Being by the water just isn't enough :(

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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GarethB
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Keratoconus: Yes, I have KC
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Postby GarethB » Thu 16 Mar 2006 9:29 pm

Andrew,

You make me laugh, I am sure you will understand when I say you appear on many occasions to be a few perishiners short of a congregation :D
Gareth

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Louise Pembroke
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Postby Louise Pembroke » Fri 17 Mar 2006 12:27 pm

Sweet as Jay said there are degrees of rejection, this one could clear up ok, fingers crossed. Unpaid sick leave, that's appalling, you shouldn't be in that position, I'm so sorry
Director of Sci-Fi and Silliness and FRCC [Fellow of the Royal College of Cake]

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Sweet
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Keratoconus: Yes, I have KC
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Postby Sweet » Fri 17 Mar 2006 6:56 pm

It's all ok, i should be used to it by now. I just kinda hoped that there would be longer between me being off sick! :oops:

Thanks, Sweet X x X
Sweet X x X

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Andrew MacLean
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Postby Andrew MacLean » Fri 17 Mar 2006 7:02 pm

Gareth

A few pensiones short of a congregation is good. :D I'm going to use that!

I used to like the sandwitch short of a picnic.
Andrew MacLean

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jayuk
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Postby jayuk » Fri 17 Mar 2006 8:30 pm

So how did your appt go?

Did you have a rejection or was this a mix up from the other issues in the eye?

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

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Sweet
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Keratoconus: Yes, I have KC
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Postby Sweet » Fri 17 Mar 2006 8:48 pm

It was cancelled a few nights ago and Daya wasn't in today. I am going to Moorfields next week as a follow up in the primary care clinic so will know more then. Eye is not so painful today but having had ulcers before this means nothing really. Thanks for asking.
Sweet X x X

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jayuk
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Postby jayuk » Fri 17 Mar 2006 8:55 pm

So does this mean it may not have been a rejection?.....From what you say; it may be a mixture of things; and the other conditions which you refer to could easily surface on the epithelium?......I would also suspect that cancelling a appt would indicate it may not be a rejection as to me; this is very serious and would need attention and for you to be seen at least once in 5 days?

Its also VERY worrying, that you say you have Iritis or Herpes Simplex; They are like chalk and cheese...in terms of how they look under a slit lamp........you would need to be very drunk whilst looking at these to actually say you have either one of them lol....or am I correct so assume that this was your understanding from scattered bits of information?

You said that you are on the same drops etc since last week; which would indicate that there was not a change post visit last week?

I find this intriguing as you will be one of the first people who I know of that has had a DALK rejection! in the whole world! (however I do understand that I dont have visibility of all DALKS lol)..So I am hoping this is not the case :-)

J...
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP

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Andrew MacLean
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Postby Andrew MacLean » Fri 17 Mar 2006 10:20 pm

Claire

I'm with jay. I always reckon if they cancel an appointment things can\t ba as bad as I'd feared/

I think that they start looking at the worst possible cause, strike that one off then default to the second worst, strike it out and so forth until they actually find out what's going on

A slow diagnosis is good news, in my book

I hope I never have to introduce you as the first of my friends to have suffered the rejection of a DALK. I'd much rather introuduce you as one of my friends with a successful DALK
Andrew MacLean

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Sweet
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Postby Sweet » Fri 17 Mar 2006 10:37 pm

Ok i think i have confused everyone including myself so i will try to explain!

I had the graft done on my left eye and had an appointment with my surgeon last Friday to check the stitches but woke up with pain etc in the other eye. He looked at both eyes and thinks there is a rejection in the grafted eye but it must be very mild as am on the same eye drops. He didn't seem to be worried and said that it was extremely unusual and to see what happens.

With the other eye i think i confused him at first as i said i had been diagnosed with iritis last summer at Moorfields and that it felt the same to me. He had a look and then came up with herpes instead although it is presenting as being a straight line and a slight dentritic ulcer which confused him as well. I am going with the idea though that i probably had the herpes virus last year and was wrongly diagnosed as my surgeon did see this eye a week after that when i was preparing to sign the consent forms for a graft and said that if it was iritis it healed dam well in a week! As eye problems never heal well with me i'm thinking that herpes was probably the answer. What got confusing was not that he didn't know if it was iritis or herpes but that he thought that maybe i have herpes in my grafted eye as well as it can look like a slight rejection. However if he thinks this i am only using aciclovir eye cream in my right eye not my grafted one but i guess that the virus would be better than a rejection. Although from reading it is more unusual to get it in both eyes.

My appointment got cancelled as my surgeon isn't around and the lady i had last time was busy. After seeing my surgeon last week i went straight to Moorfields not because i didn't trust what he had said but because it wasn't the eye he cares for and i wanted it on my record. After all the sick leave i have had with my ungrafted eye i still haven't seen a consultant to check things out as after 15 yrs with no problems there does seem to be something wrong to me. I don't think they believe how much time i have had off as some of it i spent being seen in Wales so i want it to be documented here.

So yes i am going with the idea that if there is a rejection it is very mild as my surgeon is far from worried but i do want to check in with him when he gets back to see. I would think it was herpes as well but after reading it is unusual in both eyes i don't really know. As with most viruses though i would think that it was highly contagious so having it in both eyes seems quite reasonable to me.

On the other eye i need to go to the primary clinic next week and get someone to look at it to check i don't have an ulcer and to keep taking the anti viral drugs.

Either way i just want to put my lenses in so that i can see!! Am not overly worried about the grafted eye i trust my surgeon to know what he is doing. After all as Moorfields said they didn't really know why i left a top surgeon to go and check in with them! But they did understand me needing it to be on my record with them. I am just more concerned with my right eye as even with all the trouble it has had, right now until my grafted eye sees well enough it is still my only good eye.

Hope that made more sense! Sweet X x X
Sweet X x X

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jayuk
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Postby jayuk » Fri 17 Mar 2006 11:04 pm

Ahhh Thats better!..now its makes more sense!

I really do hope its not a rejection...even mild.....as that would be such a bummer...it will be interesting to see what the consultant says...when you see him next.....

J
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP


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