Witty KC come backs

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
John Smith
Moderator
Moderator
Posts: 1941
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Fri 10 Feb 2006 1:38 am

Sweet wrote:Hehehe oh please don't make me laugh anymore i've got a stitch now!! :wink: :twisted:
Quick! put it in your eye! I've heard you're a few short! :lol:

I did use it but it was nasty to use and gave you such blurred vision as well so i do sympathise with Knight!
So do I! I've only had them at the hospital as an outpatient, and that was bad enough trying to find my way home :( Oh, and I had them immediately prior to my graft too. Probably helps with centreing the trephine <<shudder>> :shock:
John

User avatar
Knight
Chatterbox
Chatterbox
Posts: 188
Joined: Thu 12 May 2005 1:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: classified

Postby Knight » Fri 10 Feb 2006 2:45 am

John Smith wrote:...I hadn't realised that you were still on dilating drops - that must be hard. I didn't have them, and I'm rather pleased, too! Was that because it was a DALK (did Sweet have these?), or just the way your surgeon works?...


I was given just prior to my op: Alocardine 2 % 3 drops over 15mins, (I took the note from my bed-chart the spelling might be wrong) but those stung like hell and made my pupil as small as a pin hole and I could actually feel the tension of that just above my eye socket - and even with taking the other drops to dilate it again it took days before it was normal. But from the drops that I am taking:

Minims Dexamethasone (1 drop 4x daily)
Mydrilate (1 drop [stings] twice daily)
Chloramphenicol (1 drop 4x daily)

Minims Dexamethasone, Steroid, for non-infectious inflammatory conditions of the anterior segment... which is also playing a role in my vision - paralyses the ciliary muscle (making it impossible to focus on near objects). Some side effects: a rise of IOP (> 30 mm Hg) can occur in certain individuals; peripheral corneal thinning or scleral "melting" leading to perforation; over-use can increase risk of secondary infection by opportunistic pathogens (e.g. viruses and fungi); cataract can develop in susceptible individuals with prolonged use (especially if there is substantial compromise of the ocular surface barriers) - wonderful

Mydrilate, its main use if for pupil dilation, but with it containing Cyclopentolate 'anti-muscarinics'. Cyclopentolate blocks the receptors in the muscles of the eye (muscarinic receptors). These receptors are involved controlling the pupil size and the shape of the lens. It is also used to relax the muscles that inflame and over-contract in the eye in certain conditions - a side effect of which is the "dry as a bone" sensation that I'm getting, there are other...meh... ocular side effects include blurred vision...there are many side effects of this, and its the balance and duration taken thats the key. I Think with having such a graft its important that my eye muscles not be pulling or stretching things, so far so good ...

Chloramphenicol is a broad-spectrum antibiotic, cause your vision to blur temporarily after you have applied them into your eye. I do get this blur, it lasts for about 20mins to 45mins and quickly eases off but the problem is, when it starts to wear off I'm taking another drop so its constantly affecting my sight, with the burryness and cloudyness

So yeah, having researched it more the other day, I think this is something my surgeon favors - I'm expecting my drops to be changed, at least the Mydrilate, so that I can start 'using my eye' once its had time to attach itself properly.
Only those with KC know the hidden beauty of a Christmas Tree.

User avatar
jayuk
Ambassador
Ambassador
Posts: 2148
Joined: Sun 21 Mar 2004 1:50 pm
Location: London / Manchester / Cheshire

Postby jayuk » Fri 10 Feb 2006 8:23 am

I wonder why they have put you on Mydrilate now though?...
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

User avatar
Sweet
Committee
Committee
Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Fri 10 Feb 2006 9:23 am

Yea i did wonder as well as i don't think it is a DALK thing as i didn't have any dilating eye drops! Mydrilate takes ages to wear off though doesn't it though you probably wouldn't notice as you are using it so much. It took four days before my pupil was the 'normal' shape and reacted to light when i stopped using them! LOL!

Sweet X x X
Sweet X x X

Image

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Fri 10 Feb 2006 10:25 am

I had a bad reaction to Dexamethasone. Post op I used Dexamethasone eight times a day for the first eight months or so. The problem was that after using it my sight was very blurry for at least an hour.

As things worked out, when I went for my appointment at the clinic I used to put in my drops immediately I arrived at the hospital. I would then be taken for a refraction and they found that my sight was just dreadful with no measurable improvement.

I would then go and wait to be seen by the ophthaomologist. By the time I got into his or her consulting room, my sight was recovering from the last onslaught of Dexamethasone and getting ready for the next dose, which I usually had to administer before leaving the hospital.

I got tired of this and decided one time not to use Dexamethasone for four hours prior to my clinic appointment. I explained to the optometrist what I had done, and she found that I could make out the top line at 3 meters :D

Result!

I was afraid that I'd be in trouble when I saw the consultant ophthalmologist, but he was cool and said that this was a frequently observed contraindication of Dexamethasond Minims. He changed my steroid to Prednisolone, (the milky white eye drop marketed as Pred Forte) once a day.

Knight, why not say to your Ophthalmologist that you are having difficulty on using your eye drops. It may be that she or he will find a cocktail of drops that is less troublesome for you.

Like the others, I'm bamboozled by the Mydrilate.

Andrew
Andrew MacLean

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Fri 10 Feb 2006 11:04 am

I am bamboozled by the miriad of drops you guys are having to use for grafts.

Back in 1989 and 1991 I only had three, antibiotic cream I think it was, the rejection drops and one for the initial soreness. Antibiotics were oly about a month as were the ones for a sore eye. The rejection ones were not used after the three month mark each time!

Still convinced that modern society is too heavily relient on medication when the body can do a very good job a looking after itself in many cases despite the odd exception.
Gareth

User avatar
Sweet
Committee
Committee
Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Fri 10 Feb 2006 12:00 pm

Hehe yes there are loads of drops here i think! I am only only FML four times a day and have been for the last three months. This works quite well for me as i remember them because i choose 8 12 4 and 8 to put them in. This way one drop when i start work at 8 one when i leave just after 8 and somehow i seem to remember the other two as they are around my lunch and evening breaks!!

Not bad really for someone with a memory like a sieve unless it's patient care related!! :wink: :lol:

Sweet X x X
Sweet X x X

Image

User avatar
Knight
Chatterbox
Chatterbox
Posts: 188
Joined: Thu 12 May 2005 1:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: classified

Postby Knight » Fri 10 Feb 2006 12:37 pm

Well I phoned my doc regarding the Mydrilate, and it is noted that I am only to take them for no more than 14 days by which time I'll have seen my surgeon again the day I stop taking them actually.
I've asked why I was prescribed them in the first place and in layman terms was told 'to keep my eye relaxed post op' they said once I stop taking the Mydrilate my vision will improve.
Judging that these drops "control the shape of the lens and relax the muscles that [can] inflame and over-contract in the eye" its sounds more like a precaution and regarding the graft attaching better in a stable relaxed state its sounds reasonable that that is also a factor why he prescribed them.
But I am now very curious, so I'll ask my surgeon when I see him next.
Only those with KC know the hidden beauty of a Christmas Tree.

User avatar
madmish
Contributor
Contributor
Posts: 32
Joined: Thu 31 Mar 2005 8:14 pm
Location: wigan

Postby madmish » Fri 10 Feb 2006 2:37 pm

love comeback quotes they are fab!!!!
liverpool fc champions of europe!!!!

User avatar
jayuk
Ambassador
Ambassador
Posts: 2148
Joined: Sun 21 Mar 2004 1:50 pm
Location: London / Manchester / Cheshire

Postby jayuk » Fri 10 Feb 2006 2:42 pm

Knight

Now that you mention it , I was given it every 15 mins for 60 mins one hour before my Graft! That, and Chloramphenical!

But after the op, I was only on Maxidex and Chloram!

Andrew - Have you had any signs of Cataracts?

Jay
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 44 guests