Thanks for posting the news about Amanda, Tony.
I'm sure we all wish her well.
John
Quicktopic posts: Dec 2003
Moderators: Anne Klepacz, John Smith, Sweet
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Jane Webb
Jay
I too woke up one morning to see a cloudiness in my right eye. I thought maybe I had rubbed my eye too much in the night. On the second day I called my optician who had been treating my KC in that eye for last 4 years with a corneal contact lens.
She diagnosed hydops and said that a graft was my only option and referred me to the local eye clinic. I had to wait 3 months to determine whether it would scar and it did. Another 3 months later I had the graft and it's now been 7 weeks since the op. I can only read two lines through pinholes on a chart at the moment but am told this could improve either in time or when the stitches come out, in around 12-18 months time. As the stitches come out, a few at a time, the vision is likely to alter. When the final stitch is out, then it will be determined if I need to wear a lens in that eye to correct the vision.
I do suffer from light sensitivity and they water from time to time but all is well.
I just worry about rejection but am told that I will know when it happens because it will be very painful!!
I have fingers crossed and hope that all goes well for you too.
Jane Webb
< replied-to message removed by QT >
I too woke up one morning to see a cloudiness in my right eye. I thought maybe I had rubbed my eye too much in the night. On the second day I called my optician who had been treating my KC in that eye for last 4 years with a corneal contact lens.
She diagnosed hydops and said that a graft was my only option and referred me to the local eye clinic. I had to wait 3 months to determine whether it would scar and it did. Another 3 months later I had the graft and it's now been 7 weeks since the op. I can only read two lines through pinholes on a chart at the moment but am told this could improve either in time or when the stitches come out, in around 12-18 months time. As the stitches come out, a few at a time, the vision is likely to alter. When the final stitch is out, then it will be determined if I need to wear a lens in that eye to correct the vision.
I do suffer from light sensitivity and they water from time to time but all is well.
I just worry about rejection but am told that I will know when it happens because it will be very painful!!
I have fingers crossed and hope that all goes well for you too.
Jane Webb
< replied-to message removed by QT >
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Scott J
Hi,
Im a KC suffer who is awaiting thr operation, im due to go early January 2004, I am very nervous of going as dont like pain, operations etc, Can anybody help and give me a honest answer wither or not its good or bad. How long are you in Hospital for and what length of time seems to be the norm for recovery ie being able to see again.
I have also been advised not to fly for 5 years after operation.
Well see you all (pardon the Pun)
Im a KC suffer who is awaiting thr operation, im due to go early January 2004, I am very nervous of going as dont like pain, operations etc, Can anybody help and give me a honest answer wither or not its good or bad. How long are you in Hospital for and what length of time seems to be the norm for recovery ie being able to see again.
I have also been advised not to fly for 5 years after operation.
Well see you all (pardon the Pun)
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Jay
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sajeev
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Brian Taylor
Hello Scott
Don't worry about the pain, your eye will feel sore like you have an eyelash in it and you will more than likely have a headache. Ive had 4 grafts over the last 30 years and the last 2 in 1996 were a breeze, in and out of hospital overnight. Once the graft is done then the real work begins, you must rest for a week or two to allow the graft to heal and bond with your cornea no bending down no heavy lifting no sports just rest. You will have periods of discomfort as it heals do wear an eye patch at night and wear dark glasses during the day not just to protect the eye from light which it will be sensitive to but also to protect it from physical injury. In the first 6 months if you notice any changes like sudden pain or soreness out of the ordinary ring the hospital, you do need to be aware of rejection in the early weeks.
Don't judge the graft by your vision until about 6 months it will change a lot and the drops in the early stages will effect what you can see. Re flying for 5 years its new to me, which hospital told you that, after my grafts in 1996 I was working in Spain so I was on an aircraft every few weeks with my consultants approval!!
Good luck
Brian
Don't worry about the pain, your eye will feel sore like you have an eyelash in it and you will more than likely have a headache. Ive had 4 grafts over the last 30 years and the last 2 in 1996 were a breeze, in and out of hospital overnight. Once the graft is done then the real work begins, you must rest for a week or two to allow the graft to heal and bond with your cornea no bending down no heavy lifting no sports just rest. You will have periods of discomfort as it heals do wear an eye patch at night and wear dark glasses during the day not just to protect the eye from light which it will be sensitive to but also to protect it from physical injury. In the first 6 months if you notice any changes like sudden pain or soreness out of the ordinary ring the hospital, you do need to be aware of rejection in the early weeks.
Don't judge the graft by your vision until about 6 months it will change a lot and the drops in the early stages will effect what you can see. Re flying for 5 years its new to me, which hospital told you that, after my grafts in 1996 I was working in Spain so I was on an aircraft every few weeks with my consultants approval!!
Good luck
Brian
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Brian Taylor
Jane
Ive had 4 grafts since 1975 and one rejection episode in 2001, I had NO pain with the rejection what I did have was haloes like rainbows around lights in the dark this was the only symptom no redness either.
Rejection is not as common as you think but can happen so you are right to think about it. If you get any symptoms out of the ordinary contact the hospital within a few hours rejection can be easily stopped but must be caught EARLY.
Don't worry about the vision after 7 weeks it will be 12 months before it settles and will improve with time, you are right about the stitches, they can alter the shape of the cornea to improve the vision by removing some stitches and leaving others in ive still got 6 in one eye and 8 in the other and they will stay there.
Brian
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Ive had 4 grafts since 1975 and one rejection episode in 2001, I had NO pain with the rejection what I did have was haloes like rainbows around lights in the dark this was the only symptom no redness either.
Rejection is not as common as you think but can happen so you are right to think about it. If you get any symptoms out of the ordinary contact the hospital within a few hours rejection can be easily stopped but must be caught EARLY.
Don't worry about the vision after 7 weeks it will be 12 months before it settles and will improve with time, you are right about the stitches, they can alter the shape of the cornea to improve the vision by removing some stitches and leaving others in ive still got 6 in one eye and 8 in the other and they will stay there.
Brian
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Sue Ingram
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umbilica@umbilical.demon.
Sajeev,
From your missionary zeal for this INTACS, I am deducing you
have some financial interest in promoting this. Please enlighten us as to precisely what this financial interest is.
As regards it not being available in the UK - presumably this is because our health authorities do not (yet) believe that it is
either safe or effective (or both). Until any medical products
are, it is far better they are not used upon unwary potential
victims. I'm sure everyone here will agree that medicines and
medical procedures must be proved and accepted to be safe and
reliable before they are licensed for use. Let there be no more
horror stories! - remember Thalidomide? - or the DES Daughters? - or the arthritis tablets there have recently been all the court
cases about, and whose name I forget off-hand?
Rosemary
--
Rosemary F. Johnson
From your missionary zeal for this INTACS, I am deducing you
have some financial interest in promoting this. Please enlighten us as to precisely what this financial interest is.
As regards it not being available in the UK - presumably this is because our health authorities do not (yet) believe that it is
either safe or effective (or both). Until any medical products
are, it is far better they are not used upon unwary potential
victims. I'm sure everyone here will agree that medicines and
medical procedures must be proved and accepted to be safe and
reliable before they are licensed for use. Let there be no more
horror stories! - remember Thalidomide? - or the DES Daughters? - or the arthritis tablets there have recently been all the court
cases about, and whose name I forget off-hand?
Rosemary
--
Rosemary F. Johnson
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umbilica@umbilical.demon.
Scott said:
I have also been advised not to fly for 5 years after operation.
What?!!! - you mean, travel as a passenger of an airline?? (I
presume you don't mean, at the controls as a pilot?)
Five years?? That's a loooooooong time.
I presume it relates to the (normally) reduced air pressure in
the cabin. SO I can see some point.... but all the same, that's a long time. And very disruptive to any Brit having
international business travel commitments.
Goodness!
Rosemary
(currently on the board of a Europe-wide voluntary organisation
and likely to have great problems if barred from flying)
--
Rosemary F. Johnson
I have also been advised not to fly for 5 years after operation.
What?!!! - you mean, travel as a passenger of an airline?? (I
presume you don't mean, at the controls as a pilot?)
Five years?? That's a loooooooong time.
I presume it relates to the (normally) reduced air pressure in
the cabin. SO I can see some point.... but all the same, that's a long time. And very disruptive to any Brit having
international business travel commitments.
Goodness!
Rosemary
(currently on the board of a Europe-wide voluntary organisation
and likely to have great problems if barred from flying)
--
Rosemary F. Johnson
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