Thanks for the input David, I am going to pop down there this afternoon as I am due a contact lens check-up at D&A...which reminds me these guys are quite expensive but I really could'nt wait any longer for the hospital to sort me out but he tells me that I will have to see the hospital for scerals which are my next step!
Just another quick question David..you will be sick of me soon. Recently I have developed an increase of floaters in my eyes and the hospital say there has been some viterous detachment but nothing to worry about. my worry now is that my vision all appers to be 'raining' and quite grainy when looking at anything, giving everything the apperance that things are moving slightly, 'wiggling around' at the edges? Now i don't know if this is linked to my KC or the viterous problem or what?
My retina is in good shape although the hospital say that people who are shart sighted, as I am are my likely to suffer from a retina tear/detachment??
Thanks again and keep up the good work, also nice to have some positive news from Rob to keep us smiling ;o)
Dave.
Quicktopic posts: Jan 2004
Moderators: Anne Klepacz, John Smith, Sweet
-
Sue Ingram
Hi Andy (2391), You must try scleral lenses! I used to experience exactly the same symptoms as yourself after wearing corneal lenses all day every day for over 25 years. Now I have scleral lenses which fit over the whole eye, do not touch the cornea, are filled with saline, and are so comfortable that I do not even know I am wearing them. I could not even face the thought of putting a rigid corneal lens in my eye now! The other great thing is that absolutely nothing can get behind the scleral lenses, e.g., dust, grit etc, so I would imagine they would be just great for your job.
There is info on scleral lenses on the KC Group website, http://www.keratoconus-group.org.uk, however, feel free to email me on sue.ingram@virgin.net if you have any questions. Take care. SUE
There is info on scleral lenses on the KC Group website, http://www.keratoconus-group.org.uk, however, feel free to email me on sue.ingram@virgin.net if you have any questions. Take care. SUE
-
Sue Ingram
-
Sue Ingram
-
David Bennett
Hi David,
The "rain" is probably the Vitreous detachment - sorry but not alot one can do about that. Sometimes the floaters clear up of their own accord sometimes not. - so that;s a cheery thought!!!
Some poeople swear by vitimin Supplements(ACE Zinc, Selenium) althogh the "sceintific" evidence is not there tio support that....yet The grainyness *may* be the KC and *may* be compunded by the Vit Detach. If the retina is in good shape them you are on a winner. Yes hight myopes do have a greater incidence of RD but the incidence is small (<3-5%) so in reality you are 95% unlikely to be suffering froma retinal tear....
However you do know the old tale about people in glass houses...?!!!!
best wishes
David
The "rain" is probably the Vitreous detachment - sorry but not alot one can do about that. Sometimes the floaters clear up of their own accord sometimes not. - so that;s a cheery thought!!!
Some poeople swear by vitimin Supplements(ACE Zinc, Selenium) althogh the "sceintific" evidence is not there tio support that....yet The grainyness *may* be the KC and *may* be compunded by the Vit Detach. If the retina is in good shape them you are on a winner. Yes hight myopes do have a greater incidence of RD but the incidence is small (<3-5%) so in reality you are 95% unlikely to be suffering froma retinal tear....
However you do know the old tale about people in glass houses...?!!!!
best wishes
David
-
Dave D
Thanks for that David.
On the specs being reglazed..the prescibing ops have checked and they have been made to the correct prescription..the op was not in today so they are going to have aword with him as they think that I may need to give my eyes more time to adjust to the new lenses?
On the contact lens check, all was fine except left eye looking dry and failing the 'push up test' as he calls it..plenty of soultion toi be applied throughout the day and removed and re-wetted at least once during the day.
I felt that my vision had get worse recently with teh soft perms but when he added more power my vision did not improve......so why has my vision got worse because without my CL's i can certainly see a lot less than I could 2 month ago? What else other than the state of my cornea can affect what I can, or can't see!! I think I have developed a 'blind spot' in my left eye but as said before the hospital say the retina is fine and that is the only thing to cause a blind spot??
Rabbit rabbit rabbit...sorry this has turned into a diary entry!
Cheers again,
dave.
On the specs being reglazed..the prescibing ops have checked and they have been made to the correct prescription..the op was not in today so they are going to have aword with him as they think that I may need to give my eyes more time to adjust to the new lenses?
On the contact lens check, all was fine except left eye looking dry and failing the 'push up test' as he calls it..plenty of soultion toi be applied throughout the day and removed and re-wetted at least once during the day.
I felt that my vision had get worse recently with teh soft perms but when he added more power my vision did not improve......so why has my vision got worse because without my CL's i can certainly see a lot less than I could 2 month ago? What else other than the state of my cornea can affect what I can, or can't see!! I think I have developed a 'blind spot' in my left eye but as said before the hospital say the retina is fine and that is the only thing to cause a blind spot??
Rabbit rabbit rabbit...sorry this has turned into a diary entry!
Cheers again,
dave.
-
KateF
To ANDY
time to try scleral lenses, definitely! Kate
TO SAJEEV
not sure i agree with reference to Downs syndrome people as 'weaker KC sufferers'- on behalf of son who has downs and is the strongest and bravest person I know...dont worry, each family can evaluate information as it arrives,advice is good but the decisions are our own.
To Jay
who asked about Hydralate in relief of hydrops - dont know if its te same but Dale uses Mydrilate, a dilator - the purpose I think is not just to dilate but to relax the eye thereby solving some of the intensity of tension pressure pain (I think !)
To JAN FISHER
keep trying kdfarminer@tiscali.co.uk, would love you to get through.
cheers everyone, terrific to hear success stories
and to share in such a supportive network,
kate
time to try scleral lenses, definitely! Kate
TO SAJEEV
not sure i agree with reference to Downs syndrome people as 'weaker KC sufferers'- on behalf of son who has downs and is the strongest and bravest person I know...dont worry, each family can evaluate information as it arrives,advice is good but the decisions are our own.
To Jay
who asked about Hydralate in relief of hydrops - dont know if its te same but Dale uses Mydrilate, a dilator - the purpose I think is not just to dilate but to relax the eye thereby solving some of the intensity of tension pressure pain (I think !)
To JAN FISHER
keep trying kdfarminer@tiscali.co.uk, would love you to get through.
cheers everyone, terrific to hear success stories
and to share in such a supportive network,
kate
-
Paul Bines
I realise that Sclerals are a good idea, but could we try to keep some balance? Not everyone is able to use Sclerals - I can't - and so grafts are probably the only way to go.
Please, let's not put people off having grafts if there is no alternative! Au Res.,
Paul
http://www.efbenson.co.uk/
http://www.paulbines.co.uk
http://www.convergent-diversity.co.uk/
Please, let's not put people off having grafts if there is no alternative! Au Res.,
Paul
http://www.efbenson.co.uk/
http://www.paulbines.co.uk
http://www.convergent-diversity.co.uk/
-
Andrew MacLean
I am grateful to Paul Bines 2402 for his posting.
Some years ago I decided to postpone surgery until I had nothing left to lose. This meant waiting until I was registered blind before seeking the cornea graft that had been offereed some years before.
I only took the step of agreeing to a graft in my right eye after the hospital optometrist (a professional for whom I have the highest regard) had tried every conceivable lens in my right eye, including sclerals.
The operation was undertaken on December 12. I am still not able to see too well, but its early days and even if my sight does not improve from here, it is no worse than the best corrected vision that was available before the operation.
In my left eye I am again trying a scleral. At the end of last year I tried to get used to one, but my eyes became very dry and the lens stuck fast as if attached by glue. Again the hospital optometrist came to the rescue, returning the lens to the manufacturer and having its size reduced.
I don't yet know if this will be the answer for my left eye, or whether another graft will be the answer. However, I am grateful beyond words to the family that agreed to the cornea of their recently deceased relative being used to give the hope of eyesight to a 53 year old man whom they do not know.
I am delighted for all those people who find sclerals meet their needs, but as folk often say on this discussion site we each have a different experience. If I were to give any advice it would be to keep looking until you find something that works, and then stop looking. If the solution that works today doesn't work tomorrow, then start looking again. :)
Can I just say to Sajeev that I think we let you down, and went on letting you down for too long. I am glad you are now finding postings more helpful.
Yours aye
Andrew MacLean
Some years ago I decided to postpone surgery until I had nothing left to lose. This meant waiting until I was registered blind before seeking the cornea graft that had been offereed some years before.
I only took the step of agreeing to a graft in my right eye after the hospital optometrist (a professional for whom I have the highest regard) had tried every conceivable lens in my right eye, including sclerals.
The operation was undertaken on December 12. I am still not able to see too well, but its early days and even if my sight does not improve from here, it is no worse than the best corrected vision that was available before the operation.
In my left eye I am again trying a scleral. At the end of last year I tried to get used to one, but my eyes became very dry and the lens stuck fast as if attached by glue. Again the hospital optometrist came to the rescue, returning the lens to the manufacturer and having its size reduced.
I don't yet know if this will be the answer for my left eye, or whether another graft will be the answer. However, I am grateful beyond words to the family that agreed to the cornea of their recently deceased relative being used to give the hope of eyesight to a 53 year old man whom they do not know.
I am delighted for all those people who find sclerals meet their needs, but as folk often say on this discussion site we each have a different experience. If I were to give any advice it would be to keep looking until you find something that works, and then stop looking. If the solution that works today doesn't work tomorrow, then start looking again. :)
Can I just say to Sajeev that I think we let you down, and went on letting you down for too long. I am glad you are now finding postings more helpful.
Yours aye
Andrew MacLean
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 61 guests