Quicktopic posts: Oct 2003

[sarah marsh]

for meg...
a while ago i posted a message on here reguarding pregnancy and cornea graph. i had transplant last august and just a weeks after op i was told that i shouldnt even try for a baby due to hormones and changes in cornea during pregnancy, and a risk of causing a rejection my chances would increase. although if u r pregnant at present i doubt that they would operate. i was concerned after op as the eye drops i am on you cant use during pregnany.
i knew that if i was preganant before op that i would have to wait until the baby was a year old which i couldnt afford to do.
i have some pregnancy info that i found when i was reseaching pregnancy and transplant if u wish to know more please feel free to email me on starlight7723366@aol.com.
the information that i was told may be different from what u might be told as everyone seems to be given different info on every aspect on KC. listen to u doctor/surgeon etc and follow their advice.
sarah

[Janet Manning]

Hi Meg,
If it is essential that you have a corneal graft while you are pregnant, then there is no need for a general anaesthetic. Both my grafts were done under locals, with much more rapid initial recovery rate and no need to stay in hospital. However I agree with Sue's advice to avoid the whole procedure during pregnancy if you can. The use of steroid drops afterwards is essential and despite what the docs may tell you, there will be some systemic absorption, which is best avoided during pregnancy.

Have you tried scleral lenses? You may be able to avoid transplants altogether with these.

Hi Eamonn,
Glad everything is going well so far. So what was the outcome of the "bigwig's" meeting?
Janet

[Rob Armstrong]

Hi Brian.

Sorry, I don't think there is a website. The guide I was referring to was an idea mentioned in earlier posts. It was suggested that images produced as part of a research project, (which created distorted images to show other people what KC is like) could be published as a guide.

Sorry I couldn't be more help, but I believe that the KC group does publish leaflets, maybe someone else on here can point you in the right direction.

Rob.

[umbilica@umbilical.demon.]

Eamonn said:
What is
the legislation about applying for employment...do we tell
them that we have KC with the risk that we get shot down
straight away or do we be honest and hope that they act in a
decent manner.

Personal answer ....

If they ask, tell them.

If they ask and you don't tell them, then a) you've given false
information on your application which is grounds for sacking
you; and b) you can't expect them to make "reasonable
adjustments" or make other arrangements if they don't know what
the problem is.

If they don't ask.... why give yourself a disadvantage at the
point they first hear of you?

But again, if you are going to need special facilities or
arrangements, you will have to tell them somewhere during the
recruitment process, or they won'tbe able to help.

Rosemary

--
Rosemary F. Johnson

[umbilica@umbilical.demon.]

John said:
think the problem is that the machine is working out a personal function for each of us and, as has been said often before,
we're all different!

Glad you like the idea!

Maybe the leaflet/whatever could have a few samples of what some different people see like? - and someone doing those forms could say "My vision is like "Person B on this leaflet" or whatever.

Incidentally, does anyone know how the study is progressing,
what results they're coming up with, etc? - I seem to recall
some folks on here getting suggestions that a different sort of
lens might help them.... when I went, they just asked me "Has
anyone at Moorfields suggested a corneal transplant?" and then
decided not to do the last section as I was too light-sensitive
(I found the machine with the pink concentric rings quite
painful; uncomfortable even when the brightness was turned down, and it kept turning itself back up to full strength again).


Rosemary

--
Rosemary F. Johnson

[Brian Taylor]

Thanks Rob


Brian

-----Original Message-----
From: QT - Rob Armstrong
[mailto:qtopic+6-A46Jzt4sJAXLTWnJNHsx@quicktopic.com]
Sent: 05 October 2003 20:51
To: QT topic subscribers
Subject: Keratoconus

[Carole]

Meg

Re-pregnancy and corneal transplantation

I was told whilst on the waiting list for my corneal transplant that if I was planning a baby then to have one before the surgery. So I had my baby 11 years ago who was 4 months old when I had the op. He even came into hospital with me because I was breast feeding! We didn't worry about the effects of the steroid eye drops because by then I was only on one or two drops daily and they are topical therefore not a lot of systemic absorption.

I was pregnant with twins when I had my second op to the transplanted eye. Because of its awful shape and a lot of astigmatism, the surgeon took me back to theatre to re-fashion the graft (basically to cut it and re-suture a few places). It was an experience I never wish to repeat as was obviously done under a local anaesthetic. No anaesthetist would wish to administer a general anaesthetic whilst pregnant.

[Nassar]

Hi all

I got my contact lens for my keratoconus last tuesday, have had a few difficulties putting them in, getting better. I have been wearing them over the days for a few hours, more and more. But the last two days i have noticed my eyes are a little bit red. Could you please let me know what it could be???

Please email me on mohd_naz@hotmail.com

[Paul Harris]

I have worn a GP lens in my left eye for over 10 years but recently I have been wearing a replacement lens made of a hybrid FS material as the original lens broke the replacement is supposed to be the same but it is just not as comfortable. This is ruining the quality of my life. Also I have been wearing a soft lens a daily focus in my right eye for approximately 4 years as there is a mild condition of keratoconus in this eye to. I have been fitted with a GP for this eye too but it seems to cause a lot of discomfort and the vision does not seem balanced and the optician has had many attempts over the past 12 months to get the right eye correct but to no avail.


I am desperate to try whatever you can advise I am 34 years old and a gents hairdresser running my own business and because of my vision it is making my job very difficult and causing me great distress my tolerance to GP lens is poor so would softperm lenses be a good option or as a last resort Scleral lens .
Can anyone tell me about softperm lenses and how they get on with them.
Also can anyone tell me about scleral lens if you wear them many thanks .
I look forward to hearing from you soon.

[Paul]

I have worn a GP lens in my left eye for over 10 years but recently I have been wearing a replacement lens made of a hybrid FS material as the original lens broke the replacement is supposed to be the same but it is just not as comfortable. This is ruining the quality of my life. Also I have been wearing a soft lens a daily focus in my right eye for approximately 4 years as there is a mild condition of keratoconus in this eye to. I have been fitted with a GP for this eye too but it seems to cause a lot of discomfort and the vision does not seem balanced and the optician has had many attempts over the past 12 months to get the right eye correct but to no avail.


I am desperate to try whatever you can advise I am 34 years old and a gents hairdresser running my own business and because of my vision it is making my job very difficult and causing me great distress my tolerance to GP lens is poor so would softperm lenses be a good option or as a last resort Scleral lens .
Can anyone tell me about softperm lenses and how they get on with them.
Also can anyone tell me about scleral lens if you wear them many thanks .
I look forward to hearing from you soon.