Quicktopic posts: Nov 2003

[listener@umbilical.demon.]

Al wrote:
I have head and neck pain as well as my vision has
deterioted greatly over the past 3 months.

That sounds like a response to being always squinting and
holding your head and neck at a strange angle. Please remember
to take rests from the screen, straighten and relax your neck
and shoulders, give the muscles a rub (or get someone else to,
if you can).

I see the world out
of my left eye. The right eye sees nothing but a white blur

Al, did this start fairly recently? - did it go all white and
blurry fairly quickly, and was it sore? And how long has it
been white??

I'm not trying to diagnose you by email, you understand!! - but
"white blur" sounds alarming like something called a "hydrops",
which we've discussed on this list/page before. there's some
info about hydrops elsewhere on the KC group site; I suggest you take a look at it and see if it sounds at all familiar.


Lastly (for now, at least!) have you thought of, or tried, any
special softwre to make your computer easier to use? - for
example, there is software that can enlarge, change the colours, change the mouse pointers, etc, and/or speak to you. Do you
have the "accessibility options" loaded on your PC, and can you
try them out? Can you get a demo of any of the special software packages (Zoomtext in one; the other I know of in the UK is
called Lunar).

Good luck!

Rosemary
--
Rosemary F. Johnson

[gemstone@umbilical.demon.]

Laura wrote:
Surely using other types of vleaners like washing up
liquid would sting eyes. I dint know obviously havent tried it.
You have to rinse the fairy liquid off the lens after you've
cleaned it and before you put it in!! - just like you do with
the Boston cleaner or similar. Yes, of course it would sting if you put the lens in your eye with cleaner all over it - with
washing up liquid or that Boston stuff. But you'd be doing that anyway, wouldn't you?

Was wondering would it be any use wiping hem with fragrance
free tissues

Errr...? Do you mean you're drying them on scented tissues at
the moment? Personally, I'd always use the tissue without the
perfume, as they set off my hay fever, asthma, you name it. So
maybe a change a change to the perfume free variety may help you too.

Rosemary

--
Rosemary F. Johnson

[laura]

cheers for the advice. dont dry them with sented tissues at all cuz usually set off asthma etc as well just didnt know whether its a good idea! im getting paranoid now whether im cleaning things right or if ive got another infection. Seems to be taking over ,y life as wats worse is that half the time i cant even see to go to my lectures at uni and have to send polite emails to lectureres to ask for notes prreviously.

[Andrew Thomas MacLean]

Aargh

I wrote Heptic while I was thinking Haptic. Sorry and thank you Christine for puttinm my error right!
----------
>From: QT - Christine <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
>To: QT topic subscribers <qtopic+subs@quicktopic.com>
>Subject: Keratoconus
>Date: Thu, Nov 13, 2003, 8:04 pm
>

< replied-to message removed by QT >

[Rosie Turner]

Deleted by author 25-11-2003 06:27 AM

[KateF]

Rosie
sorry to hear about all the problems .
What type of new lens was it that triggered it all?
Do you think that was a trigger or were there other things changing too?
KateF

[Rosie Turner]

Dear Kate
Thank you so much for replying. I have only just found this website and it has been such a relief to know there are other people out there who probably understand! It sounds ill-informed but I don't know exactly what type of lens it was. It was a "new" one, designed to fit over corneal grafts and apparently has a step in it to fit over the graft. I was fitted for the lens at the contact lens clinic and then it was posted to me to try out over a few weeks before the next visit. I only wore it a few times, for a few hours, because it was pretty uncomfortable but also I was worried that my vision was very blurred for up to 24 hours after wearing. I'd tried so many different lenses over the last six years but not had the same problems. The vision in my eye had been deteriorating over the previous year and I'd had five changes in glasses prescription but no pain or discomfort. I can't help linking the pain to the lens because it began after I'd worn the lens for a few hours prior to the clinic check. They did notice some change then in my cornea and advised me not to wear the lens again. The person who fitted it said at one point that it seemed too much of a coincidence for the problems not to be related to the lens, but was unable to explain it. He did suggest tight lens syndrome at one point, or that perhaps the lens had triggered some problem in the donor material. Sorry to write such a long reply, but thank you for your interest. with best wishes
Rosie
< replied-to message removed by QT >

[rosemary@umbilical.demon.]

Dear Rosie,

That sounds horrid for you! Fraid I've no idea what the problem is; lots of best wishes with it, and hope you get it all sorted
out. Hang in there!

As for the job: stick in there too. Can you get some special
equipment that will help? - eg. talking computer, magnification/
colour change software?? Try invoking the DDA with your
employer; you might be able to get funding for any helpful
equipment under the access to work scheme. RNIB and/or the
Disability employment Advisor at your local job centre should be able to help. Good luck!

Rosemary

--
Rosemary F. Johnson

[sajeev Nadarajan]

CURE? CURE? Hi everyone, Is this the CURE we have been all looking for ?
I have futher info. in a medical journal. given to me by DR lombardi. Go to
http://WWW.lombardieyeclinic.com and then click on the english icon. Thanks Sajeev

[Guest]

I will not be accessing my email until 24/11/03, for urgent matters please contact the service centre on 0800 154 234 Regards, Aimee.