appear after several minutes wear! (usually after blinking)
Any suggestions?????????

Chris W

Postby Chris W » Tue 27 May 2003 11:49 am

Found out that I had KC after failing my RAF medical last week, subsequently they tell me that I am now ineligible for any military service whatsoever. I do though have an offer for appointment to the police to start in a couple of months. Does anyone know whether or not the fact that I now have KC will affect this appointment, i.e will I now be told that I can't join the police either?

Chris.

Dave D

Postby Dave D » Tue 27 May 2003 8:07 pm

Hi Chris,
I am currently serving with the Special Constabulary, and have been for over 5 years. I have recently applied to join the force as a 'regular' officer, and are currently sending back and forth medical reports from my GP, Consultant and optician to the force Nurse. I have been told to suspend duty whilst they look into the condition....like many others their appear to know very little on the subject.

I think my failing will be the 'un-aided- vision test that UK forces have set by ACPO, Association of chief police officers. It varies force to force, but you basically have to have a decent level of vision with the 'naked eye', with no lenses etc before you can be considered, regardless of how good your sight is with lenses. My sight with RGP lenses is close to 20/20 vision....without them I have trouble seeing the nose on my face.

Whatever happens, you must make them aware of your condition for insurance and other important reasons..can you imagine giving evidence in court against someone to be asked about your standard of vision? You would be surprised where these barristers get their info from!

Good luck with it!

Dave.

Laura

Postby Laura » Wed 28 May 2003 4:35 am

Hey to all fellow KC sufferers! I haven't sent any msgs for a while. Been extremely bogged down with A2 exams, unfortunatly i'm still going through with them. Thought you would all like to know about the last visit I had to the Specialist. These guys are the pain of my life, and are so predictable every six months.

After waiting 3 hours to actually blurrily see the consultant, I discover that it is actually fact a different face than the last two that I have had. When asked how old I was, where I lived and actually who I was as they had forgotten my name, I was told for the third time running ablout my condition. As if I did not know from the last two times I had been to the hospital!!

I was then asked how was some alomide drops going - I said I had stopped them now for over a year! How was the hypromellose going - I hardly needed to use that. They also did not know that i was using opticrom eye drops as the last consultat forgot to right it in my file and they did not know i was wearing contact lenses now although they administerd them to me.

To make matters worse, this new consultant them issued me with steriod drops that the hospital pharmacy and my own chemist had never heard of, to be used straight away for a month. But i had to wait a week for them to arrive, and they ahd to be disregarded after 5 days!! So now everyweek i have to go through the charade of ordering more steriod drops!!! I then found out that I could not use these drops with contact lenses, so I either follow doctors orders and fail my exams through lack of vision or pass with contacts in. To top it all the lovely doctor said that i didn't need to return to a specialist any more, just come back if you see that they get worse. But the point is i can't see and probably wouldn't know if they were deterriating anyway!!!!

Is it just me or are all doctors of the kind of try and hope for the best?!?!

Chris W

Postby Chris W » Wed 28 May 2003 5:58 am

Dave,
Cheers for that, I have since spoken to the police but no one there really knew what I was going on about, and like you, I have been told to send them my medical reports. I did actually pass the medical back in March (my unaided vision is still ok) but they didn't realise I had KC and I didn't know at the time either.

Chris.


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