Hello Dal,
Congratulations on your interview success. Don't worry too much about the double-vision. That's certainly one of the crosses we have to bear. The double-vision will certainly reduce when you get fitted with contact lenses.
Best of luck, and Merry Christmas to everyone.
John
----- Original Message -----
> From: Dal Time: 08:42 PM
> In the meantime am trying to read up on stuff for my course but
> am finding it very difficult, as often am seeint the letters
> double, pls tell me that this is normal!
Quicktopic posts: Dec 2002
Moderators: Anne Klepacz, John Smith, Sweet
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harpomatrix@yahoo.co.uk
Hi again
Its day 22 since I've had acute hydrops. It still seems as though no progress has come about. This is in terms of vision and in terms of the way my cornea looks. Its still white and still bulged.
What kind of improvements am I looking for? What will be the first signs of improvement? It seems as though I will be one of the cases in which the acute hydrops takes a long while to heal.
I've got an appointment on Thursday morning just to check progress. I'll let you know the outcome if any.
Its day 22 since I've had acute hydrops. It still seems as though no progress has come about. This is in terms of vision and in terms of the way my cornea looks. Its still white and still bulged.
What kind of improvements am I looking for? What will be the first signs of improvement? It seems as though I will be one of the cases in which the acute hydrops takes a long while to heal.
I've got an appointment on Thursday morning just to check progress. I'll let you know the outcome if any.
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Kate
Hi Harpo
I am in day 39 of my acute hydrops and I know exactly how you are feeling! All I can say is that although my vision is no better, my eye is no longer as sore, and it isn't so light sensitive. In addition to this, the clouding seems to be reducing and apparently you can even see some brown of the iris! So, I am feeling a bit mire positive, it'a just that everything seems to take twice as long as it should! What drops ar you using? Let me know how your check up goes - mine is on Monday.
I am in day 39 of my acute hydrops and I know exactly how you are feeling! All I can say is that although my vision is no better, my eye is no longer as sore, and it isn't so light sensitive. In addition to this, the clouding seems to be reducing and apparently you can even see some brown of the iris! So, I am feeling a bit mire positive, it'a just that everything seems to take twice as long as it should! What drops ar you using? Let me know how your check up goes - mine is on Monday.
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Sue Ingram
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harpomatrix@yahoo.co.uk
Hi Kate
Seems as though as we're going through the same annoying problem.
Day 39? thats like 5 weeks and 4 days. I'm on 3 weeks and 1 day so far. (sorry just thinking out loud)
I was told by the doc that there were no eyedrops or anything that i could do to help it along. However he gave me "Alcon Maxidex" (Dexamethasone 0.1%) eye drops for my eye with acute hydrops. But I've had these drops before for when i had an infection or something a few years ago. So i don't think these drops are used to help my condition.
It sounds as though ur on drops? What are they and are they used to help the acute hydrops?
Seems as though as we're going through the same annoying problem.
Day 39? thats like 5 weeks and 4 days. I'm on 3 weeks and 1 day so far. (sorry just thinking out loud)
I was told by the doc that there were no eyedrops or anything that i could do to help it along. However he gave me "Alcon Maxidex" (Dexamethasone 0.1%) eye drops for my eye with acute hydrops. But I've had these drops before for when i had an infection or something a few years ago. So i don't think these drops are used to help my condition.
It sounds as though ur on drops? What are they and are they used to help the acute hydrops?
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freddy
Dal
It is great to hear of another teacher KCer! These are tough times for lots of public services so it is great to hear your enthusiasm. I have to say I love my teaching job exhausting though it may be!
Also I think it is vital that schools have adults with their share of disabilities and disorders. I know I am now MUCH more aware of the needs of young people with disabilities etc since my own KC, graft and Thyroid problems.
By the by to all on the link have a peaceful and enjoyable holiday season. I have not posted for a while but I still lurk. I am in fine health and my graft of 18months is clear and very stable. As an American KCer wrote to me two years ago "Remember you are lucky, no one else sees Christmas lights quite as KCers do!" Enjoy the sparkles and halos!
Freddy
It is great to hear of another teacher KCer! These are tough times for lots of public services so it is great to hear your enthusiasm. I have to say I love my teaching job exhausting though it may be!
Also I think it is vital that schools have adults with their share of disabilities and disorders. I know I am now MUCH more aware of the needs of young people with disabilities etc since my own KC, graft and Thyroid problems.
By the by to all on the link have a peaceful and enjoyable holiday season. I have not posted for a while but I still lurk. I am in fine health and my graft of 18months is clear and very stable. As an American KCer wrote to me two years ago "Remember you are lucky, no one else sees Christmas lights quite as KCers do!" Enjoy the sparkles and halos!
Freddy
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Amanda Stigle
Kate and Harpo. Re: hydrops
The hydrops will clear, as far as I am aware there is no fast option that can speed the healing process along. Don't forget that the length of time it takes to clear does vary. But you should notice an improvement over the next few weeks. It is very frustrating, but you have no option other than to wait and "see".(Excuse the pun!)Thinking of you both at this frustrating and uncertain time for you. The only crum of comfort is that there are plenty of us out here who can empathise with what you are going through, and at least you know that there is an end in sight. Even though it seems quite distant at the moment.
The hydrops will clear, as far as I am aware there is no fast option that can speed the healing process along. Don't forget that the length of time it takes to clear does vary. But you should notice an improvement over the next few weeks. It is very frustrating, but you have no option other than to wait and "see".(Excuse the pun!)Thinking of you both at this frustrating and uncertain time for you. The only crum of comfort is that there are plenty of us out here who can empathise with what you are going through, and at least you know that there is an end in sight. Even though it seems quite distant at the moment.
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Robert Smith
Hi everyone.
After a couple of false starts I finally got to the hospital last week for a much delayed check-up. Pleased to report that everything is fine and well with the graft. Sight in the grafted eye is pretty good and I have almost as good vision as in my good eye (unaffected with KC) with glasses and new lenses for glasses ordered. I am now off all the drops - which is a great relief!
Incidentally I must say that I very much liked the Christmas decorations on the site.
Seasons greetings and a Happy New Year to all.
Robert
After a couple of false starts I finally got to the hospital last week for a much delayed check-up. Pleased to report that everything is fine and well with the graft. Sight in the grafted eye is pretty good and I have almost as good vision as in my good eye (unaffected with KC) with glasses and new lenses for glasses ordered. I am now off all the drops - which is a great relief!
Incidentally I must say that I very much liked the Christmas decorations on the site.
Seasons greetings and a Happy New Year to all.
Robert
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Tony Coan
Hi my name is Tony Coan, I have had KC for many years now tried Scleral lenses without success so am due to have a corneal graft at Moorfields in February.
Apparently Mr Allen will try a partial graft where they leave a layer of cells which minimises rejection. I would love to hear from anyone who has had surgery with comments and experiences both good and bad, my e-mail address is tony.coan@ntlworld.com
Thanks and regards
Tony
Apparently Mr Allen will try a partial graft where they leave a layer of cells which minimises rejection. I would love to hear from anyone who has had surgery with comments and experiences both good and bad, my e-mail address is tony.coan@ntlworld.com
Thanks and regards
Tony
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Susan Mason
Dear All
Not sure if this is the way to do things, anyway here goes! (I need to talk a few things through with anyone who may have some answers or similar experiences)My story is as follows, in March 97 a month before my 29th birthday I gave birth to my little boy. I had worn glasses for approx 10years and had used soft contacts for vanity purposes for about 8 years (very infrequent wearing). During school my eyes had been ok, I learnt to drive at 17 and went along to have an eyetest just in case, the optician prescribed driving glasses which over 2/3 years I relied upon more for day to day use. Walking from the carpark to work etc with them still on and then doing various clerical jobs using them etc. Anyway back to March 1998 my little boy was just about to have his first birthday and I was back at the opticians for a sight test followed ny some new glasses.By Sept 98 I was struggling with the specs and went back to the opticians who frightened me to death when he told me he thought I was loosing my sight " You will need to see the hospital I can't help you" not the best experience. Next came the letter from the hospital I was on the list but the bad news was due to heavy demand for appointments the average waiting time to see the consultant was 34 weeks! I went back to my own GP by now very stressed and arranged to see someone private. This appointment got me a new pair of glasses, through which I could see very well and a pair of toric contact lenses. It seemed that I had an astigmatism (new to me) and the doctor explained that maybe I was too special a case for the high street optician! He did however tell me where I could see him again and at normal rates, which was helpful I thought. By Sept 2000 I was struggling again and was once again referred back to the hospital. As I was finding work etc difficult I rang the hospital and after several discussions with one of the receptionists I found myself with an apointment to see the consultant Nov 2000 I was going to have a scan topography I was told and hopefully this would identify the problem. The appointment lasted approx 10 mins and I was told that I had Keratoconus "Do you know what that is I was asked" No I said will I loose my sight completely I asked to which I was told "No". I then spent 30 - 40 minutes in another room with one of the optometrists and once again found myself with a pair of glasses which while having a funny prescription meant that I could see. I then spent some time trying to get more details on this Keratoconus thing - not an easy task however as thing were going ok I did not worry too much. Now comes the bit i am finding hardest to live with - by June 2002 I was once again struggling, the glasses prescribed in Nov 2000 had lasted me well and I innocently though oh well just get a new pair - how wrong could I have been. The appointment on 13/6/02 was the one when my world fell apart (I know it could be worse but it doesn't feel that way to me at present - sorry)"glasses will no longer work" I was told "we will have to go down the RGP contact lenses route" daunting I thought however if it meant that I would be able to drive again and see to work well I would have to get used to it. I went for my first fitting for the contacts 21/6 and by 26/7 had them to wear and get used to. all went well I thought - too well it seemed when I went back 30/8 I found that the right lens was not fitting correctly and my wearing time was reduced to 4 hours per day 4 days per week and I still could not drive. My next appointment went downhill even further 27/8 I was told not to wear the right lens at all, my employers lost the plot and decided that I was a H&S risk so I was banned from the premises (I had alresdy had seral months off initially and was now ng to do as much as I could work wise to ensure I did not loose my job,all circumstances being taken into account)18/10 was a second attempt at fitting the right eye and after a lot of struggling by 14/11 I had a lens. After several weeks without a lens in the right eye the initial sight test was disappointing - still unable to drive however I was asked to build up the wearing time again and go back 13/12 for another check up (yes it was Friday, however I thought it can;t get any worse - or could it?) the first few minutes of the appointment went well vision up to driving standard (I thought my husband was going to kiss the optometrist!) Then came the dye and the looking under the microscope. The lens it seems is still not right and looks like it is starting to cause concern re rubbing don't wear the lens in the right eye I am told and only wear the ;eft one when I have to/ What do they mean I ask, how can I work without them or even see to cross the road etc? Anyway it's come back 16/12 as an extra ans let see how the eye looks, this leads to an hour long wait for a doctor more dye a large cotton bud being dragged across my eye and a prescription for drops in the eye every 2 hours until 19/12 when I have to go back again to see how the eye is. It seems I have some tiny abrasions on it no lasting damage, as for the 3rd attempt at fitting the right eye this is 17/1/03 I have asked may it not work and have been told that I can't rule that out. It seems if I get contacts my wearing time will be limited and I will probably have to use this time at work. No more TV reading etc I cant even see the letters on my 5 1/2 year olds reading books without screwing my eyes up - not a solution that works long term( What I am doing now so sorry for any typos)Anyway I feel a bit better now I have had a waffle to someone, it seems to be taking a long time to sort out for me it will be 7 months by Jan 2003, is this normal ? I have asked how far away from a graft am I and have been told a long way off ( I am not sure if I would want one anyway its a big step to take and maybe would be no better) What sort of standard of sight should I expect, some American literature I have mentions they would aim to get you driving if nothing less - should I be shoulting up at the hospital a bit more? I realise this is a difficult thing to treat however it is starting to get me down now both at work and at home - I would welcome any comments maybe some of your experiences would remind me I could be worse off - like I said right now it doesn't feel that way.
Not sure if this is the way to do things, anyway here goes! (I need to talk a few things through with anyone who may have some answers or similar experiences)My story is as follows, in March 97 a month before my 29th birthday I gave birth to my little boy. I had worn glasses for approx 10years and had used soft contacts for vanity purposes for about 8 years (very infrequent wearing). During school my eyes had been ok, I learnt to drive at 17 and went along to have an eyetest just in case, the optician prescribed driving glasses which over 2/3 years I relied upon more for day to day use. Walking from the carpark to work etc with them still on and then doing various clerical jobs using them etc. Anyway back to March 1998 my little boy was just about to have his first birthday and I was back at the opticians for a sight test followed ny some new glasses.By Sept 98 I was struggling with the specs and went back to the opticians who frightened me to death when he told me he thought I was loosing my sight " You will need to see the hospital I can't help you" not the best experience. Next came the letter from the hospital I was on the list but the bad news was due to heavy demand for appointments the average waiting time to see the consultant was 34 weeks! I went back to my own GP by now very stressed and arranged to see someone private. This appointment got me a new pair of glasses, through which I could see very well and a pair of toric contact lenses. It seemed that I had an astigmatism (new to me) and the doctor explained that maybe I was too special a case for the high street optician! He did however tell me where I could see him again and at normal rates, which was helpful I thought. By Sept 2000 I was struggling again and was once again referred back to the hospital. As I was finding work etc difficult I rang the hospital and after several discussions with one of the receptionists I found myself with an apointment to see the consultant Nov 2000 I was going to have a scan topography I was told and hopefully this would identify the problem. The appointment lasted approx 10 mins and I was told that I had Keratoconus "Do you know what that is I was asked" No I said will I loose my sight completely I asked to which I was told "No". I then spent 30 - 40 minutes in another room with one of the optometrists and once again found myself with a pair of glasses which while having a funny prescription meant that I could see. I then spent some time trying to get more details on this Keratoconus thing - not an easy task however as thing were going ok I did not worry too much. Now comes the bit i am finding hardest to live with - by June 2002 I was once again struggling, the glasses prescribed in Nov 2000 had lasted me well and I innocently though oh well just get a new pair - how wrong could I have been. The appointment on 13/6/02 was the one when my world fell apart (I know it could be worse but it doesn't feel that way to me at present - sorry)"glasses will no longer work" I was told "we will have to go down the RGP contact lenses route" daunting I thought however if it meant that I would be able to drive again and see to work well I would have to get used to it. I went for my first fitting for the contacts 21/6 and by 26/7 had them to wear and get used to. all went well I thought - too well it seemed when I went back 30/8 I found that the right lens was not fitting correctly and my wearing time was reduced to 4 hours per day 4 days per week and I still could not drive. My next appointment went downhill even further 27/8 I was told not to wear the right lens at all, my employers lost the plot and decided that I was a H&S risk so I was banned from the premises (I had alresdy had seral months off initially and was now ng to do as much as I could work wise to ensure I did not loose my job,all circumstances being taken into account)18/10 was a second attempt at fitting the right eye and after a lot of struggling by 14/11 I had a lens. After several weeks without a lens in the right eye the initial sight test was disappointing - still unable to drive however I was asked to build up the wearing time again and go back 13/12 for another check up (yes it was Friday, however I thought it can;t get any worse - or could it?) the first few minutes of the appointment went well vision up to driving standard (I thought my husband was going to kiss the optometrist!) Then came the dye and the looking under the microscope. The lens it seems is still not right and looks like it is starting to cause concern re rubbing don't wear the lens in the right eye I am told and only wear the ;eft one when I have to/ What do they mean I ask, how can I work without them or even see to cross the road etc? Anyway it's come back 16/12 as an extra ans let see how the eye looks, this leads to an hour long wait for a doctor more dye a large cotton bud being dragged across my eye and a prescription for drops in the eye every 2 hours until 19/12 when I have to go back again to see how the eye is. It seems I have some tiny abrasions on it no lasting damage, as for the 3rd attempt at fitting the right eye this is 17/1/03 I have asked may it not work and have been told that I can't rule that out. It seems if I get contacts my wearing time will be limited and I will probably have to use this time at work. No more TV reading etc I cant even see the letters on my 5 1/2 year olds reading books without screwing my eyes up - not a solution that works long term( What I am doing now so sorry for any typos)Anyway I feel a bit better now I have had a waffle to someone, it seems to be taking a long time to sort out for me it will be 7 months by Jan 2003, is this normal ? I have asked how far away from a graft am I and have been told a long way off ( I am not sure if I would want one anyway its a big step to take and maybe would be no better) What sort of standard of sight should I expect, some American literature I have mentions they would aim to get you driving if nothing less - should I be shoulting up at the hospital a bit more? I realise this is a difficult thing to treat however it is starting to get me down now both at work and at home - I would welcome any comments maybe some of your experiences would remind me I could be worse off - like I said right now it doesn't feel that way.
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