Quicktopic posts: Nov 2001

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

Scott Waters

Postby Scott Waters » Sun 11 Nov 2001 2:01 pm

Sue, I can agree that night time driving can be hazardous at times. One night recently, when it was raining, I was heading home after a long day and was driving through country lanes. Although there was more than adequate room for two vehicles to pass, the bends and brows were a nightmare. On several occasions I had to slam on the breaks as I literally couldn't see where I was headed - I was lucky to stay on the road!

I constantly read number plates as I'm driving, as the light fades or visibility reduces I read more and more of them! I was told that the legal limit for driving is to read a regular numberplate at a distance of 20 metres. This I judge and test myself for as I leave the house in the morning, as I approach the car during the day, as I walk along the street, when I park in car parks and on every road as I'm driving all over East Anglia.

The new lights are confusing; my concern is that one day one of those new blue lights will actually be the police and they've pulled me over because my driving has been erratic. If they ask me to sign on the dotted line I hope they don't notice the squint and my close scrutiny of the form .......... will they notice that I cannot see where they want me to sign!?!
For me, the answer will have to be to stay away at night if I'm far from home and the weather's particularly bad. Rather that than risk injury to myself or other innocent road users.

Scott
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< replied-to message removed by QT >

justine

Postby justine » Mon 12 Nov 2001 1:51 pm

hello everyone, i am aware that the group is planning a walk in september, but there is also a walk being organised world wide on february 9th there is going to be one in the uk and if anyone is interested in joining this walk then please email me at justinesmall@aol.com

Tony Stigle (web person)

Postby Tony Stigle (web person) » Mon 12 Nov 2001 4:09 pm

39 Visitors today!.. Thats a new record folks!
Do you suffer from "CONCTTGP" see the glossary page..
Glad to see the site active.. Tony

John Smith

Postby John Smith » Mon 12 Nov 2001 7:51 pm

A friend of mine at work also has KC. She's not going to Moorfields, but (I think) the London College of Optometrists or somthing.

The odd thing is that she's been offerred a transplant using a pig's cornea. Has anyone else come across this?

Dave Hamblett

Postby Dave Hamblett » Tue 13 Nov 2001 11:25 am

Im still waiting to get my contact lens appointment at leicester royal which is another 2 months yet. In the time im still wearing my glasses and night driving is a problem. do contact lenses help with this? are there any hospitals in the midlands where i might be seen private as im really not happy driving for much longer at night.

Janet Manning

Postby Janet Manning » Tue 13 Nov 2001 5:34 pm

> From: QT - Dave Hamblett <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
> Reply-To: QT topic <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
> Date: Tue, 13 Nov 2001 10:25:33 -0600 (CST)
> To: janetmanning@lineone.net
> Subject: Keratoconus
>
>
< replied-to message removed by QT >

John Smith

Postby John Smith » Tue 13 Nov 2001 5:55 pm

Dave,

Depending on the state of your KC, then RGP lenses could well help in your nighttime driving. They've enabled me to drive for the last 3 years, when I wouldn't have been legal with glasses.

Rather than look for a private hospital, why not search for a decent optician that could help you. Get the yellow pages out and ring round the opticians in your area; start with the "smaller" ones - the two-branch optician I see have been excellent getting "Rose K" RGP lenses for my KC, years after Boots sent me to hospital... the consultant took one look at me and told me to find a better optician!

Best of luck

Emma

Postby Emma » Tue 13 Nov 2001 6:06 pm

Hi Dave,

Where abouts in the Midlands do you live? I'm from Hereford and was diagnosed with KC in the summer, and I see a specialist in Hereford. If you live near there and want his name/number then email me (emmafletch@yahoo.co.uk).

Emma

Dave Hamblett

Postby Dave Hamblett » Wed 14 Nov 2001 9:54 am

Thanks for the replies folks.
I think ill try johns advice and try a couple of the small opticians in town first.
emma.. i live near to coventry so hereford could be a bit of a trip but thanks for the help.
Dave

Ian Pearson

Postby Ian Pearson » Thu 15 Nov 2001 4:00 am

Dave try Greys in Kenilworth when a hospital optician is in attendance


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