All the best with your Yorkshire group. Elizabeth Mair set up the Scottish Group and I'm, sure she'll gladly share any and allepxerience.
Andrew
Calling any keratoconics in Yorkshire
Moderators: Anne Klepacz, John Smith, Sweet
- Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
- Louise Pembroke
- Champion
- Posts: 1482
- Joined: Sat 21 Aug 2004 11:34 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Off topic but in Yorkshire, I'll be peforming a dance at Bradford University later in the year, the event will be free, so if you want to see it, put your contacts in and message me for details which I'll have sometime soonish. We can talk eyes over a cuppa afterwards if you want.
Director of Sci-Fi and Silliness and FRCC [Fellow of the Royal College of Cake]
- Helen Turner
- Contributor
- Posts: 33
- Joined: Fri 03 Dec 2004 11:13 am
- Location: East Yorkshire
KC in Yorkshire
Rowan,
That was a surprise as i live in Beverley. Who was your consultant at Hull Royal? Was it a Mr Stewart, he's pretty nice. I'm on regular visits with Mr Melia, contact lens guru at Hull Royal. I'm surprised he hasn't given up on me and my scleral lenses as they are just taking an age to get right. gotta go think i've found another air bubble....
That was a surprise as i live in Beverley. Who was your consultant at Hull Royal? Was it a Mr Stewart, he's pretty nice. I'm on regular visits with Mr Melia, contact lens guru at Hull Royal. I'm surprised he hasn't given up on me and my scleral lenses as they are just taking an age to get right. gotta go think i've found another air bubble....
- Helen Turner
- Contributor
- Posts: 33
- Joined: Fri 03 Dec 2004 11:13 am
- Location: East Yorkshire
Reply for Andrew Maclean
Andrew,
Thanks for the contact. Do you have a contact e-mail address or something for Elizabeth i wouldn't mind getting a bit of advice.
Thanks
Helen
Thanks for the contact. Do you have a contact e-mail address or something for Elizabeth i wouldn't mind getting a bit of advice.
Thanks
Helen
- John Smith
- Moderator
- Posts: 1941
- Joined: Thu 08 Jan 2004 12:48 am
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and spectacles
- Location: Sidcup, Kent
Helen, you can get hold of Elizabeth by sending her a PM (this link). It will also be worth having a chat with Anne Klepacz.
John
- Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
- Andrew MacLean
- Moderator
- Posts: 7703
- Joined: Thu 15 Jan 2004 8:01 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Scotland
Rowan
Good to hear from you, and all the best at the Yorkshire meeting.
If you want to "chat" on line about the procedure that you have had reccomended, go back to the index and click "new topic" button. Type something like "been told I need a graft" into the subject line and in the text box explain something about your experience with KC and what you were told at the Hospital.
It won’t be long before folk have started to share their experience and offer any insights.
All the best
Andrew
Good to hear from you, and all the best at the Yorkshire meeting.
If you want to "chat" on line about the procedure that you have had reccomended, go back to the index and click "new topic" button. Type something like "been told I need a graft" into the subject line and in the text box explain something about your experience with KC and what you were told at the Hospital.
It won’t be long before folk have started to share their experience and offer any insights.
All the best
Andrew
Andrew MacLean
- Rowan Whymant
- Newbie
- Posts: 3
- Joined: Mon 19 Dec 2005 5:20 pm
- Location: Hull,East Yorkshire.
KC in Yorkshire
Helen,
Yep. It was a certain Mr.Stewart who recommended the operation. Should have it done soon really. I saw the Optician beforehand and he referred me to the surgeon so i guess my KC has gone beyond the lenses/contacts stage?
Anyway, i live in Tickton.Sure you've heard of it.
Yep. It was a certain Mr.Stewart who recommended the operation. Should have it done soon really. I saw the Optician beforehand and he referred me to the surgeon so i guess my KC has gone beyond the lenses/contacts stage?
Anyway, i live in Tickton.Sure you've heard of it.
- Helen Turner
- Contributor
- Posts: 33
- Joined: Fri 03 Dec 2004 11:13 am
- Location: East Yorkshire
that was a bit scary
Rowan
That was a bit scary. I live about 5 mins from Tickton. I was told by my lens guy that there was a long wait for grafts at the moment, not sure if the waiting time has reduced by now. I may well have been referred myself by now but for the persistance of my contact lens guru Mr Melia. Have you seen him at all? The consultant said he would happily refer me for a graft and that was about 2 years ago and i'm still trying the contact lens route holding off the graft path for as long as poss. Have you tried ALL lens options?
That was a bit scary. I live about 5 mins from Tickton. I was told by my lens guy that there was a long wait for grafts at the moment, not sure if the waiting time has reduced by now. I may well have been referred myself by now but for the persistance of my contact lens guru Mr Melia. Have you seen him at all? The consultant said he would happily refer me for a graft and that was about 2 years ago and i'm still trying the contact lens route holding off the graft path for as long as poss. Have you tried ALL lens options?
- Rowan Whymant
- Newbie
- Posts: 3
- Joined: Mon 19 Dec 2005 5:20 pm
- Location: Hull,East Yorkshire.
Mr.Melia
If Mr.Melia is the Head Optometrist bloke with the big round office next to the outpatients waiting area, then I have but if not i haven't.
Sorry.I cannot remember the name of the Head Optician/Optometrist.He is slim, quite tall and in his fifties with thinning brown hair.Not the best description! Oh well.
I've got Mr.Stewart's secretary number so i should give her a ring and book an appointment to see Mr.Melia.
A few weeks ago, the waiting list was 8-9months compared to 3-4 months previously due to lack of donor corneas.
Sorry.I cannot remember the name of the Head Optician/Optometrist.He is slim, quite tall and in his fifties with thinning brown hair.Not the best description! Oh well.
I've got Mr.Stewart's secretary number so i should give her a ring and book an appointment to see Mr.Melia.
A few weeks ago, the waiting list was 8-9months compared to 3-4 months previously due to lack of donor corneas.
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