UK Keratoconus Self-Help and Support Association

Woke up this morning stressing again about recently been off sick but have decided to turn this around and see it for what it is. KC is a chronic eye condition and i can't control when i have problems seeing. I know, it took me a little while!

I think that people would be a lot more understanding if they could see the problem or if it was better known. If i was diabetic or had heart problems and was off sick i'm sure that i would get a lot more understanding!

Am feeling slightly better now about the whole thing and have stopped beating myself up over something which i can't control! If i am off sick then so be it, i can't help it or change anything. Also i'm sure that my eyesight wouldn't thank me if i struggled into work and overwore my lenses!!

Sweet X x X

I think thats the appoach you need to take........get your mind set right.....get back on track (Yes it may take months - but whats months when you have years ahead!)

J

Great Stuff! Glad to hear it, and you are right, if you had a heart problem or was diabetic people would understand more. Just remember it is never your fault, you do your best what more can do honestly do.

I could post what your Mum or sister might say, but i am sure you know so I wont

So glad you are feeling happier.

Hey Sweet

A moment of Epiphany!

I remember when I stopped beating myself up over having KC. I had had it for years, and most of the time wore contact lenses that gave me good sight. Some days, however (I have since learned to call these bad eye days, but at that time I lacked this vocabulary) I couldn;t get my lenses in. I'd be unable to drive and would walk about, dimly aware of passing figures.

People who knew that I had some sort of eye problem but who couldn't tell whether I had lenses in or not, got upset if I walked past them without saying hello.

I took to telling people that they had to get into the way of saying hello to me. some are still working on this simple lesson, but we are making progress!

In the meantime I got to accept that I had no control over my condition, and therefore I had no cuplability for it. What a change this simple epiphany brought!

Well done. We all have to come to a point of acceptance for ourselves. Advice from others may be helpful in this process but is not a substitute for it.

Yours aye

Andrew

Claire

You have hit one of many nails on the head here, with this point. And hopefully if nothing else our experiences will teach us all to be much more tolerant and understanding of others. I certainly never dreamt people could be so blinkered when it came to disability however, in some case the truth is they are. Maybe not because they are set on causing upset or ill feeling, just because they are too damn busy to look up and see what is around them.

Hope you are still recovering well.

best wishes

Susan