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General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

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Sweet
Committee
Committee
Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Thu 18 Aug 2005 9:28 pm

Just wanted to say hello and welcome to the forum! You have already had a lot of useful advice so hoping that has put your mind at rest somewhat. I have just had a graft but i have put this off for the last 11 years, so don't let that worry you!

Take care and will be posting more when i have recovered!

Love Sweet X x X
Sweet X x X

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paula hardman
Contributor
Contributor
Posts: 44
Joined: Fri 07 May 2004 7:21 am
Keratoconus: Yes, I have KC
Vision: Contact lenses

ageism?

Postby paula hardman » Fri 19 Aug 2005 12:32 pm

Like Susan, I was 32 when I was diagnosed 2 years ago and can now read the second line with glasses, so I don't think it's as rare to develop KC at this age as opticians think.

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Ali Akay
Optometrist
Optometrist
Posts: 201
Joined: Thu 09 Jun 2005 9:50 pm
Keratoconus: No, I don't suffer from KC
Vision: I don't have KC
Location: Hertfordshire, UK

Postby Ali Akay » Sat 20 Aug 2005 5:37 pm

It's not so much that it's rare to develop KC in your 30s, but it's more the case that it would be unusual for late onset KC to progress to the level of needing a graft.Unfortunately there's no statistics, or database of keratoconics in the country which is a great shame, but I would have thought the % who developed over 30 years would be quite small.The pregnancy link is interesting and there's anectodal evidence that it's a possible trigger for very subtle,subclinical KC to progress to full-blown KC. I would be very surprised if a patient with perfectly regular corneas developed KC in his/her 30s, and I rather feel they had very early cones which were undetected as they were not affecting the vision. It's all academic really but it's a great shame that more research isn't done into the causes, epidemiology etc of this condition which appears to be on the increase.


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