Quicktopic posts: Mar 2003

[EAMONN GILLESPIE]

Hi Sean,
Living with KC is a daily thing. Some days are good and other days not so good. But the deciding factor is the day you want to live by. It is always good to look up a few quotes such as the following: live to day is if it were your last (to me this says whatever life throws at me today i can handle it and i will be happy handling it).
hope this helps
Eamonn

>From: QT - SEAN PULLEN
>Reply-To: QT topic
>To: wellworths2000@hotmail.com
>Subject: Keratoconus
>Date: 6 Mar 2003 19:55:37 -0000
>

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< replied-to message removed by QT >

[Helen Royston]

Thnaks Sue (1501) I appreciate your reply, its good to know that some-one knows that I need to wear contact lenses to really help me see and not just wear them for vanity reasons. I wore glasses for years before you see and people couldnt understand why I had to change, and trying to explain KC to a non sufferer is like beating your head against a brick wall.

[Helen Royston]

I have just been reading some of the messages put on this site and wondered if you could help on some things, what are scleral and RGP lenses, dont want to sound thick but I dont know what they are, I wear the gas permeable lenses and have done right from the start, are these similar or the same things.Ta Helen

[Ash]

Hi everyone!! I am Asian and have been diagnosed with KC for nearly four years now. I have been told that it develops quite rapidly within Asians, and I have had an Acute Hydrop in my left eye. I have had it for nearly two months now and I was wondering if anyone else had a Hydrop and could tell more about it and if and when it cleared up for them. Also I am getting headaches because I think my right eye, which has an RGP lens in it is doing all the work, I was wondering if anyone has had this problem. Thanks Ash.

[Louise Pembroke]

Thanks Janet, I know you're right, it is the relaxation thing but I just can't face it now, besides, 3 letters and only5-6 hrs wear, I have to weigh up the stress and the gains and right now there are not enough gains

[Louise Pembroke]

Hi Ash, I didn't realise Asians deteriorated more rapidly, I'm white and mine very rapidly deteriorated between the ages of 16-18, I fitted the criteria for surgery at 18. Before both my grafts I had acute hydrops in both my eyes,one was very severe, close to perforation and the second fairly small. The first took about 3 months to heal, the second I think about a month. They gave me diuretics for a couple of days with both, but otherwise just monitored it. The first left scarring, the second did not. As for your headaches, the difference in my sight between my eyes is very steep, I wear a lens in just the one eye. I don't have headaches but I can get double vision in the 'bad'eye, or an 'aura'without the headache. It might not be lens related for you but it's worth mentioning to your eye doc.

[Ash]

Thanx louise for that info!! can u tell me a bit more about ur grafts, because the specialist has indicated that i mite require the graft in the left eye soon depending on whether my vision is ok once i start wearin the lens again, also how long before u started to wear ur lens again after the hydrop. do u still require lens after the grafts?? what age are you right now?? because im 23 and i thought that the condition would not worsen till i was alot older!!! Thanx Ash

[John Smith]

Hello Ash,

After my graft last year I was certainly getting headaches, sometimes quite bad; and they gradually lessenned over 6-9 months. They finally stopped being regular once I could wear a spectacle lens in front of the grafted eye.

Basically, I was told that the headaches were due to my eyes being "out of balance" with each other. Let your optician/consultant know, and they may be able to do something about it.

Best of luck,

John

[John Smith]

> From: Helen Royston Time: 04:50 PM
> I have just been reading some of the messages put on this site
> and wondered if you could help on some things, what are scleral
> and RGP lenses, dont want to sound thick but I dont know what
> they are, I wear the gas permeable lenses and have done right
> from the start, are these similar or the same things.Ta Helen

Hi Helen,

Don't worry that you don't know all the details - none of us did when we first came here. RGP (rigid gas permeable) is just the new name for the lenses you've been wearing. Scleral lenses are huge in comparison (take a look at the excellent http://www.sclerals.com and click on the "what" link on the left for pictures). Because sclerals sit on the white of the eye, and bridge the sensitive cornea, they don't hurt as much, and you can't get dust and grit beneath them.

John

[Sue Ingram]

Hi Ash (1508), Welcome to the site. Sorry you are experiencing problems at present. Looks like people are helping you, though. Just a thought, have your visited the KC Group website at http://www.keratoconus-group.org.uk? There is information on there regarding both hydrops and grafts. I understand that you will still also require personal experiences of both of these so keep asking!

The other option to rgp corneal lenses or a graft is scleral lenses so make sure you mention these to you optician and get them eliminated before having to go for the graft. I believe most people do require a lens after a graft and often this can be a scleral lens anyway. Again, there is info on sclerals on the website.

Good luck and keep us up-dated with your progress. SUE