2008 Diary of Crosslinking (cxl/ccl) treatment!
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- cclman
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- Keratoconus: Yes, I have KC
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
No I dont know what was in the drops. A chemical that smelt of eggs. In Eastern europe the Dr's do not really offer the patient much explanation partly due to language and partly due to a differnt culture where during Socialism DR's where seen as gods not to be questioned. In a funny way its not un-like the UK nowadays. Old habits die hard as we say and my experience of eastern europe may be relevant for another forum rather than this one. Although I would love to tell you about it as it is interesting.
Mr Magoo "did you say turn left NO that's right aghhhhhhhhhhhhhhhhh!, Splash"
- pepepepe
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
I know what you mean ! thanks for your input on it ccl man
- cclman
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
Back after some time in the ccl wilderness!! I keep getting headaches every day perhaps because my eyes are changing??? I go back in Feb for more checks and maybe another change of glasses. what a pain the whole thing has been !!!!



Mr Magoo "did you say turn left NO that's right aghhhhhhhhhhhhhhhhh!, Splash"
- pepepepe
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- Keratoconus: Yes, I have KC
Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
CCLman good to hear from you, quite simply - with KC there are no quickfix's
Just follow your Dr's orders and you will be ok
I hope your well otherwise !
Just follow your Dr's orders and you will be ok
I hope your well otherwise !
- rosemary johnson
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
Hi cclman, and good to hear from you again.
SOrry to hear about the headaches. Yes, it could be because your eyes an dhence vision are vhanging and your brain is finding it a strain to interpret what it sees.
It could also be that the two eyes are changing at different rates or in different directions and your visual cortex (? - is that right?) is finding it a headache to match up the two different world views.
Hope things get sorted out for you.
Rosemary
SOrry to hear about the headaches. Yes, it could be because your eyes an dhence vision are vhanging and your brain is finding it a strain to interpret what it sees.
It could also be that the two eyes are changing at different rates or in different directions and your visual cortex (? - is that right?) is finding it a headache to match up the two different world views.
Hope things get sorted out for you.
Rosemary
- Andrew MacLean
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
cclman
Yes it is good to see you again, but your news is a bit grobby.
Stay in touch with your ophthalmologist. Make sure that you know what you want to ask each time you go for a consultation, and make sure that you get answers that you understand each time. Tell your ophthalmologist that you are having headaches and ask whether this is normal.
What Rosemary says does make sense, but it does no harm to underline for your ophthalmologist just how difficult this time is proving for you.
All the best
Andrew
Yes it is good to see you again, but your news is a bit grobby.
Stay in touch with your ophthalmologist. Make sure that you know what you want to ask each time you go for a consultation, and make sure that you get answers that you understand each time. Tell your ophthalmologist that you are having headaches and ask whether this is normal.
What Rosemary says does make sense, but it does no harm to underline for your ophthalmologist just how difficult this time is proving for you.
All the best
Andrew
Andrew MacLean
- cclman
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- Location: Europe- but from the UK
Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
Andrew MacLean wrote:cclman
Yes it is good to see you again, but your news is a bit grobby.
Stay in touch with your ophthalmologist. Make sure that you know what you want to ask each time you go for a consultation, and make sure that you get answers that you understand each time. Tell your ophthalmologist that you are having headaches and ask whether this is normal.
What Rosemary says does make sense, but it does no harm to underline for your ophthalmologist just how difficult this time is proving for you.
All the best
Andrew
Whats "grobby" is that Scottish?? My eye Dr is Czech so its not see easy!! but I'll tell him about the headaches it may well be because my eyes are changing I will be at the 6 month marker In March. Fingers crossed but I'll probably need new glasses again and may get one intact in the bad right eye.


Mr Magoo "did you say turn left NO that's right aghhhhhhhhhhhhhhhhh!, Splash"
- Andrew MacLean
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!

Amdrew
Andrew MacLean
- cclman
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
Andrew MacLean wrote::D Yes it is a delightful Scottish adjective; it means dolorous.
Amdrew
What's Dolorous???????? and I'm a teacher !!!!



Mr Magoo "did you say turn left NO that's right aghhhhhhhhhhhhhhhhh!, Splash"
- Andrew MacLean
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Re: 2008 Diary of Crosslinking (cxl/ccl) treatment!
Dolorous from Latin dolorosus, from Latin dolor ‘pain, grief.’
Adjective: Provoking pain or grief in another.
I am sure that you remember the use of the word in Arthurian Legend?
Andrew
Adjective: Provoking pain or grief in another.
I am sure that you remember the use of the word in Arthurian Legend?
Andrew
Andrew MacLean
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