Quicktopic posts: May 2003

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

umbilica@umbilical.demon.

Postby umbilica@umbilical.demon. » Wed 28 May 2003 1:05 pm

Chris wrote:
Found out that I had KC after failing my RAF medical last week, subsequently they tell me that I am now ineligible for any
military service whatsoever.

Crumbs, Chris, that's a bummer!

I do though have an offer for appointment to the police to
start in a couple of months. Does anyone know whether or not
the fact that I now have KC will affect this appointment, i.e will I now be told that I can't join the police either?

I think the answer to that is that you'll be OK so long as your
vision can be corrected with lenses (or specs). There are
plenty of policepersons these days who wear glasses and/or
contacts and work quite OK in them. Oh, and so long as you
aren't colour-blind. I suppose it might restrict your range of
possible postings - eg. night driving if you develop
hypersensitivity to glare. I'll be hoping for the best for you,
anyway.

Rosemary
--
Rosemary F. Johnson

umbilica@umbilical.demon.

Postby umbilica@umbilical.demon. » Wed 28 May 2003 5:51 pm

Layra, what a horrible experience! I certainly does sound like
th etype of treatment from your hospital specialist that is not
what we all pay taces for. Have you thought of complaining?
Anyway, I hope you get your eyes sorted out and don't get any
more of that sort of stuff from doctors. Good luck with the exams meanwhile!

Dave D: good luck; I hope your police folks sort out what KC is, and your application goes through. (Maybe I should add that my
previous message was based on some of the police I knew when I
was in the Met a few years ago -as a civilian, I hasten to say,
as my vision wouldn't meet any standards. They sent me to see
the Occupational Health guy before they recruited me, and oddly
enough he;d come across KC for the first time earlier that week.)
Rosemary

(very pink-eyed and fed up, which must be the hay-fever, and now my speech synthesiser's battery has run down.)

--
Rosemary F. Johnson

Nikki Carr

Postby Nikki Carr » Thu 29 May 2003 4:56 am

Dear Laura sorry to hear you are having such abad time at the hospital. I too have had similar experiences at my hospital, but don't give up!!! They cannot discharge you without your permission, you can ask to be seen regularly for them to monitor your condition. If you feel strongly enough complain, I found that a letter of com[plaint works wonders. After waiting for 3 hours to see a junior doctor she told me to go to specsavers! - my vision hasn't been correctable with glasses for 16 years! As for your exams - I soon have my university finals and am having to sit them without lenses. can you ask to put in mitigating circumstances? they should assist you you officially have a visual impairment and therefore special needs. I know it sometimes seems like a lot of energy to fight for everything but sometimes it's worth it!
Nikki
>
< replied-to message removed by QT >

Andrew Bosanquet

Postby Andrew Bosanquet » Thu 29 May 2003 5:15 am

Hi Laura
What a disgrace your doctors are. You should certainly not be treated like that. In future, is there anyone that could go to the Hospital with you? If there is ever any likelihood of difficulties of whatever sort, it is always very useful to have a friend or relative with you. They can give you moral support and listen to the answers that the doctors give. Also, we, the patients, can feel vulnerable and not want to complain or ask awkward questions – the friend may be able to do that for you.
Could you go to your GP and tell them of the problems you are having and ask how to get better service and/or solve the dilemma of whether to use the steroid or wear lenses?
At Bristol Eye Hospital, I always see the Optometrist who fits my lenses (rather than the doctor). There are just two optometrists (whereas there are lots of doctors who are always changing), so they always know what is going on with me.
I hope your exams go well despite your problems. Do the relevant people know that you might have a visual problem?
Let us know how you get on.
Andrew

Laura Thorne

Postby Laura Thorne » Sat 31 May 2003 2:10 pm

Thanx to all those who replied back to me. The thing about my GPs are they are all as bad as eachother. Pieces of paper seem to go missing at the doctors surgery. My familys lives revolve around going to hospital and medical files that asisstance and consultants can't find or are 'intansit'!!! Usually this means in the wrong department. Nikki i do understand where you're coming from when you're sat in front of some text that you can't see even with it pressed to your nose!!! I got a booklet the other day from Portsmouth uni on disabilities advice. The intro letter was font 14 or so, okay thats fine i can read that but the rest of it must have been at least an 6-8 font. Big thumbs up for the prat who wrote a disabilities advice booklet for the visually impaired with that font size!! Needless to say thats not my first choice and ive complained in a nice letter with a size 16 font!

As to Andrew I do go to hospital with either my mum or my boyfriend, and we do ask questions but the doctors somehow manage to avoid answering the question that you want answered. One of my favourite lines of theirs is' come back if you notice anything getting worse' I didn't notice anything in the first place so what makes them think i'm going to this time! Specsaver are like gods, they seem to know more than specialists do.

Love to all Laura.

Emma Titchener

Postby Emma Titchener » Sat 31 May 2003 3:26 pm

Hi
I've never posted a message on the Keratocouns site before but hey there a first time for everything. I was diagnosed with KC six years ago now. It does affect my life but prehapes not to the same extend as other people. The worst thing I find is having your photograph taken, as they always come back with you squinting or your eyes closed. I got married last year and my biggest fear was my wedding photos. Most of them came back okay but there are quite a few where I've got my eyes closed. This upset me and when passing my photos around I had to do alot of explaining.
This for the first time in my life made me hate KC.
On a brighter note I can still work and drive and lead a fairley normal life. I had a corneal transplant three years ago and it has changed my life. I may be getting the other one done soon.
Has anyone else who's got KC experinced the same type of problems with photographs ?


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