C3R - Corneal Collagen Crosslinking!

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Louise Pembroke
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Postby Louise Pembroke » Sat 28 Jan 2006 5:01 pm

Jay, can C3R make any difference to already grafted corneas?
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jayuk
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Postby jayuk » Sat 28 Jan 2006 5:07 pm

Louise

Gareth has been exploring this with the Team in Dresden so may want to chime in here.

However, the short answer to this, is YES it can be used, however I would suspect that the cornea would need to be suture and steroid free and thus fully recovered.

C3R on transplanted cornea, I would imagine, may be rare and would only be used in cases where the Host cornea has been affected with KC which wasnt removed during the transplantation.

Hope that helps

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
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Louise Pembroke
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Keratoconus: Yes, I have KC
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Postby Louise Pembroke » Sat 28 Jan 2006 5:17 pm

I hadn't considered that, the host cornea developing KC! I doubt I would be suitable then. My unsuccessful graft [14 years old] has a few stitches buried in there and the shape is very irregular. The other has a high degree of post graft astigmatism but does very well with a RGP.
Director of Sci-Fi and Silliness and FRCC [Fellow of the Royal College of Cake]

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jayuk
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Postby jayuk » Sat 28 Jan 2006 5:30 pm

Louise

Dont count it out! I beleive each case is unique..only way to know for definite is to contact them ?

J
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP

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Louise Pembroke
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Keratoconus: Yes, I have KC
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Postby Louise Pembroke » Sat 28 Jan 2006 5:46 pm

Jay do you have the email address and the name of someone to contact please? Can they consult by email to know whether there is a possibility or do you need to go over there for a consultation?
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jayuk
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Postby jayuk » Sat 28 Jan 2006 5:51 pm

Louise

No, you can consult with them over email

As long as you have

a) brief history of your KC
b) history on treatment and method of KC management (specs, lenses, etc)
c) corneal topographys

That should be enough...however in complex cases they would ask to speak with your consultant or ask you to come over

Have PM's you the email address of them

J
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP

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Postby jayuk » Sat 28 Jan 2006 5:55 pm

On the same note

Id also like to add that Centre for Sight based in East Grinstead are now performing C3R in the UK; with input from Germany (as I am led to beleive)

http://www.centreforsight.com/index.php

Jay
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP

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Sweet
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Postby Sweet » Sat 28 Jan 2006 6:11 pm

Jay, oh i didn't know that. Is Daya going to be doing it then?

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jayuk
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Postby jayuk » Sat 28 Jan 2006 7:03 pm

Yes
KC is about facing the challenges it creates rather than accepting the problems it generates -

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GarethB
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Postby GarethB » Sat 28 Jan 2006 7:30 pm

One thing all grafte corneas have been tested for from day one is the presence of KC. All the searches I have done have failed to show KC appearing in a grafted cornea. However there is always that 1 in billion chance of it happening.

What I hae found, is that in some vary rare cases, KC can devolp again in the cornea a graft is attached to. This is what happend in my case. From what I can find, these appear to be before the days of topography scans which can show subtle changes invisible to the optomestrist looking through the slit lamp.

From what I have found theoretically C3R could be beneficial in these instances, however to the best of my knowledge, such treatment has yet to be done on a transplanted cornea.

Still waiting for a reply from Dresden, but one of my concerns is that my graft is of a good thickness, would C3R make it too thick and cause problems?

Will keep you posted once I get a response.

Gareth
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