Quicktopic posts: Jan 2004
Moderators: Anne Klepacz, John Smith, Sweet
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Mike Oliver
Happy new year. Having been away I have only just looked at the last 2 or 3 weeks postings. As many will know (but some won't having accessed it in other ways) this discussion page is part of the official website of The Keratoconus Group(a registered charity) Of course, everyone with an interest in the condition is welcome and it is great to see so many different topics and ideas discussed. Having said that, as chair of trustees of the KC Group I was very concerned about references to legal liabilities arising from observations made here. I was frankly alarmed at the apparent involvement of the manufacturer concerned. The Group and its trustees accept no responsibility for comments made here. I wholeheartedly endorse what John, our webmaster, and Janet have said. In my view this is not the place for accusations and implied threats and the action taken has the potential to cause serious repercussions(but hopefully not). We all want free and open discussion and nothing is written in stone about how we should each cope with KC and our various contact lens. Speaking purely personally I would never have got through 40 years of KC and scleral lens if I had stuck rigidly to what was scientifically proven and acceptable-- standards and recommended practice always seem to be changing and evolving anyway. Sorry to sound pompous and official, but no choice in light of what had been posted.For the record I did use washing up liquid to clean lenses about 30 years ago and was never told not to even though those treating me then knew about it.If anyone wants to e mail me direct on this posting then send to mikekeratoconus@aol.com
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Jay Shah
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Mandy Winger
Due to the stuipid way washing-up liquid is being posted as a way of cleaning lenes my 14 year old son now has two infected eyes.
I only found out that he heard about this method on this notice board when it was to late.
How can washing-up liquid be talked about on this message board, when there is no preceise instuctions for its use with contact lenses and washing-up liquid all have different components to make up the liquid (which can change with-out notice as well).
Can the group now condem people for pushing this third-world
method in cleaning lenses. Whats wrong with using regular contact lens cleaner ?
I only found out that he heard about this method on this notice board when it was to late.
How can washing-up liquid be talked about on this message board, when there is no preceise instuctions for its use with contact lenses and washing-up liquid all have different components to make up the liquid (which can change with-out notice as well).
Can the group now condem people for pushing this third-world
method in cleaning lenses. Whats wrong with using regular contact lens cleaner ?
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Nicola Thomas
Happy New Year!!!
I finally did the inevitable and (permanently) lost a lens! While I've been suffering from dry eyes and tolerating one of my RGPs, I have no idea when or how I managed to lose my 'good' lens, apart from it was in my eye before going out and wasn't there when I went to take it out. Ok I had a few to drink but sober people confirmed it hadn't slipped into the corner of my eye, dropped on the floor, 'doubled up' etc. Has anyone else just lost a lens, not counting during taking in/out?
Luckily whenever I get a new lens I keep the old one just in case to tide me over until I can get a new one. I have an appt at Moorfields on Thurs, but before I go I would like to know what others usually do to keep an 'emergency pair' - do you always order an extra set of lenses or do you just keep the old set as an emergency? Any tips for keeping an 'emergency pair' would also be appreciated ie. in solution or dry etc??
Cheers
Nic
I finally did the inevitable and (permanently) lost a lens! While I've been suffering from dry eyes and tolerating one of my RGPs, I have no idea when or how I managed to lose my 'good' lens, apart from it was in my eye before going out and wasn't there when I went to take it out. Ok I had a few to drink but sober people confirmed it hadn't slipped into the corner of my eye, dropped on the floor, 'doubled up' etc. Has anyone else just lost a lens, not counting during taking in/out?
Luckily whenever I get a new lens I keep the old one just in case to tide me over until I can get a new one. I have an appt at Moorfields on Thurs, but before I go I would like to know what others usually do to keep an 'emergency pair' - do you always order an extra set of lenses or do you just keep the old set as an emergency? Any tips for keeping an 'emergency pair' would also be appreciated ie. in solution or dry etc??
Cheers
Nic
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Jay76
Nicola
I occasionally use a RGP in my left eye and have done the same as you. But I also bought another lens just in case. One time I was ging away fr 3 weeks and so if I had lost a lens then jeeees dont know what d do s I bought two
I keep the spare one in Boston Conditoning Solution and change it ever 3 days ie resoak it etc. But others I have heard have just put there lens in a dry place.
Jay
I occasionally use a RGP in my left eye and have done the same as you. But I also bought another lens just in case. One time I was ging away fr 3 weeks and so if I had lost a lens then jeeees dont know what d do s I bought two
I keep the spare one in Boston Conditoning Solution and change it ever 3 days ie resoak it etc. But others I have heard have just put there lens in a dry place.
Jay
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Rick
Re Sajeev (a.k.a. Mandy Winger) and his moaning.
Sanjeev
Looking at the email you posted under the name Mandy Winger and your previous emails it's clear your one and the same. Please drop-it and act your age.
You wouldn't get infections from placing the liquid in your eye maybe a chemical burn and slight discomfort. We have all done it by mistake and placed a lens in with cleaner that hasn't been properly washed off. Yes it hurts!
All KC'ers here know enough about the cleaning/neutralizing and rinsing of lenses to understand in context the discussion.
I wouldn't and most people here wouldn't use washing up liquid, but that is an option and one that some practitioners suggest.
Now drop-it! We are sick of your uneducated complaining.
Sanjeev
Looking at the email you posted under the name Mandy Winger and your previous emails it's clear your one and the same. Please drop-it and act your age.
You wouldn't get infections from placing the liquid in your eye maybe a chemical burn and slight discomfort. We have all done it by mistake and placed a lens in with cleaner that hasn't been properly washed off. Yes it hurts!
All KC'ers here know enough about the cleaning/neutralizing and rinsing of lenses to understand in context the discussion.
I wouldn't and most people here wouldn't use washing up liquid, but that is an option and one that some practitioners suggest.
Now drop-it! We are sick of your uneducated complaining.
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sajeev
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umbilica@umbilical.demon.
Jay asked how long it takes for the smearing in the cornea to go away (this is after a hydrops):
It varies.
ANywhere from "about 3 weeks" to "never" have been known
("never" is when it leaves permanent scarring).
A month to 6 weeks from the initial rupture would be fairly
typical; 3 months not unknown. It depends on the person and how bad the split was. It tends to clear gradually, with the edges
clearing first and the last bits of white flur in the middle.
How long this is after the pain goes away also depends - some
people seem to get more pain than others, or find the painful
bit lasts longer.
Sorry not to give a more specific answer; as keeps being said
here, we're all individual.
Hoping yours clears up well for you.
Rosemary
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Rosemary F. Johnson
It varies.
ANywhere from "about 3 weeks" to "never" have been known
("never" is when it leaves permanent scarring).
A month to 6 weeks from the initial rupture would be fairly
typical; 3 months not unknown. It depends on the person and how bad the split was. It tends to clear gradually, with the edges
clearing first and the last bits of white flur in the middle.
How long this is after the pain goes away also depends - some
people seem to get more pain than others, or find the painful
bit lasts longer.
Sorry not to give a more specific answer; as keeps being said
here, we're all individual.
Hoping yours clears up well for you.
Rosemary
--
Rosemary F. Johnson
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John Smith
Mandy,
I'm sorry to hear that your son has an infection.
As Rick has mentioned, you wouldn't get an infection from using fairy liquid (quite the opposite as most washing-up liquids now contain antibacterial properties). You could cause other problems though - imagine the feeling of having shampoo in your eyes.
Infection could be "one of those things", or caused by imperfect cleaning of lenses.
Please remember though that like any bulletin board, it is here for an exchange of views. Nobody has stated that using washing-up detergent is the "right" thing to do, indeed, there has been a frank discussion on the subject.
With KC, the one constant is that we're all different. What will work for one person will not for another.
I'm sorry to hear that your son has an infection.
As Rick has mentioned, you wouldn't get an infection from using fairy liquid (quite the opposite as most washing-up liquids now contain antibacterial properties). You could cause other problems though - imagine the feeling of having shampoo in your eyes.
Infection could be "one of those things", or caused by imperfect cleaning of lenses.
Please remember though that like any bulletin board, it is here for an exchange of views. Nobody has stated that using washing-up detergent is the "right" thing to do, indeed, there has been a frank discussion on the subject.
With KC, the one constant is that we're all different. What will work for one person will not for another.
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Dave in Wales
I don't know if this is any help. and apologies if its wrong to do this' I've made a new Keratoconus category on my forums page on my web site. It might be useful for stuff that over spills here or my be a problem for the legal issues of a charity site and that
Its there if you want to use it, there is no sign up options, its open. Again if this is OTT for this group then I'm sorry and I will remove it if you want
The Forums addy is
http://www.davessite.co.uk/forums/forum/
Its there if you want to use it, there is no sign up options, its open. Again if this is OTT for this group then I'm sorry and I will remove it if you want
The Forums addy is
http://www.davessite.co.uk/forums/forum/
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