Quicktopic posts: May 2001
Moderators: Anne Klepacz, John Smith, Sweet
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justine
hello every body, i have been reading all your messages by email, they are pretty good, alot of talk going on about those new contacts, well 15 mnths post graft and still suffering rejection problems, back on pred forte every 2 hours again, getting fed up with it all now, the dr is talking about a 4th graft, not to sure about that
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ELIZABETH MAIR
To Martin Alexander,
Pleased to hear that somebody else from Scotland has KC.I hope your recovery continues to go well.
Do you attend Gartnavel Hospital or do you go to Inverness?
I live in E.Kilbride, but I worked in Mallaig for 4 years.
Tell other people about the website.
My address is on "meet the locals" site.
Pleased to hear that somebody else from Scotland has KC.I hope your recovery continues to go well.
Do you attend Gartnavel Hospital or do you go to Inverness?
I live in E.Kilbride, but I worked in Mallaig for 4 years.
Tell other people about the website.
My address is on "meet the locals" site.
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Tony Stigle
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Sue Ingram
Hi everyone,
Picnic brilliant! Shame you all missed it; lotsa sunshine, strawberries and cream, Chardonnay (not!), jaffa cakes, wonderful ice-cream and great plants (or a kevlar helmet if that is your choice, Tony!) to buy for the garden - what more could anyone want? Have not been to Rochester before and it is lovely - very Dickensian. Castle grounds were a perfect venue - also perfect for children - well done Tony and Mandy. Mandy, you beat me in posting a message! See ya all (& the family) at the next one.
SUE
Picnic brilliant! Shame you all missed it; lotsa sunshine, strawberries and cream, Chardonnay (not!), jaffa cakes, wonderful ice-cream and great plants (or a kevlar helmet if that is your choice, Tony!) to buy for the garden - what more could anyone want? Have not been to Rochester before and it is lovely - very Dickensian. Castle grounds were a perfect venue - also perfect for children - well done Tony and Mandy. Mandy, you beat me in posting a message! See ya all (& the family) at the next one.
SUE
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alan from amsterdam
Hi everyone,
I know this site is primarily for people with KC in the U.K., but it's great to find a discussion group with so many scleral lens wearers. The U.S. kcenter site seems to regard sclerals as somewhat exotic. I was fortunate enough to be referred to the Dutch counterpart of Ken Pullum after diagnosis last October, and I'm doing great with my 2 barbie doll soup plates. However, I'm experiencing protein buildup behind the lenses and dry, hot, itchy eyelids. I seem to hit a barrier after 11 hours of wear and I'm running out of options. Any suggestions would be welcome.
I know this site is primarily for people with KC in the U.K., but it's great to find a discussion group with so many scleral lens wearers. The U.S. kcenter site seems to regard sclerals as somewhat exotic. I was fortunate enough to be referred to the Dutch counterpart of Ken Pullum after diagnosis last October, and I'm doing great with my 2 barbie doll soup plates. However, I'm experiencing protein buildup behind the lenses and dry, hot, itchy eyelids. I seem to hit a barrier after 11 hours of wear and I'm running out of options. Any suggestions would be welcome.
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Steve
Intrigued to hear that people are wearing both a scleral and an rgp. Isn't this like wearing a slipper on one foot and a hikeing boot on the other?! Why not not wear one scleral and one soft lens if only one eye is effected by KC?
Is this because of peoples concern over the lack of oxygen entering the eye via a soft lens?
Is this because of peoples concern over the lack of oxygen entering the eye via a soft lens?
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elaine -----dover
Dear Alan in Holland
I am amazed that you are able to wear your lenses for 11 hours!I'm blurring over after 4.I have found using different cleaning solutions help with protien problems,Miraflow seems to work well for me.It also helps with insertion if you don't rinse it all off before applying saline(a well known Ken tip!).And that's a thought a Dutch version of Ken!A clog wearing opera singer perhaps!
Have you had grafts?
I am amazed that you are able to wear your lenses for 11 hours!I'm blurring over after 4.I have found using different cleaning solutions help with protien problems,Miraflow seems to work well for me.It also helps with insertion if you don't rinse it all off before applying saline(a well known Ken tip!).And that's a thought a Dutch version of Ken!A clog wearing opera singer perhaps!
Have you had grafts?
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elaine -----dover
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elaine -----dover
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Sue Ingram
Hi everyone,
Just been looking at a website called Center for Keratoconus in the US - http://www.kcenter.org. Don't know whether any of you have been on it but it is definitely worth a look. Got a good Discussion Page(just like ours) and quite a lot of good up to the minute info - even Ken is mentioned! Seems to be a lot more people in the US with it (but then there are more people in the US!).
SUE
Just been looking at a website called Center for Keratoconus in the US - http://www.kcenter.org. Don't know whether any of you have been on it but it is definitely worth a look. Got a good Discussion Page(just like ours) and quite a lot of good up to the minute info - even Ken is mentioned! Seems to be a lot more people in the US with it (but then there are more people in the US!).
SUE
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