Health workers

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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Sallyuk
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Health workers

Postby Sallyuk » Mon 05 Dec 2005 6:32 pm

Hi :D .

Is there anyone else out there working in the health industry, nurses, midwives, doctors etc :shock: ? How did occupational health react to the news you have KC :? ? Are there some of you who have not felt able to disclose this :oops: ? Did you have KC before you worked for them or has it been diagnosed during your employment 8) ?

I am interested because I was diagnosed during my training and will soon be applying for positions and am concerned that after all my hard work I am going to be discriminated against :x . I am a student midwife.

Any help, advice would be appreciated :shock: .

Sally :wink:

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John Smith
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Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
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Postby John Smith » Mon 05 Dec 2005 7:37 pm

Hi Sally,

Please don't fret. I know that there are a number of health professionals out there with KC. At our social last night, we had a nurse (Sweet) present, and heard of a gynaecologist with the condition, too - though I don't think he posts to the forum.

Do you have the Group's Employers' leaflet? If not, you can get one by sending your address to Anne.

Best of luck,

John

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Sweet
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Keratoconus: Yes, I have KC
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Location: London / South Wales

Postby Sweet » Tue 06 Dec 2005 2:58 pm

Hello there Sally and welcome to the forum!

As John said, i am a nurse. Have been qualified for four years, and am now working in 'A & E'. I got diagnosed at fourteen, (am now twenty nine), played with lenses unsucessfully for two years until i decided to take the whole dam thing seriously, which wasn't easy when my twin sister then had no problems with her eyesight. And so was wearing lenses way before i went for my training.

To be honest, i don't think i actually mentioned it at uni, as it didn't really bother me once i found a lens that worked. I guess i just accepted that it was much better to wear one and see, than to not and go through life being almost blind! LOL!!

When i did qualify though i did mention it, more really because i had declared it a year before to the DVLA for my driving licence, and also because occupational health do have a right to know. When you fill in your application form for jobs, you are actually lying to them if you do not disclose this, and more importantly as i had to tell my twin sister, if you ever need any help with your eyesight in the future, you don't really have a leg to stand on if you didn't tell them! (She isn't in the health profession, was a teacher but now works as a secetary with computers). I would suggest being honest, than having to admit to not telling them at a later stage when you may need help, which may be years after by then!

Saying that ... i had NO problems with declaring it and still don't. I have worked in many areas, ICU and 'A & E' being the hardest with AC and needed better vision than ward work, but everything has been ok. This year i had to take six months off work because of infections etc and not being able to wear a lens, but occupational health were lovely.

Only one person there knew about the condition, but it really helped as they were able to write to work everytime i saw them to let them know what was going on and what help i needed. We don't use computers much, in that i don't spend hours looking at a screen so didn't really need help with that. but on shift patterns i kinda did. We work twelve hour shifts from eight until eight, three one week and four the next, but no more than three in a row once every six weeks. Every six weeks we also do a whole week of nights, which mean seven, twelve hour night shifts from eight until eight, with the following week off. This is difficult, and a whole year of that got me into so much trouble with my lenses, with overwear etc even though i had a week off to recover. Nights as you probably already know are hard work anyway as you do get tired, but seven in a row with lenses in is hell! LOL!

It is all ok now though, in that occupational health have arranged for health reasons that i never do more than three, so have a whole day and night to recover without having to wear a lens, and i make up the night i missed in my week off.

This is why you need to let occupational health know, as they can be so much help to you if you need them, and as you will be working shifts as well, that they can make sure that you have enough time off with rest to take your lenses out. You can also apply for time off etc for hospital / optician appointments, which can help if needed. As i work long shifts, i tend to book mine aound work as it is much easier, but it is there in case i need it.

Being a student midwife, i am sure that you will be aware of the risks of fluids etc splashing in your eyes, and will be advised to wear some eye protection just in case. I know that many advise this even if you don't wear lenses, as eyes are very sensitive and open to infection etc, and need protection just in case!

Lastly, it can be true that just because you work in the NHS or a caring profession, that you do not automatically get the help and support you may need. It is a right for everyone who works though, that they get support in order for them to carry out their job safely, and i am sure that you will find this out when you get your first job! :)

My advice ... is to be honest and upfront with them as they are more likely to be the same back to you! Also that occupational health have no real right to let your employers know anything about you unless it affects the way you work. So ... unless they need to justify any issues you have such as any reason for decreased shifts etc, that unless you tell those you work with yourself, that no-one there will actually know.

Hope this helps, and you are welcome to pm or email me if you need anything else!

Love Sweet X x X
Sweet X x X

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rosemary johnson
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Keratoconus: Yes, I have KC
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Postby rosemary johnson » Wed 07 Dec 2005 1:22 am

I used to work in the NHS.
In a computer department, though, rather than in a ward, lab or somewhere meeting patients or regularly coming into contact with infections, diseases or patients.
People there knew about it, and the normal reaction was "Oh, that's the same thing as X has, isn't it?" - believe it or not, there were 3 of us with KC in the same office!
O.H. Dept never got involved with my eyesight - or anything else; no doubt cos I was only in an office!
THe only bit of bother I ever had with O.H. was when one of the OH doctors got rather nasty with me when I was a union rep accompanying a member with a problem to an assessment interview. We were both within our rights, and he had to back down. He retired shortly after, IIRR.
Good luck with the reest of your traiing and getting a job.
Rosemary

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Postby pete turton » Fri 09 Dec 2005 1:09 pm

I'm in my third year at medical school, having been diagnosed with a mild KC that doesnt require any treatment at present (VA =6/5L 6/6R and topography hasnt changed in two years) I recently found out that i was actually one of THREE people in my year to have it, the other two substantially worse off than me. It hasnt affected my (or i think their) ability to function, and faculty was very supportive when i was in first year and told them about it.
As i don't have to wear lenses or anything else, night working doesnt affect me at all.
While this probably isnt much consolation to those KC sufferers who do wear lenses and do suffer on the night shifts, I think its important for newly diagnosed KC sufferers to know that in some cases you can be very lucky like myself and that it may not all be doom and gloom.

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Val G
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Keratoconus: Yes, I have KC
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Postby Val G » Fri 09 Dec 2005 1:30 pm

I am a Bionedical Scientist working in the NHS. I have always been open with my line manager and occupational health about my condition and they have helped where possible, allowing me to work in non-airconditioned areas etc.
I contacted the Health Professions Council when I knew I was going to need a corneal graft. Their advice was that I should limit or stop practising if my judgement was affected ( which I would like to think any health care worker would do!) and could return to work when medically able to do so.
I am now three days post graft! and hoping to be fit to return to work ASAP, realistically after the holidays with abit of luck(bit of a workaholic!)

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Sallyuk
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Postby Sallyuk » Fri 09 Dec 2005 11:00 pm

Gosh :o I wasn't expecting to hear from so many, thanks :wink:

You're all right I know and I am going to have to deal with this sensibly and declare my KC :shock: . I will just have to hope that I get an understanding occi health interview :roll: If not I will go independant :) .

I think the KC only appears worse because I seem to spend my entire life with my head in a book, working on the computer or writing essays 8) ! Once that is not so intense I hope it settles down again :? I am not intending to let this ruin my career :x .

Hope you all have a brill Christmas :D

Sally

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Sweet
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Keratoconus: Yes, I have KC
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Postby Sweet » Sat 10 Dec 2005 12:10 am

Hehehe there are quite a few of us aren't there!! Am glad that everyone seems in a good place here, am just hoping that this continues!

Am still on the reduced hours with nights, but as i find it so much easier, have decided with my boss to continue with it. I think i would rather make up the night i missed on my week off, than do seven and get into trouble with my eyes again!

Take care
Sweet X x X
Sweet X x X

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