Just a thought
How bad is Kerataconus compared to other conditions anyone can get ? I appreciate we are all different and cope different but let’s say an a person wearing RGP lens each day
Difficult question I know
Just a thought
Moderators: Anne Klepacz, John Smith, Sweet
-
- Regular contributor
- Posts: 146
- Joined: Mon 03 Sep 2012 11:50 am
- Vision: Contact lenses
- space_cadet
- Champion
- Posts: 960
- Joined: Tue 12 May 2009 11:46 pm
- Keratoconus: Yes, I have KC
- Vision: Other
- Location: Leeds
- Contact:
Re: Just a thought
if you are able to weara and tolerate lenses you are damnn lucky, I wish my sight was able to be solved by wearing glasses, but it can't and I use a long cane cos my KC has left me registred as severely sight impaired (legally blind)
but disability isn't a game of top trumps and nor is sight loss so I don't really see the point of what you are asking
but disability isn't a game of top trumps and nor is sight loss so I don't really see the point of what you are asking
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world
-
- Regular contributor
- Posts: 146
- Joined: Mon 03 Sep 2012 11:50 am
- Vision: Contact lenses
Re: Just a thought
It’s just a question
-
- Regular contributor
- Posts: 118
- Joined: Thu 17 Aug 2017 8:05 am
- Keratoconus: Yes, I have KC
- Vision: Other
Re: Just a thought
I think it’s quite hard to quantify. Every illness is debilitating in its own way and the effects will also be difficult.
I have quite mild KC to the extent I don’t really need glasses most of the time but it’s still had its own negative effects.
It’s a question I don’t really know how to answer!
I have quite mild KC to the extent I don’t really need glasses most of the time but it’s still had its own negative effects.
It’s a question I don’t really know how to answer!
-
- Chatterbox
- Posts: 287
- Joined: Wed 18 Apr 2018 1:29 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
Re: Just a thought
I think like most conditions it's a very wide spectrum regarding severity of progression, success of surgery/lenses/longer term failure/complications, how it impacts, experience of services, pain, so many factors.
For some people it's a minor inconvenience, for others it's been hard but ultimately ok, through to life changing in the negative.
Even when a lens or 2 can be tolerated for X hours with good 'clinic vision', it's still might be no picnic. 'Clinic sight' is not the same as outside sight ie technically I could drive with my 1 eye but I would crash within days if I tried because grit or mucus under the lens is a daily, streaming, wincing, event, looking out of the other duff eye would be a disaster, and removing a lens, waiting for it to settle, wash hands, clean lens, reinsert, wouldn't be viable in a car. I also couldn't say to a driving examiner 'well it's either an O, C, or Q', being asked what the license plate is, so that's fine for clinic but not a driving test. Ive been physically assualted at a bus stop for staring at the indicator as I couldn't move closer, because the person thought I was staring at them. I've been screamed at a few times for this reason, and had more misses with traffic than I can even count because of photosensitivity.
I have good vision in 1 eye with an RGP on an old graft, but I live in fear of losing that. The wear time and reslilience to tolerate multiple reinsertions is not what it was. The other eye has a macula hole, failed re-graft, awaiting DMEK and cataract, and I know that I wouldn't want to live with SVI in both eyes on a permament basis. I experience significant anxiety.
I wouldn't want to compare KC to other ophthalmic conditions though, some are serious and horrible but don't take sight or leave SVI, others don't. I have an auntie with macula degeneration and she is blind, it's very distressing to her. I'm grateful to have more sight than her.
For some people it's a minor inconvenience, for others it's been hard but ultimately ok, through to life changing in the negative.
Even when a lens or 2 can be tolerated for X hours with good 'clinic vision', it's still might be no picnic. 'Clinic sight' is not the same as outside sight ie technically I could drive with my 1 eye but I would crash within days if I tried because grit or mucus under the lens is a daily, streaming, wincing, event, looking out of the other duff eye would be a disaster, and removing a lens, waiting for it to settle, wash hands, clean lens, reinsert, wouldn't be viable in a car. I also couldn't say to a driving examiner 'well it's either an O, C, or Q', being asked what the license plate is, so that's fine for clinic but not a driving test. Ive been physically assualted at a bus stop for staring at the indicator as I couldn't move closer, because the person thought I was staring at them. I've been screamed at a few times for this reason, and had more misses with traffic than I can even count because of photosensitivity.
I have good vision in 1 eye with an RGP on an old graft, but I live in fear of losing that. The wear time and reslilience to tolerate multiple reinsertions is not what it was. The other eye has a macula hole, failed re-graft, awaiting DMEK and cataract, and I know that I wouldn't want to live with SVI in both eyes on a permament basis. I experience significant anxiety.
I wouldn't want to compare KC to other ophthalmic conditions though, some are serious and horrible but don't take sight or leave SVI, others don't. I have an auntie with macula degeneration and she is blind, it's very distressing to her. I'm grateful to have more sight than her.
Return to “General Discussion Forum”
Who is online
Users browsing this forum: No registered users and 77 guests