Dave: goodness, what a story!! Thank goodness you found out in
time what was going on!
I'm wondering, actually, if there is some form of computer code
where the code for "KC" and the code for "Cataract" are quite
similar - because I once found out I'd been put on my GP's
computer system as having a cataract, which the GP thought was a miscoding for a trip to Moorfields for a KC-related checkup. [I don't have a cataract - the closest I've come to a cataract is
riding a horse with one! I never knew animals other than humans got cataracts; I wonder if they can get KC??)
Rosemary
--
Rosemary F. Johnson
Quicktopic posts: Jan 2004
Moderators: Anne Klepacz, John Smith, Sweet
-
umbilica@umbilical.demon.
Philip said:
Janet Manning posted a note late December regarding Moorfields
becoming a foundation hospital. I think for all those patients
who attend Moorfields or any of there clinics it's worth
registering [as a member]
It was me, actually, who raised that subject. I've now filled
in the form and posted it back to them - including ticking the
box asking for more info on the elected positions. I haven't
heard anything back in return - has anyone?
Rosemary
--
Rosemary F. Johnson
Janet Manning posted a note late December regarding Moorfields
becoming a foundation hospital. I think for all those patients
who attend Moorfields or any of there clinics it's worth
registering [as a member]
It was me, actually, who raised that subject. I've now filled
in the form and posted it back to them - including ticking the
box asking for more info on the elected positions. I haven't
heard anything back in return - has anyone?
Rosemary
--
Rosemary F. Johnson
-
Paul Bines
On the subject of diet - since a bout of the lurgi over New Year, I've not been drinking coffee, and not much tea either - and I've found my eyes are less itchy than usual. I know that caffeine can cause dehydration, could this be the reason?
Last week, I did drink some diet Coke, and the next morning, dry eyes. Has anyone else had any experinece of diet affecting vision (in a KC relevant sense - obviously I know that diabetics can have visual problems linked to their condition)
Au Res.,
Paul (who, if the stories I've read today about some 'specialists' are anything to go by, has been extremely lucky in finding a consultant who actually knows about KC!)
http://www.efbenson.co.uk/
http://www.paulbines.co.uk
http://www.convergent-diversity.co.uk/
Last week, I did drink some diet Coke, and the next morning, dry eyes. Has anyone else had any experinece of diet affecting vision (in a KC relevant sense - obviously I know that diabetics can have visual problems linked to their condition)
Au Res.,
Paul (who, if the stories I've read today about some 'specialists' are anything to go by, has been extremely lucky in finding a consultant who actually knows about KC!)
http://www.efbenson.co.uk/
http://www.paulbines.co.uk
http://www.convergent-diversity.co.uk/
-
John Smith
Just a couple of points to continue the discussions at the moment:
My stitch (singular) will be removed soon, hopefully. It's now been almost exactly 2 years since my graft, and I was told that the stitch could be removed at any point from 1 to 3 years post-op. There's a limit because you don't want the stitch to start dissolving and floating around inside your eye!
As for sclerals, mine was fitted using the "Ken Pullum" method. It's really quite straightforward, but I suspect that your name has to be Ken to pull it off:
1. Look at the patient.
2. Pick out the appropriately sized scleral.
3. Insert it.
4. Examine under slit lamp, and then either pick out a different size, or sit back and enjoy the applause!
I know that's all very frivolous, but when you're dealing with people who really know what they're doing, I'm sure it really comes naturally after a while!
John
My stitch (singular) will be removed soon, hopefully. It's now been almost exactly 2 years since my graft, and I was told that the stitch could be removed at any point from 1 to 3 years post-op. There's a limit because you don't want the stitch to start dissolving and floating around inside your eye!
As for sclerals, mine was fitted using the "Ken Pullum" method. It's really quite straightforward, but I suspect that your name has to be Ken to pull it off:
1. Look at the patient.
2. Pick out the appropriately sized scleral.
3. Insert it.
4. Examine under slit lamp, and then either pick out a different size, or sit back and enjoy the applause!
I know that's all very frivolous, but when you're dealing with people who really know what they're doing, I'm sure it really comes naturally after a while!
John
-
John Smith (Webmaster)
The countdown has started. This is the first in a series of posts to let you know about the new KC Group forum.
Work on the new bulletin board to replace this quicktopic is nearing completion. We'll then have a general discussion forum as a replacement, where everybody can post messages and see the replies. Rather than being limited to a single long topic (this is the 2,439th posting on this topic!), we will be able to have a collection of topics, and talk about them all in any particular order - replies for each message will be listed with the original.
Anyone can come along and read all the messages, just as they can now. The first major change though is that you will have to register with the forum before you can post any new messages. This protects us from spammers, and ensures that we can recognise each other more readily. ("John from Sidcup", "John S" and "John" may all be the same poster on QT at the moment.)
When you register, please use your first name and surname, so that we can cross-reference the users of the forum against the list of members of the Group. You will automatically be sent an email, which you will need to respond to before you will be allowed to post. In time, we plan to make additional content on the main web site available to Group members.
Once registered, you can get the forum to remember you so that you will not have to log in every time you visit.
I hope to make the new forum available in "playpen" mode next week, so everybody can practice using it for a little while before we make the switch.
Not long now!
John.
Work on the new bulletin board to replace this quicktopic is nearing completion. We'll then have a general discussion forum as a replacement, where everybody can post messages and see the replies. Rather than being limited to a single long topic (this is the 2,439th posting on this topic!), we will be able to have a collection of topics, and talk about them all in any particular order - replies for each message will be listed with the original.
Anyone can come along and read all the messages, just as they can now. The first major change though is that you will have to register with the forum before you can post any new messages. This protects us from spammers, and ensures that we can recognise each other more readily. ("John from Sidcup", "John S" and "John" may all be the same poster on QT at the moment.)
When you register, please use your first name and surname, so that we can cross-reference the users of the forum against the list of members of the Group. You will automatically be sent an email, which you will need to respond to before you will be allowed to post. In time, we plan to make additional content on the main web site available to Group members.
Once registered, you can get the forum to remember you so that you will not have to log in every time you visit.
I hope to make the new forum available in "playpen" mode next week, so everybody can practice using it for a little while before we make the switch.
Not long now!
John.
-
Jane Webb
Dave in Wales
I attend Southend hospital and although I'm pretty satisfied with my assessments and treatments, the practice nurse who gave me my operation date told me all sorts of 'porky pies' the main one being:
I asked if the stitches had to be taken out or would they dissolve and she told me they would dissolve. When I spoke to the consultant minutes before my op, he said they would be taken out whilst I was awake some 12-18 months later. I promptly burst into tears saying it was a great fear of mine but he did reassure me and said that if I really found it an issue, I could have a general anaesthetic.
I'll cross that particular hurdle next year!!
Jane Webb
< replied-to message removed by QT >
I attend Southend hospital and although I'm pretty satisfied with my assessments and treatments, the practice nurse who gave me my operation date told me all sorts of 'porky pies' the main one being:
I asked if the stitches had to be taken out or would they dissolve and she told me they would dissolve. When I spoke to the consultant minutes before my op, he said they would be taken out whilst I was awake some 12-18 months later. I promptly burst into tears saying it was a great fear of mine but he did reassure me and said that if I really found it an issue, I could have a general anaesthetic.
I'll cross that particular hurdle next year!!
Jane Webb
< replied-to message removed by QT >
-
Jane Webb
-
jay76
-
Rob Armstrong
Hi Jane,
Despite being otherwise very happy with the service at my local hospital, I too was given incorrect or incomplete information on the run up to my graft surgery. I was repeatedly told by the nurses that it would be dissolving stitches, even as I woke up following the op! Luckily I managed to get an appointment about a month prior to ask any questions. Thats when I found out the truth. The appointment was intended to allay any fears I had, I came out feeling more worried than when I went in!
Believe it or not, having the stitches out really is quick and painless, remember you've got no feeling in your grafted cornea anyway. They even did it live on BBC 1 one morning a few months back, although it wasn't shown in detail. It wasn't operating theatre and gowns stuff, just the patient sitting in a chair while the doctor casually explained what she was doing and a bit of backround info about KC.
I think thats the only time I have ever heard KC mentioned on TV.
Rob.
Despite being otherwise very happy with the service at my local hospital, I too was given incorrect or incomplete information on the run up to my graft surgery. I was repeatedly told by the nurses that it would be dissolving stitches, even as I woke up following the op! Luckily I managed to get an appointment about a month prior to ask any questions. Thats when I found out the truth. The appointment was intended to allay any fears I had, I came out feeling more worried than when I went in!
Believe it or not, having the stitches out really is quick and painless, remember you've got no feeling in your grafted cornea anyway. They even did it live on BBC 1 one morning a few months back, although it wasn't shown in detail. It wasn't operating theatre and gowns stuff, just the patient sitting in a chair while the doctor casually explained what she was doing and a bit of backround info about KC.
I think thats the only time I have ever heard KC mentioned on TV.
Rob.
-
Dave D
Some interesting posts on grafts..giving us all some food for thought even if it is in the long term future for some of us..hopefully!
I have a slight concern with my latest sight problem. My usful periphial vision has reduced in recent times with and without my lenses.
Thisis now to read I actually have to follow the line and move my eyes a word at a time as I can't interpret the word/image without it being in my central field of vision..it is difficult to explain but I have had me retina all checked at Sunderland Eye Infimary who say it is fine but I have some viterous detachment.
Concerned not what might be causing this most aveneues have been examined...doc sending me for a ct brian scan soon to verify that al is well up top!!
Surely this is'nt a sign of KC progression to develop field of vision 'blind spots'?
Cheers guys,
Dave.
I have a slight concern with my latest sight problem. My usful periphial vision has reduced in recent times with and without my lenses.
Thisis now to read I actually have to follow the line and move my eyes a word at a time as I can't interpret the word/image without it being in my central field of vision..it is difficult to explain but I have had me retina all checked at Sunderland Eye Infimary who say it is fine but I have some viterous detachment.
Concerned not what might be causing this most aveneues have been examined...doc sending me for a ct brian scan soon to verify that al is well up top!!
Surely this is'nt a sign of KC progression to develop field of vision 'blind spots'?
Cheers guys,
Dave.
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 50 guests