Quicktopic posts: Sep 2002

[Sue Ingram]

RE: THAMES PATH WALK TO RAISE MONEY FOR THE KC GROUP

Hi All, Just to let you know that Mike, Anne, Jill, Colin and myself completed the first 18 miles of the Thames Path Walk yesterday, from the source at Kemble in Gloucestershire to Castle Eaton. It was a great day - we had mostly sunshine and only a little rain but the countryside was beautiful and we had a good laugh. Colin became our 'leader' as he is the only one with 'normal' sight and could see the signs!

Mike, Anne and Jill have now successfully completed the second day today. Mike is intending to walk the whole 180 miles (either mad or stupid!). Colin, myself and various others will be joining him on the other days to help and encourage him on his way. As Mandy says, if you wish to sponsor Mike to help raise funds for the Group that would be great. Please see details of the Walk on the KC Website, http://www.keratoconus-group.org.uk

We need to raise awareness of Keratoconus and hopefully this is one way of doing it. Good luck, Mike, with the rest of the walk (blister-free, I hope!) Take care one and all. SUE

[Sue Ingram]

Dear Rosemary (919), Yep, you are absolutely right - if you look at the messages on the QuickTopic page, you will see that each one is given the next number - this definitely helps if sometimes you are replying to a msg that is maybe a few days old and is not on the first screen of messages.

This has suddenly made me think - Tony, does this mean we are coming up to having had 1,000 msgs so far on the Discussion Page? If so, I think that's great - perhaps we should have a celebration! Take care. SUE

[Freddy Bull]

Emma,

What delightful news! I am so glad the GCSEs went so well for you. Some of us know what an achievement it is to get those grades, but with KC too - wow!

Keep up the good eye health. It is good that school understand a bit more now. If you can maybe try to tell your tutor all about your KC so that s/he understands for the future.

Your posting lifted my heart!

Freddy

[Emma]

I have just gound out that I have won a raffle and the prize is to have some cash donated to charity. I would like to donate to a KC charity, how do I go about it, where do I send it to?

Hope everyone is well,
Emma

[sarah marsh]

hi all !
hope that everyone is well!
to anyone who has had corneal transplant can u tell me how long it was before you opened operated eye! my transplant was 5 weeks ago and still i dont feel comfortable to open it .
it does scare me to open it , i have for a few seconds but shut it quickly !
any advice or opinions welcomed
thank you
love sarah x

[racing@umbilical.demon.co]

Sue, any chance that start times/meeting points could be posted
onto the list?

Rosmeary

--
Rosemary F. Johnson

[Robert Smith]

Hi Sarah

I had a graft in January. For the first 24 hours or so I had a patch over my eye but once that was off I could open my eye a bit - it was a bit puffy - but I wanted to see out. Although it was often more comfortable to keep it closed I tried to use it as much as possible. It was about 3-4 days before it was reasonbly OK and it took a couple fo weeks for all the swelling and redness to fade. I would advise you not to be afraid - unless it hurts or is uncomfortable in which case I would go back to the hospital. DO tell your specialist that you are worried about opening your eye.

Hope that helps

Robert

[Dipti]

Hi Sarah,

Hope u are well?
When i had my graft done, I tended to keep my eyes closed more due to the fact that they were so sensitive to the light...so it became very uncomfortable to keep them open for a long time.
When are you next going to see your surgeon??

[sarah marsh]

robert smith and dipti
hi and thank you both for your replies.
i am seeing surgeon on friday ( 13th ) of all days ! for second visit( well 3rd if u count hosptial stay).
wot will they do at this visit ? just check it?im worried if i have to keep it open when i see him . after op the nurses gave me alot of information which was incorrect and they told me day after op eye should be open all the time .
i will mention to surgeon about keeping it shut !
thanx again
love sarah x

[John Smith]

Hi Sarah,

What information did the nurses give you that was incorrect? It's not necessarily wrong that you should try to keep the eye open. The new cornea certainly needs oxygen, and the main place it'll find it is in the air - but only with your eye open.

I too was very scared of keeping my eye open, but I was given a clear plastic eye shield which I wore all the time when outdoors or in bed for about 4-6 weeks, but after a couple of days was comfortable enough in the house not to.

As Robert said though, make sure that you let the surgeon know.

Best of luck for Friday.

John