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Hi, I'm a new girl...
Posted: Tue 28 Mar 2006 1:11 pm
by Annmarie Miles
Hi all
I am new to the website and forum.
I only found the website the other day - never thought there'd be a website about KC. And now I find there's this forum and National Conferences... I am amazed!
I have 4 older brothers (and 3 older sisters!) - 2 of my brothers have had the graft done on both eyes. So I grew up with KC and the stress and pain associated with grafts/lenses etc One of my brothers' grafts rejected - it was an awful time!
Then about 10 years ago found out I had KC myself. I was very upset. But I have been wearing rigid lenses on and off since then and so far am not heading towards surgery.
Anyway... just wanted to introduce myself and say how great it is to find a group who understand the issues.
TTFN, Annmarie
Posted: Tue 28 Mar 2006 1:20 pm
by Michael P
Hi Annmarie
May I be the first to wish you a warm welcome.
As I am sure you have already noticed, a lot of sound information and help is available here.
The big problem I have found is that it is addictive and you will probably find yourself having frenetic exchanges with Sweet, Gareth, Andrew and Louise etc at 3.00am .
They will soon be throwing ice cream bombs or something similar at you!
Good luck.
Posted: Tue 28 Mar 2006 1:34 pm
by jayuk
Annemarie
Welcome to the forum!
I am sure youll find this an excellent place for knowledge tranfer, personal experience and overall information with regards to KC!
J
Posted: Tue 28 Mar 2006 2:04 pm
by GarethB
Welcome,
As Michael says, the support goes beyond talking about KC and sharing experiences which are all very important.
We also like to have a bit of fun like anyone else.
Feel free to join the Mayhem in the Chit Chat arena
Posted: Tue 28 Mar 2006 2:08 pm
by Sweet
Hello and welcome to the forum!
Hoping you will find a lot of info and support here. I read with interest about you having two brothers with KC as there is a big issue on KC being genetic and you have the family tree pattern that consultants are looking for to help them in this research! There is a study being taken at Moorfields if you are near and interested in taking part, just because hopefully the more that take part in it the closer we will be to understanding this condition.
Take care and hope to see you posting more soon, Sweet X x X
Posted: Tue 28 Mar 2006 3:23 pm
by Andrew MacLean
Annmarie Miles
Welcome! It is always good to say hello to a new member.
The site is full of bits of information. if you don't agree with what anybody posts then just say so!
If you do agree, please say so, too. However brash some of us may seem (and we can all be pretty brash at times) it is always nice to know that somebody shares our point of view.
Andrew
Posted: Tue 28 Mar 2006 6:52 pm
by Alison Fisher
Hi Annmarie
I'm new here myself, and even though I was diagnosed something like twenty five years ago I've already learned an awful lot from the people on here - mainly because my knowledge is so out of date.
Anyway, take care, Alison
Posted: Tue 28 Mar 2006 7:42 pm
by Louise Pembroke
Hi Annmarie, welcome.
If you need any ice cream or silliness come to me!!
Posted: Tue 28 Mar 2006 7:56 pm
by james mckinlay
WLECOME TO THE FORUM ITS GOOD YOU FOUND IT AS THERE ARE SO MANY PEOPLE WHO WILL OFFER ADVICE ON ANYTHING AND ALSO GOOD FOR A LAUGH ASWELL.
SO ENJOY IT HERE AND TAKE PART WHEN YOU CAN.
ALL THE BEST
JAMES
Posted: Tue 28 Mar 2006 10:48 pm
by John Smith
Hello Annmarie, and welcome to the forum.
Your family tree is certainly interesting as Sweet said... as it matches very closely the sort of pattern that has been spotted in the KC genetics study that we had a presentation on at Saturday's AGM.
That study did show that KC can certainly pass from one generation to the next, but also that the diluting of the gene pool made a transition to the third generation less likely.
Anyway, if you have any questions, just ask.