After a long break, I'm finally around to say hello!
Posted: Fri 18 Oct 2013 2:01 am
It's many years since I have been an active member around the forums!
However the group has never been far away from my mind, as the helpful newsletters they send out are greatly approchiated and fantastic to read!
I'm not exactly sure why I haven't been around for so long, mainly study! Which due to KC seems to have taken me an awful lot longer than planned! However, in the end I achieved what I wanted!
A quick update, if anyone does remember me from a few years back!
I stopes going to the eye hospital for a long period of time, as I did feel what they were offering me was useless so you could say I kind of gave up, shut up and put up. I managed for a few years doing this!
However, I guess as I ended up studying Spanish in the end I soon realised some form of good eye sight would enable my study greatly! So I began to go back to the Manchester Royal Eye Hospital. This place has greatly
Improved over the years, but there is still some way to go. I hate how each time you go you see all different people, I haven't seen the same person for such a long time.
My vision is now at 6/42, and unfortunately correction doesn't seem to work greatly for me. Since the early days of my
Diagnosis I can say that correction and me using it has never been too good.
Contact lenses especially RGP give me a sore eye after 20-30 minutes, it goes very red, blood shot and sore. Which for me, tells me I'd rather not use them, my eyes just won't tolerate!
Glasses have also been tried many times, also with failure. The reason these fail along with RGP without the redness is migraine. The correction brings on awful migraines, which for me I can cope with! What I can't cope with is all the vomiting (sorry to anyone with a weak stomach) being sick caused a range of other health issues because it was more or less every hour or so. Plus a few after I stop using correction.
The Manchester Eye Hospital do agree to pay for Kerasoft lenses, however they have admired they cannot fit there in my eyes! Last year I was sat there for 7 hours, while they were attempting to fit a range of different Kerasoft lenses! All with no success!
They had to request that a really nice woman, called Josie! Came to
Fit these to my eyes, she is from the company Kerasoft! She after many hours managed to fit the lenses, the only problem
Is my eyes keep changing, and Josie can't keep Coming all the time. I do seem
To be able to tolerate these lenses much better, again though with a mold headache appose to a full migraine. The only problem I still have is after 2/3 hours I have fo take them out my eyes have just had enough.
Recently the last 3 months, I've suffered mild
Migraines daily! With no correction, this tells me things are getting harder. Straining is becoming more necessary for me to be able to see. I've spoken to my doctor, and there isn't a great deal he can do, there's not many options being offered to me from the Hospital just yet either.
So most of my current life, is constant migraines and feeling sick, I'm not sure how some of you manage with these migraines daily. I'm on a selection of tablets now, which is all directly linked to the stress and strain of KC.
So that's me, just around now!
It's good to be back posting, I recognise many names! & sorry if I have repeated myself or gone on too long!
Kind regards
James
However the group has never been far away from my mind, as the helpful newsletters they send out are greatly approchiated and fantastic to read!
I'm not exactly sure why I haven't been around for so long, mainly study! Which due to KC seems to have taken me an awful lot longer than planned! However, in the end I achieved what I wanted!
A quick update, if anyone does remember me from a few years back!
I stopes going to the eye hospital for a long period of time, as I did feel what they were offering me was useless so you could say I kind of gave up, shut up and put up. I managed for a few years doing this!
However, I guess as I ended up studying Spanish in the end I soon realised some form of good eye sight would enable my study greatly! So I began to go back to the Manchester Royal Eye Hospital. This place has greatly
Improved over the years, but there is still some way to go. I hate how each time you go you see all different people, I haven't seen the same person for such a long time.
My vision is now at 6/42, and unfortunately correction doesn't seem to work greatly for me. Since the early days of my
Diagnosis I can say that correction and me using it has never been too good.
Contact lenses especially RGP give me a sore eye after 20-30 minutes, it goes very red, blood shot and sore. Which for me, tells me I'd rather not use them, my eyes just won't tolerate!
Glasses have also been tried many times, also with failure. The reason these fail along with RGP without the redness is migraine. The correction brings on awful migraines, which for me I can cope with! What I can't cope with is all the vomiting (sorry to anyone with a weak stomach) being sick caused a range of other health issues because it was more or less every hour or so. Plus a few after I stop using correction.
The Manchester Eye Hospital do agree to pay for Kerasoft lenses, however they have admired they cannot fit there in my eyes! Last year I was sat there for 7 hours, while they were attempting to fit a range of different Kerasoft lenses! All with no success!
They had to request that a really nice woman, called Josie! Came to
Fit these to my eyes, she is from the company Kerasoft! She after many hours managed to fit the lenses, the only problem
Is my eyes keep changing, and Josie can't keep Coming all the time. I do seem
To be able to tolerate these lenses much better, again though with a mold headache appose to a full migraine. The only problem I still have is after 2/3 hours I have fo take them out my eyes have just had enough.
Recently the last 3 months, I've suffered mild
Migraines daily! With no correction, this tells me things are getting harder. Straining is becoming more necessary for me to be able to see. I've spoken to my doctor, and there isn't a great deal he can do, there's not many options being offered to me from the Hospital just yet either.
So most of my current life, is constant migraines and feeling sick, I'm not sure how some of you manage with these migraines daily. I'm on a selection of tablets now, which is all directly linked to the stress and strain of KC.
So that's me, just around now!
It's good to be back posting, I recognise many names! & sorry if I have repeated myself or gone on too long!
Kind regards
James