is this normal?

General forum for the UK Keratoconus and self-help group members.

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rosemary johnson
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Posts: 1478
Joined: Tue 19 Oct 2004 8:42 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: East London, UK

Postby rosemary johnson » Tue 10 Jul 2007 11:22 pm

No, you're not alone, Debby!

I normally manage to pick up the right sandwich - then I go to pay for it, rummage in my purse, find, Oh good! I do have a pound coin in there - and promptly pick up the 5p next to it instead!

I'm not normally too bad at stairs - but struggle with slopes. And have great difficulty with one place I've been a few times where the stais are in "mid air" - that is, the steps don't join up to the wall at the edges, so it's very hard to get some context for the series of hroizontal planks.
I also find my balance is a bit wonky sometimes when I'm trying to ride the horse I share - I'm normally OK on the side streets, dodging the neighbours between the parked cars. But sometimes when he starts to play up in the sloping part of the field, when he won't keep straight, and the ground's not striaght, and he's pulling his head up and down and occasionally bucking too and I find myself not too sure which way we are going or what "level" would be if we could find it.
There's one part of our local side street which I'm SURE!! goes downhill whichever way we try to trot along it!
Unfortunately, my right eye - the one I piggyback in - gives the more ghost images and distorted vision, and plays the worst tricks on my balance. And it's the right eye I want working if I'm out inthe traffic, so I can see the cars coming up behind us without having to lean right round. The vision in the left eye is less distorted and less upsetting for the balance - but i don't half feel nervous about going out onthe main road without my right eye working.
And if I try them both at once, they don't half complain! - one being a soft piggybacking cushion and the other other an ordinary RGP scleral with no soft cushion.
Rosemary

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Lynn White
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Joined: Sat 12 Mar 2005 8:00 pm
Location: Leighton Buzzard

Postby Lynn White » Wed 11 Jul 2007 7:35 am

Debby

It does sound like you are having a problem tolerating the prescription. This is no reflection on your optician rather a problem often experienced by people with KC because the prescription tends to change rather a lot in one go. It could be as well that your eyes are simply not working well together which is why you are having the problem with moving objects.

Certainly worth going back and explaining to the optician exactly what you explained to me!

Lynn

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GarethB
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Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Wed 11 Jul 2007 7:52 am

Debby,

It has taken 3 months to get used to my glasses prescription because the right lens is so powerful compared the the left. The right lens is not at full power yet, the optom and I went for a slightly underpowerd lens because it did not give double vision and allowed me to get used to using glasses on the right eye. Soon I hope to get the power boosted and I might be able to get full vision back with glasses although will be looking straight ahead only with more distortion round the edges, but I am sure it will be manageable.

I know I am lucky in that I can take time to get used to glasses because my KC is stable.
Gareth

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timtim
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Joined: Thu 21 Jun 2007 8:22 pm

Postby timtim » Wed 11 Jul 2007 12:31 pm

Yeah, you're definitely not alone Debby. I think I have a lot of the same problems as you. Seems to be because I don't have a good balance between my eyes.

You know what else is a weird thing for me? When I look at things with bars on them. For example, a railing that has vertical bars every few inches apart, or say a grate on the ground. For some reason, Trying to focus on things like that is such a strange sensation for me :shock:


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