DMEK experience
Moderators: Anne Klepacz, John Smith, Sweet
-
- Chatterbox
- Posts: 287
- Joined: Wed 18 Apr 2018 1:29 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: DMEK experience
I live alone, family in different city, all friends don't have cars and none live in my borough anymore (emigration, moved to other side of country, died)
- space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: DMEK experience
does Moorfields have a befriending service? I found the one in Leeds really helpful a good few years ago now
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
-
- Chatterbox
- Posts: 287
- Joined: Wed 18 Apr 2018 1:29 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: DMEK experience
I don't need that, it's a lack of transport
- space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: DMEK experience
if I had to get a bus here itd be a bus to town n then a bus out again or a 25 min walk with my cane from where the 1st bus stops but the buses keep knocking here so far from reliable
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
-
- Chatterbox
- Posts: 287
- Joined: Wed 18 Apr 2018 1:29 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: DMEK experience
Yes its a problem in many parts of the country with both public transport and cabs, there's a shortage of drivers.
Hospital transport is also being rationed, my dad had orthopaedic surgery at a private hosp an hours drive away (but done under the NHS), and they wanted to charge £40 each way. The only exception was if you had a Blue Badge which he does, but if you don't and need to do several trips its very costly.
Hospital transport is also being rationed, my dad had orthopaedic surgery at a private hosp an hours drive away (but done under the NHS), and they wanted to charge £40 each way. The only exception was if you had a Blue Badge which he does, but if you don't and need to do several trips its very costly.
- Anne Klepacz
- Committee
- Posts: 2293
- Joined: Sat 20 Mar 2004 5:46 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: DMEK experience
Have you tried talking to the ECLO at Moorfields as to whether anything else is available? I know some hospitals used to have volunteer drivers and also some councils. Not sure if these schemes exist any more but worth asking.
-
- Chatterbox
- Posts: 287
- Joined: Wed 18 Apr 2018 1:29 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: DMEK experience
Thanks Anne Xx
- space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: DMEK experience
CVS also have or at least used to have voluntary drivers. as did I forget its name but a voluntary thing based in Camden,
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
-
- Chatterbox
- Posts: 287
- Joined: Wed 18 Apr 2018 1:29 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: DMEK experience
Nothing seems to exist with councils and vol orgs
-
- Chatterbox
- Posts: 287
- Joined: Wed 18 Apr 2018 1:29 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: DMEK experience
Council sensory impairment team told me to "advertise for a driver".
Red Cross told me to ring Citizens Advice and Royal Voluntary Services (who have no transport services/volunteer drivers in my area). RNIB said no ECLO in my area, suggested GP for hosp transport (er...get a phone call in 3 weeks time & what's the betting I won't fit criteria), or get Transport for London's "mentoring scheme" to use the tube.
It's sheer luck a friend in Scotland is in London and is bringing me a cab from the station in the morning.
The last 5 days have been hell, the pain is horrific, eye shut other than for 30 drops.
Is Hylo-Forte safe for RGPs? My "good" eye is getting dry.
Red Cross told me to ring Citizens Advice and Royal Voluntary Services (who have no transport services/volunteer drivers in my area). RNIB said no ECLO in my area, suggested GP for hosp transport (er...get a phone call in 3 weeks time & what's the betting I won't fit criteria), or get Transport for London's "mentoring scheme" to use the tube.
It's sheer luck a friend in Scotland is in London and is bringing me a cab from the station in the morning.
The last 5 days have been hell, the pain is horrific, eye shut other than for 30 drops.
Is Hylo-Forte safe for RGPs? My "good" eye is getting dry.
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 28 guests