C3R Warning Link

[KiaZ]

Here in Italy C3R is cosidered safe by most docotrs if thickness > 400 microns. However in Switzerland and Germany they do C3R even with thinner corneas (I know an Italian guy who has 360 thinckness and went to Dresden to do C3R and seems to be ok)
I'm waiting for doing it here in Italy.

[donna]

So does it stop the KC progressing? Why dont we all have it then?
Whats the catch?

[Andrew MacLean]

1) It does not stop KC progressing. It is offered as a way of managing the condition. Some people have C3R and then still need transplant surgery. Many still need lenses.

2) It is not offered for all stages of KC.

3) there are some indications

You pay your money and you make your choice. If C3R had been available when my KC was still at an early stage I think I'd have taken the risk and had the procedure. Others are more cautious.

Andrew

[donna]

Thanks Andrew

[Sajeev]

The only one time up until now, a transplant was needed (after the Crosslinking done with-in guidelines) was due to an out side factor of a infection from a contact lens (which can happen with contact lens wear). So its not true that some people have had a corneal transplant after Crosslinking.

It is not as simple as dropping B2 Drops, there needs to be enough in the cornea for safety reasons and at the same time be effective in treating the under-line condition as mentioned above. If your close on to needing a transplant Crosslinking WILL NOT give you a new cornea.

On a side point lower than 400 microns thickness corneas can be swelled to 400 microns for treatment to begin.

[GarethB]

We have a member who had the C3R on a relatively advanced case of KC. It stabilised that eye while the other recoverd from a graft. The C3R started to deteriorate with KC progression at about the point is grafted eye was pretty much fully recoverd. This year he had a graft on the C3R treated eye and last I heard all was progressing well.

[Sajeev]

Hello, That C3R is not the Original method, or the standard bearer.

[syed]

Hi, Where can we get c3r done and how much does it cost. Thank you

[Louise Berridge]

Andrew,

You state that C3R does not stop KC progressing. However, C3R has been shown to halt progression for KC, to date. There is approximately 7 years of trials on humans and 2 more years on pigs corneas. Obviously it cannot be said that it stops it indefinitely, because the research isn't there, but I was informed, in all cases, no-one that has received C3R, has had a graft.

Louise

[Matthew_]

My last visit to the optom raised this subject. She said it could be possible because the proffesional va that I subject to might merit it. It was mentioned very briefly in passing, so I could have got the wrong end of the stick. I thought she said it was now available on a kind if trial basis in the NHS. Did I hear that right do you think? The issue for me is that an employer may employ me as a seafarer even with the 6/120 I have in the left eye but they are more nervous about the stability of the condition. There are no guarantees of course with C3R but it sounds interesting. I will raise it with the opthomologist when I see him next month.