Hi all
I am new to the website and forum.
I only found the website the other day - never thought there'd be a website about KC. And now I find there's this forum and National Conferences... I am amazed!
I have 4 older brothers (and 3 older sisters!) - 2 of my brothers have had the graft done on both eyes. So I grew up with KC and the stress and pain associated with grafts/lenses etc One of my brothers' grafts rejected - it was an awful time!
Then about 10 years ago found out I had KC myself. I was very upset. But I have been wearing rigid lenses on and off since then and so far am not heading towards surgery.
Anyway... just wanted to introduce myself and say how great it is to find a group who understand the issues.
TTFN, Annmarie
Hi, I'm a new girl...
Moderators: Anne Klepacz, John Smith, Sweet
-
Michael P
- Champion
- Posts: 836
- Joined: Mon 30 May 2005 10:34 am
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: London
Hi Annmarie
May I be the first to wish you a warm welcome.
As I am sure you have already noticed, a lot of sound information and help is available here.
The big problem I have found is that it is addictive and you will probably find yourself having frenetic exchanges with Sweet, Gareth, Andrew and Louise etc at 3.00am .
They will soon be throwing ice cream bombs or something similar at you!
Good luck.
May I be the first to wish you a warm welcome.
As I am sure you have already noticed, a lot of sound information and help is available here.
The big problem I have found is that it is addictive and you will probably find yourself having frenetic exchanges with Sweet, Gareth, Andrew and Louise etc at 3.00am .
They will soon be throwing ice cream bombs or something similar at you!
Good luck.
-
Sweet
- Committee
- Posts: 2240
- Joined: Sun 10 Apr 2005 11:22 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
- Location: London / South Wales
Hello and welcome to the forum!
Hoping you will find a lot of info and support here. I read with interest about you having two brothers with KC as there is a big issue on KC being genetic and you have the family tree pattern that consultants are looking for to help them in this research! There is a study being taken at Moorfields if you are near and interested in taking part, just because hopefully the more that take part in it the closer we will be to understanding this condition.
Take care and hope to see you posting more soon, Sweet X x X
Hoping you will find a lot of info and support here. I read with interest about you having two brothers with KC as there is a big issue on KC being genetic and you have the family tree pattern that consultants are looking for to help them in this research! There is a study being taken at Moorfields if you are near and interested in taking part, just because hopefully the more that take part in it the closer we will be to understanding this condition.
Take care and hope to see you posting more soon, Sweet X x X
Sweet X x X
-
Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
Annmarie Miles
Welcome! It is always good to say hello to a new member.
The site is full of bits of information. if you don't agree with what anybody posts then just say so!
If you do agree, please say so, too. However brash some of us may seem (and we can all be pretty brash at times) it is always nice to know that somebody shares our point of view.
Andrew
Welcome! It is always good to say hello to a new member.
The site is full of bits of information. if you don't agree with what anybody posts then just say so!
If you do agree, please say so, too. However brash some of us may seem (and we can all be pretty brash at times) it is always nice to know that somebody shares our point of view.
Andrew
Andrew MacLean
-
Alison Fisher
- Forum Stalwart
- Posts: 334
- Joined: Sat 18 Mar 2006 12:56 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: Leicester
-
Louise Pembroke
- Champion
- Posts: 1482
- Joined: Sat 21 Aug 2004 11:34 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
-
james mckinlay
- Chatterbox
- Posts: 211
- Joined: Wed 01 Jun 2005 9:49 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: cumbernauld just outside glasgow
- Contact:
-
John Smith
- Moderator
- Posts: 1941
- Joined: Thu 08 Jan 2004 12:48 am
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: Sidcup, Kent
Hello Annmarie, and welcome to the forum.
Your family tree is certainly interesting as Sweet said... as it matches very closely the sort of pattern that has been spotted in the KC genetics study that we had a presentation on at Saturday's AGM.
That study did show that KC can certainly pass from one generation to the next, but also that the diluting of the gene pool made a transition to the third generation less likely.
Anyway, if you have any questions, just ask.
Your family tree is certainly interesting as Sweet said... as it matches very closely the sort of pattern that has been spotted in the KC genetics study that we had a presentation on at Saturday's AGM.
That study did show that KC can certainly pass from one generation to the next, but also that the diluting of the gene pool made a transition to the third generation less likely.
Anyway, if you have any questions, just ask.
John
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 95 guests