Piggyback flexlens (or something like it) in London

[rosemary johnson]

Ioannis has been told he has scarring on his cornea after an oedema (edema in US spelling) and mustn't wear RGP [corneal, I presume] lenses any more.

that sounds odd to me! DO you mean scarring inthe deeper layers of the cornea resulting from what we call a hydrops? (there's an explanation of this on the home page.) If so, your doctor reckons she knows something ours don't, because here hydrops is not reckoned to be caused by contact lenses - or not so far as I've heard.
Scarring on the very surface of the eye caused by abrasion - rubbing - of the lens of the surface layer sounds more likely to lead to a ban on wearing the lens...... by then, why [o]edema...?

I've been piggybacking in my right eye for about 18 months now. It is definitely more comfortable than the hard lens on its own without the soft one underneath, and the inconvenience of having to manage two lenses at a time is not as bad as I'd feared at first.
Hope you get sorted out with the right lens or lenses.
Rosemary

[Ioannis Kouraklis]

I have received recommendations from many people. They suggest that I should:

1) visit Neil Cox in Moorfields (in order to use rose-k2)

2) visit Mr Scott Hau in Moorfields (in order to use rose-k2)

3) try scleral lenses

4) try a cornea-scleral lens (I do not know if this is available in uk)

5) try a hybrid lens called Synergeyes (I do not know if this is available in uk, too)

It seems I have to pay about 600pounds for both eyes.

Any suggestions?

[Andrew MacLean]

I think the advice about Rose K and Sclerals was really to indicate the range of different lens types and styles that is now available. The trick here is not to get you to wear a particular sort of lens, but to indicate that if one sort is not suitable, there are others still to be tried.

Andrew

[Ioannis Kouraklis]

I beleive this too, but I do not know if there is an expert who knows about all available types...
May be they use to use one type of lens each of them.

[Andrew MacLean]

I found a positive advantage in seeing the hospital optometrists at Gartnavel Hospital in Glasgow was that they were well used to fitting lenses to KC eyes, and they knew the full range of lens styles and materials, and the advantages and disadvantages of each.

I ran the full gambit, rose k, scleral, kerasoft, piggy back ... etc

Never give up hope.

Andrew

[GarethB]

I think many high street opticians often stick to one type of lens due to cost and that is what they are familier with.

They are aware of other lens types but do not have experience of fitting them which may why they are reluctant to offer them.

[Ioannis Kouraklis]

I have been informed that I should visit: Mr Scott Hau or Ken Pullum or Neil Cox (at Moorfields).

The case is that I need to visit an expert well used to fitting lenses to KC eyes, and able to use the full range of lens styles and materials, and the advantages and disadvantages of each, as Andrew MacLean insists.

I am not sure that I can visit hospital optometrists at Gartnavel Hospital in Glasgow (or in another UK hospital) since I am from another country (Greece).

[Andrew MacLean]

As you know I don't live in London, but I'd have thought that any of the optometrists at Moorfields would be well used to fitting KC eyes, and have a good working knowledge of all the lens options available.

Andrew

[Ioannis Kouraklis]

Do you know how can I contact Mr Scott Hau in Moorfields? I can not find his email address...

[James Colclough]

I have been using my existing rpg with a daily soft lens for almost a week now.

The comfort is amazing.

I was scheduled for Surgery in June but had this delayed so I could explore further options on the lens front.

I have KC for almost 22 years, I attended Moorefiels for the first time with my Wife in May, previously I had attended hospital alone, but with the thought of surgery looming my wife came along so she could ask questions too.

She actually spotted the address for the KC web site, which has provided me with more information in the past three months than I have gleaned elsewhere in the last 22 years