Quicktopic posts: Oct 2003

[KateF]

WAITING FOR KEN !!
to Andrew B - dont stress about waiting for Ken, worth every minute
Kate n Dale

[Rosie]

Thanks Kate,

I shall do. I have only recently found the group and it has been such a help to read all the postings, it has reassured me no end.

Thank you
Rosie

[mark lockhart]

hi just wondering if anyone can tell me how to go about going private and how much could this cost as i am having to wait more than 8 months for my first appiontment with a specialist and my eyes seem to be getting worse thanks

[Brian Taylor]

Hi Mark

First question is what part of the country are you in?
Try Moorfields hospital website, they seem to be the leaders in the UK.
Brian

< replied-to message removed by QT >

[mark lockhart]

hi brian
thanks for that and i am in glenrothes fife
mark

[Brian Taylor]

Can anyone advise if it ok to have the flu jab after having a corneal transplant. On the American Keratoconus forum site several people report being advised not to have the flu jab after transplant. Im due a jab this week so am keen to know.

Brian. Manchester

[Andrew Thomas MacLean]

Hi Mark

Would you be interested in news about the Scottish Support Group. Elizabeth Mair is working hard to set one up with possible meetings in Glasgow. ----------
>From: QT - mark lockhart <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
>To: QT topic subscribers <qtopic+subs@quicktopic.com>
>Subject: Keratoconus
>Date: Mon, Oct 27, 2003, 7:26 pm
>

< replied-to message removed by QT >

[Jonathan]

Hi, I was just wondering what the situation is in the UK......I currently attend my local NHS hospital in Belfast but I think they only deal with RGP lenses for KC....do I have to go private if I want to try different lenses??

Thanks!

[Andrew Thomas MacLean]

Jonathan

Hope you are managing to get along with your RGP lenses, but if the time comes when you can't tolerate them any more your hospital ought to have a range of other options they can try. You'll see lots of stuff on this site about scleral lenses (sometimes called Heptic Lenses). They are good, and so are a number of other options including a kind of water filled lens that can be fitted under a hard lens and a hard lens with a soft skirt that seems to hug the eye.

I think tht your hodpital will probably be in the best position to advise you on what's best for your case. I wore RGP's for 20 years before my eyes stopped tolerating them, and then after trying a number of options they fitted a scleral (away just now for fine tuning).

All the best.

Andrew
----------
>From: QT - Jonathan <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
>To: QT topic subscribers <qtopic+subs@quicktopic.com>
>Subject: Keratoconus
>Date: Tue, Oct 28, 2003, 3:53 pm
>

< replied-to message removed by QT >

[listener@umbilical.demon.]

Brian said:
Can anyone advise if it ok to have the flu jab after having a
corneal transplant.


Brian, how long ago did you have the transplant? - was it very
recently?

If your transplant was not long ago, and/or you have had a
rejection episode, and are still taking immunosuppressant
medication (eyedrops, probably, to try to prevent the new cornea from rejecting), then I should think it may not be a good idea
to have vaccinations. But if your op was some time ago and
you're off the medications now, I'd have thought it was OK (and
probably better for your eyes than getting flu, lots of
coughing, streaming eyes and nose, etc).

But if you're in any doubt, please either ask at your eye
hospital, or tell the doctor or nurse about your transplant when you go for the flu jab. If you're taking any meds, I suggest
you take the bottle/packet along to show him/her and ask if it
is wise to go ahead.

Rosemary

--
Rosemary F. Johnson