C3R Cross Linking

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

joanne oram
Newbie
Newbie
Posts: 1
Joined: Thu 17 Jul 2008 1:41 pm
Keratoconus: Yes, I have KC
Vision: On the waiting list for a graft

Re: C3R Cross Linking

Postby joanne oram » Wed 13 Aug 2008 10:35 am

Hi

Thank you so much for this information, I have an appointment at Accuvison on 29th Aug for crosslinking, I too was very impressed with Accuvision's srevice, (most indepth and accurate eye test I've ever had!) I've been told that I can have some lazer treatment at the same time as the crosslinking to help improve my vison. I am still toying with the thought of this at lazer correction is what got me into this situation in the first place! anyone had lazer done at the same time as crosslinking and can offer any experience.

I too am having to have this treatment privately as the NHS will not cover the costs, I have private medical insurance and I am fighting with them to coverthe costs, they currently state that they will not cover it as the treatment is experimental! same old story with private medical I guess??

robmcdougal90
Newbie
Newbie
Posts: 1
Joined: Fri 18 May 2007 1:38 pm

Re: C3R Cross Linking

Postby robmcdougal90 » Sun 28 Sep 2008 2:05 pm

hi can i just ask how much it costs through accuvision, im really interested in getting it done, but only need it in one eye. Thanks

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: C3R Cross Linking

Postby Andrew MacLean » Mon 29 Sep 2008 9:04 am

Rob

I am afraid I can 't answer your question about the cost of CXL, but I just wanted to welcome you to the forum. All the best

Andrew
Andrew MacLean

Sculptor
Newbie
Newbie
Posts: 3
Joined: Wed 30 Jul 2008 5:06 pm
Keratoconus: Yes, I have KC
Vision: I'm coping with no aids

Re: C3R Cross Linking

Postby Sculptor » Tue 14 Oct 2008 6:08 pm

Hello,

Thought I'd update this thread (I posted in it a couple of months ago) with my recent experiences. Last week I went for CXL at the Military Hospital in Prague; the staff were very professional and I have a lot of confidence in the doctor there (the doctors speak English well, which helps). I had the procedure done in a bit more than an hour, from when I first went in to when I left. Antibiotic and anaesthetic drops were followed by a move to a clean-room (facemasks and gowns all round), where I had the procedure done (riboflavin drops every 3 minutes, with a UV lamp over my eye to look into). The process was only slightly uncomfortable, mostly due to my own restlessness at lying still for so long. Following that, I was given three sets of drops: one to have 5x per day for 4 days, then another for 3x per day for 2 weeks following the first 4 days, and another general one (Refresh) to keep my eyes moist.

Following the procedure my eye felt a little tender that day, but no pain or major discomfort. I could barely notice anything unusual the following day, when I had a 10-minute follow-up check with the doctor.

I have my right eye done tomorrow. :)

Next, we will have some check-ups at widening intervals (1 month, then 2 months later, then 3 months later, etc.) to monitor the progress.

Best wishes,

Richard

spyrogyra
Newbie
Newbie
Posts: 1
Joined: Fri 16 Oct 2009 4:48 pm
Keratoconus: Yes, I have KC
Vision: Other

Re: C3R Cross Linking

Postby spyrogyra » Fri 16 Oct 2009 7:15 pm

same price - around 450 pounds will cost you if you travel to Bulgaria. I had it last year. If someone wants to save some money , I could be of help


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 35 guests