Quicktopic posts: Jan 2003

[Tony Stigle]

I received this information in an E.mail

Many stores have their own brand cleaning solutions. None of them make their own, as far as It is known, so all are established proprietary brands. They sometimes stack them alongside the 'regular' brands, you should see the price difference, sometimes 60% or more reduction. Tesco own brand is LC65, a good non preserved cleaner. Asda own brand cleaner is Miraflow. LC65 and Miraflow are quite different in texture, and cleaning action, so those two may well be the best two to try to find out an individual's preferred type of cleaner, and are both available inexpensively as own brand.
Also, Asda own brand saline rinsing solution is CIBA saline. CIBA saline is fine for rinsing surplus cleaning agent from the surface of all kinds of lenses, but may not be so good for filling sclerals, as it is not as non-preserved as it says it is. I have not seen non-preserved saline 'own brand',

[Tony Stigle]

Hi... all
Just a reminder to please ensure your details in the contacts page are up to date.. 3 added this Week!
Also for those new contributors who have found this QuickTopic page but with out the UK keratoconus self help & support groups web site the detail are http://www.keratoconus-group.org.uk.
Many of the questions asked on QT can be answered from the site.

[ali cooper]

Hi Alison,

Your friend must feel blessed to have someone like you who is willing to try and understand her condition. I have only been diagnosed with the condition for about six months but I think I started with it in about 1999.
I would say that although each of us may have similar experiences with KC, living with the condition raises different issues and feelings to everyone of us. The only one constant I have found is that we are all scared when we are first diagnosed and there are times we are scared that we may 'go blind'. I would imagine the 'down' days your friend may have would be when he/she feels that the condition may have deteriorated and what that may mean ie; new contacts or if it is has become severe enough for the graft. Sometimes it could be in the day to day dealing with the condition and not being able to do things that were once no trouble.

I think you have a healthy attitude in dealing with your friends condition and I wish some of my friends could be the same. I know they don't mean to say the wrong thing, I just let it go because I know deep down they mean well. Overall though I think your friend is very lucky to have such support from you especially from one who is willing to research on what it must be like to have the condition. I have gained a wealth of information from this support group and I am sure you will be able to as well.

Take care,

Ally







>From: QT - Alison- <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
>Reply-To: QT topic <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com>
>To: alicooperuk@hotmail.com
>Subject: Keratoconus
>Date: 10 Jan 2003 23:07:24 -0000
>


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< replied-to message removed by QT >

[abby passy]

hie everyone

i am a young african woman who just turned 22 a week ago i have been aexperiencing problems with my vision until my optician refered to a specialist i have just been told i have keratoconus, its still very difficult for me to understant this problem i was given this website so as to know more , who ever has the same problem i do , just know it is not the end of life i am a beat worried coz i do not think i will be able to do all the normal things like driving that peole of my age are doing and things like contacts are way expensive , but i know somehw i will make it
i am still to tell my friends of my condition cause most relatives would complain that i would not greet them when i see thhem , i would try and explain that i had not seen them , now that i have the information i will try and give my family and friends so that they know of my condition, i am always scared that i might go blind soon but this group has helped know that i am not alone

good luck to everyone who has the same problem ihave they is just one thing i have been wantint to ask is t safe for me to work with computers coz i woork with computers evreyday

good luck

[Bob Hillcock]

Hi everyone
I haven't posted a mess for a while but I'd like to update you all.
I have had KC for ten tears and finally after seeing the consultant on friday,he said that I will now have to have surgery.I have built up an intolerence to lenes and have had two ulcers in recent years.I am now a bit apprehensive,but feel the time has come and I must go through with it.Today I read John Smith's message re post op 1 year on and to be honest it has scared me.The next step is to see the surgeon/corneal expert this Iam waiting for an appointment hopefully in the next few weeks.
I would appreciate any ones comments,views and SUPPORT!!!!
Cheers Bob
Feel free to email me on Bob1411@ntlworld.com
PS A belated happy new year to you all.

[Payne Family]

Message for Alison
Michelle is very lucky to have a friend like you.
My daughter sometimes has difficulty at school both with sight and with teasing. She is 11 and was diagnosed with KC 7 years ago.
I hope that Katherine will make friends with people like you at High School where people will take her for what she is and not the girl who wears different glasses or lenses every few weeks.




< replied-to message removed by QT >

[Payne Family]

Don't panic. My daughter was diagnosed at 4 years old with KC and we were told that she would be blind by the time she was 30 - I now know that that is a load of rubbish. Katherine is 11 now and we have been told to keep her on glasses for as long as we can - she has tried many types of lenses but every time her eyes have changed we have managed to get glasses for her - she has KC in both eyes unfortunately but we are optumisitic.

Some of her friends have been rather cruel since her diagnosis but her best friends have stayed with her. Once her school eventually understood her condition (and it took a long time) they have been very good and she is now placed near the front and away from glare but without seeming to get any special attention.

I (her mum) havn't been diagnosed with KC but recently I can't drive at night due to the glare of oncoming headlights - I will have another eyetest shortly.

I would advise you to look at the American KC website (search through Google) Kathy Warren who runs the site is brilliant and will help you with any queries.
< replied-to message removed by QT >

[Anon]

Further to Tony's info on contact lens cleaners. I was shown some research papers, which shows that Miraflow has significant antibacterial properties (due to its high iso propyl alcohol content) and is able to kill some 95% of common bugs within the firt 60 seconds of contact. Good to know the ASDA brand is the same is Miraflow was taken off the market for some 18months and has only recntly become available again although most shops are no longer stocking it. I do not find LC65 cleans as well. No connections to CIBA !

[harpomatrix@yahoo.co.uk]

7 Weeks
49 days
1176 hours

[Patricia Ferrand]

Hi Bob. I haven't posted in a while but I read the messages daily. I just recently had my graft done in December. All went well and I am taking my drops 4 times a day. It's too early for me to go through a rejection but so far I have not have any problems...... I too was very skeptical about my grafts because of all the expierence i've read in the site but everyone is different. Just be optomistic and all will go well. I still can't see much through my eye but as the doctor told me, it's a slow process. Good Luck.
>>> QT - Bob Hillcock <qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com> 01/11/03 04:50PM >>>



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