Charlotte has had a hydrops today - am beside myself

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Charlottes mum
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Joined: Tue 24 Nov 2009 5:14 pm
Keratoconus: No, I don't suffer from KC
Vision: I don't have KC

Re: Charlotte has had a hydrops today - am beside myself

Postby Charlottes mum » Wed 30 Jan 2013 9:40 pm

Thanks Ann. yes I did read that. I know what you mean and of course it makes perfect sense. I am just tired and worried I guess. thank goodness this forum is here. its quite lonely as mum of a KCer when we don't actually get to meet any others let alone KCers with DS! thank you again. Charlotte has had a lovely evening with her friend/support worker, pizza buffet and dancing on the Wii . should she be careful to keep her head up and not go too crazy dancing etc at this stage of the hydrops? I don't want to spoil her fun but we haven't really been told much else really. she attends a gym club for people with downs. its all very low key but should she be giving it a miss or just the forward rolls? thanks.
"Promise me you'll always remember that you're braver than you believe, you are stronger than you seem and smarter than you think" .....Winnie the Pooh


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