DLA &Keratoconus

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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Andrew MacLean
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Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
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Location: Scotland

Re: DLA &Keratoconus

Postby Andrew MacLean » Tue 19 Jun 2012 2:43 pm

Blush

I think I contributed to this string running into the danger of overheating.

To Coley I owe an apology; yours was a reasonable enquiry. This whole business of seeing well with lenses and hardly at all without them is disorienting for us and bewildering for our families. That said, I can easily think of worse circumstances. I never feel comfortable with describing the KC experience as 'suffering from' KC and usually try to talk about "living with" the condition.

Elizabeth has touched on an issue with which we all have had to deal. People see us with lenses in, coping well with the world. Then they see us, appearance unaltered, with lenses out and we are struggling to see. Anne's idea about a new kind of registration did look, at one time, as if it might have legs but I'm afraid that more strident voices have all but stifled the moderate request of some odd folk who are sometimes short sighted.

Coley, with no disrespect to you or to Lea (space_cadet), I'm going to close this string. Let me repeat my sincere apology for having contributed more to heat than light.

Andrew (was registered blind but now able to see well enough to drive).
Andrew MacLean


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